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  • 201.
    Elgmark Andersson, Elisabeth
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Månsson, Josefine
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation.
    Lund, Josefine
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation.
    Mild traumatic brain injury in children between 7-12 years of age.2011Conference paper (Refereed)
  • 202.
    Elgmark Andersson, Elisabeth
    et al.
    Jönköping University, School of Health Science, HHJ. CHILD.
    Sejdhage, Rebecka
    Smålandsstenar Care Centre, Smålandsstenar , Sweden.
    Wage, Victoria
    Primary Health Care, Tranemo, Sweden.
    Mild traumatic brain injuries in children between 0-16 years of age: A survey of activities and places when an accident occurs2012In: Developmental Neurorehabilitation, ISSN 1751-8423, E-ISSN 1751-8431, ISSN ISSN 1751–8423 print/ISSN 1751–8431, Vol. 15, no 1, p. 26-30Article in journal (Refereed)
    Abstract [en]

    Objective:

    The aim of this study was to identify what activities cause most mild traumatic brain injury (MTBI) among boys and girls between 0–16 years of age.

    Methods:

    Based on a randomized controlled study, a retrospective analysis was conducted among 765 children.

    Result:

    The most common causes of injury were falls from a height and falls from the same level. The most common place where the accident occurred was at ‘home’ followed by ‘pre-school/school’. The highest incidence was ‘play’ followed by ‘hit by another person’, thereafter ‘baby nursing’. Boys are more often injured than girls, but with no difference between boys and girls in terms of which activities that cause MTBI.

    Conclusion:

    Supervision during play at home as well as better designed schoolyards and playgrounds are required to prevent accidents. Furthermore, well-documented medical records are necessary to identify activities causing MTBI among children.

     

  • 203. Emanuelson, Ingrid
    et al.
    Holmqvist Andersson, Elisabeth
    Jönköping University, School of Health Science, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health Science, HHJ. CHILD.
    Björklund, Ragnhild
    Stålhammar, Daniel A
    Quality of life and post-concussion symptoms in adults after mild traumatic brain injury: a population-based study in western Sweden.2003In: Acta Neurologica Scandinavica, ISSN 0001-6314, E-ISSN 1600-0404, Vol. 108, no 5, p. 332-338Article in journal (Refereed)
    Abstract [en]

    OBJECTIVES: To study quality of life and subjective post-concussion symptoms in adults (16-60 years) with a mild traumatic brain injury (MTBI) 3 months and 1 year after injury.

    METHODS: Of a total of 489 patients 173 responded to questionnaires at 3 months and at 1 year, including the SF-36 health-related quality of life survey, which is a standardized measure validated for Swedish conditions. Post-concussion symptoms were rated as either existing or non-existing in a 21-item checklist [a modified version of Comprehensive Psychopathological Rating Scale (CPRS)].

    RESULTS: SF-36 showed impaired scores in all dimensions. Existing post-concussion symptoms were reported by 1545%. Significantly, more symptoms were present at 3 months than at 3 weeks after injury. Furthermore, a significant correlation between higher rates of post-concussion symptoms and lower SF-36 scores was found.

    CONCLUSIONS: The SF-36 results were significantly impaired compared with an age- and gender-matched normative control group and the rate of post-concussion symptoms was significantly higher at 3 months than at 3 weeks after injury. As a significant correlation between higher rates of symptoms and low SF-36 scores was also found we assume SF-36 to be a sensitive enough measure of MTBI-related effects.

  • 204.
    Enskär, Karin
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Assessing the life situation of children and adolescents with cancer and their families.1997Doctoral thesis, comprehensive summary (Other academic)
  • 205.
    Enskär, Karin
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Being an expert nurse in pediatric oncology care: nurses' descriptions in narratives2012In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 29, no 3, p. 151-60Article in journal (Refereed)
    Abstract [en]

    Pediatric oncology has become a highly specialized area, and the transition from novice nurse to expert can be complicated. The aim of this study was to describe the perceptions of nurses in pediatric oncology regarding the role of an expert nurse in pediatric oncology. Nurses (n = 66) working in pediatric oncology participated by writing their narratives. The data were analyzed by means of content analysis, and 3 categories were found: an expert has confidence in his or her knowledge, an expert provides high-quality care, and an expert is given possibilities for professional growth. It can be concluded that when nurses are given possibilities for continuous education and reflection, and have a feeling of satisfaction at being able to fulfill a child and his or her family's needs, this enhances their possibility to become experts and maintain expert competence.

  • 206.
    Enskär, Karin
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Commentary1999In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 3, no 1, p. 13-Article in journal (Other academic)
  • 207.
    Enskär, Karin
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Could symptom distress and life situation be measured in children and adolescents with cancer?2003In: Medical and Pediatric Oncology Volume 41 Issue 4: International Society of Paediatric Oncology, SIOP XXXV Meeting, Cairo, Egypt, October 8-11, 2003. SIOP Abstracts, 2003, p. 245-246Conference paper (Other academic)
  • 208.
    Enskär, Karin
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Education for Nurses in Pediatric Oncology Care2002In: NOBOS 2002 meeting, 26-28 may, Helsinki, Finland, 2002Conference paper (Other academic)
  • 209.
    Enskär, Karin
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Ethical aspects of judging the alternative treatment of children with cancer1995In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 2, no 1, p. 51-62Article in journal (Refereed)
    Abstract [en]

    OBJECTIVES: To study quality of life and subjective post-concussion symptoms in adults (16-60 years) with a mild traumatic brain injury (MTBI) 3 months and 1 year after injury.

    METHODS: Of a total of 489 patients 173 responded to questionnaires at 3 months and at 1 year, including the SF-36 health-related quality of life survey, which is a standardized measure validated for Swedish conditions. Post-concussion symptoms were rated as either existing or non-existing in a 21-item checklist [a modified version of Comprehensive Psychopathological Rating Scale (CPRS)].

    RESULTS: SF-36 showed impaired scores in all dimensions. Existing post-concussion symptoms were reported by 1545%. Significantly, more symptoms were present at 3 months than at 3 weeks after injury. Furthermore, a significant correlation between higher rates of post-concussion symptoms and lower SF-36 scores was found. CONCLUSIONS:

    The SF-36 results were significantly impaired compared with an age- and gender-matched normative control group and the rate of post-concussion symptoms was significantly higher at 3 months than at 3 weeks after injury. As a significant correlation between higher rates of symptoms and low SF-36 scores was also found we assume SF-36 to be a sensitive enough measure of MTBI-related effects.

  • 210.
    Enskär, Karin
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    [Life situation in children with cancer. Questionnaire helps in determining quality of life]1997In: Vårdfacket, ISSN 0347-0911, Vol. 21, no 9, p. 36-9Article in journal (Refereed)
  • 211.
    Enskär, Karin
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Livssituationen hos barn och ungdomar med cancer och deras föräldrar.2000In: Barnet och sjukvården: erfarenheter från barnonkologin / [ed] Anders Kreuger, Lund: Studentlitteratur , 2000, p. 132-147Chapter in book (Other academic)
  • 212.
    Enskär, Karin
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Omvårdnad av barn med cancer1999Book (Other academic)
  • 213.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Ankarcrona, Elisabeth
    Pediatric department, Ryhov County Hospital, Jönköping, Sweden.
    Jörgense, Anna
    Pediatric department, Ryhov County Hospital, Jönköping, Sweden.
    Huus, Karina
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Undocumented refugee children in Swedish healthcare: Nurses' knowledge concerning regulations and their attitudes about the care2012In: Vård i Norden, ISSN 0107-4083, E-ISSN 1890-4238, ISSN 0107-4083, Vol. 32, no 1, p. 44-47Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to investigate nurses' attitudes about care for undocumented refugee children and also to investigate the knowledge among nurses concerning the regulations for this care. The study is quantitative and based on a questionnaire sent to all nurses working in pediatric healthcare and medical care in a medium-sized county in Sweden. The overall response was 91 questionnaires (55.9%). Most of the respondents felt insecure or lacked knowledge of what regulations are valid when undocumented refugee children seek medical care or healthcare. Almost all nurses had a positive attitude toward caring for these children, but they feel they lack knowledge about the regulations regarding their care. To optimize the care situation for these children the regulations should be reviewed and altered to allow the nurse, legally and securely, to care for them.

  • 214.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Berterö, Carina
    Young Adult Survivors of Childhood Cancer: Experiences Affecting Self-image, Relationships, and Present Life2010In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 33, no 1, p. E18-E24Article in journal (Refereed)
    Abstract [en]

    Knowledge about how young adults experience being a childhood cancer survivor is limited, as most previous research concerning the quality of life in survivors of childhood cancer has been conducted using standardized questionnaires. The aim of the current study was to identify and describe young adults' own experiences of long-term effects of cancer treatment on their self-image, relationships, and present life related to the impact of being a survivor of childhood cancer. Interviews were held with 7 young adults, 20 to 23 years of age. The verbatim-transcribed interviews were analyzed using constant comparative analysis. The core category was identified as "compensated life picture." All the negative and difficult experiences are compensated for with a positive view on and positive expectations regarding life. This core category was grounded in 5 categories: living a normal life, bodily changes, relationships with and support from others nearby, sentient life, and personal growth. The findings in this study illustrate the importance for healthcare staff to be aware of young adult survivors' experiences of their childhood cancer and its long-term effects. Extra attention and support from the healthcare system after the concluded treatment period are needed via a support program or support group for young adults.

  • 215.
    Enskär, Karin
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Björk, Maria
    Jönköping University, School of Health and Welfare, HHJ. CHILD. School of Life Science, University of Skövde, Sweden.
    Knutsson, Susanne
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Granlund, Mats
    Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.
    Darcy, Laura
    Department of Health Science, University College Borås, Sweden.
    Huus, Karina
    Jönköping University, School of Health and Welfare, HHJ. CHILD.
    A Swedish perspective on nursing and psychosocial research in paediatric oncology: A literature review2015In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 19, no 3, p. 310-317Article, review/survey (Refereed)
    Abstract [en]

    PURPOSE: A dramatic improvement in outcomes of survival rates of childhood cancer has been seen. Caring science research is central in providing skills and knowledge to the health care sector, but few overviews of the content of published research have been carried out. The aim of this review was to investigate the content and methodology of published studies in paediatric oncology relevant to caring science, and also to compare possible differences in content and method of the published studies from the nursing and psychosocial perspectives.

    METHOD: A systematic literature review was performed of 137 published articles on paediatric oncology relevant to caring science in Sweden.

    RESULTS: The results show that most of the studies were descriptive or comparative ones with a quantitative design. Most of them focused on parents (43%) or children (28%). Most of the studies investigated wellbeing (88%), using questionnaires (54%) or interviews (38%). Several different measurement instruments had been used. While the results were often clearly presented, the clinical implications were more diffuse. The most acknowledged research fund was the Swedish Childhood Foundation (75%).

    CONCLUSIONS: To reflect the children' perspectives in paediatric oncology require that future researchers take on the challenge of including children (even young ones) in research. The use of a limited number of agreed measurement instruments is desirable. The biggest challenge for the future is to make a shift from explorative to intervention studies. There is an urgent need to transform research results into clinical practice.

  • 216.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Björk, Olle
    Marky, Ildiko
    Pekkanen, Kirsti
    Pergert, Pernilla
    Education for nurses in pediatric oncology care in Sweden2005In: Pediatric blood & cancer Volume 45 Issue 4: Abstracts of the 37th Annual Conference of the International Society of Paediatric Oncology (SIOP), Vancouver, Canada, 21-24 September 2005, 2005, p. 563-Conference paper (Other academic)
  • 217.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Björk, Olle
    Marky, Ildiko
    Pekkanen, Kirsti
    Pergert, Pernilla
    Education for nurses in pediatric oncology care in Sweden2006In: NOBOS, Nordic Society of Pediatric Oncology Nurses, 6th meeting 6-9 May 2006 Tampere, Finland, 2006Conference paper (Other academic)
  • 218.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Carlsson, M
    Golsäter, Marie
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Hamrin, E
    Symptom distress and life situation in adolescents with cancer1997In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 20, no 1, p. 23-33Article in journal (Refereed)
  • 219.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Carlsson, M
    Golsäter, Marie
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Hamrin, E
    Kreuger, A
    Life situation and problems as reported by children with cancer and their parents1997In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 14, no 1, p. 18-26Article in journal (Refereed)
  • 220.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Carlsson, M
    Golsäter, Marie
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Hamrin, E
    Kreuger, A
    Parental reports of changes and challenges that result from parenting a child with cancer1997In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 14, no 3, p. 156-163Article in journal (Refereed)
  • 221.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Carlsson, M
    Hamrin, E
    Kreuger, A
    Swedish Health care personnel's perceptions of disease and treatment-related problems experienced by children with cancer and their families1996In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 13, no 2, p. 61-70Article in journal (Refereed)
  • 222.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Carlsson, M
    von Essen, L
    Kreuger, A
    Hamrin, E
    Development of a tool to measure the life situation of parents of children with cancer1997In: Quality of Life Research, ISSN 0962-9343, E-ISSN 1573-2649, Vol. 6, no 3, p. 248-256Article in journal (Refereed)
  • 223.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Golsäter, Marie
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Från barndom till ungdom: den växande människans omvårdnadsbehov2009In: Omvårdnadens grunder: Perspektiv och förhållningssätt / [ed] Friberg, F & Öhnén, J, Lund: Studentlitteratur , 2009, 1, p. 109-145Chapter in book (Other (popular science, discussion, etc.))
  • 224.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Hamrin, Elisabeth
    Carlsson, Marianne
    von Essen, Louise
    Swedish mothers and fathers of children with cancer: perceptions of well-being, social life, and quality care.2011In: Journal of psychosocial oncology, ISSN 1540-7586, Vol. 29, no 1, p. 51-66Article in journal (Refereed)
    Abstract [en]

    The overall aim was to describe and compare well-being, social life, and quality care among parents of children with cancer with respect to mothers versus fathers and whether the children were on versus. off treatment. The Life Situation Scale for Parents (LSS-P) was answered by 320 parents, comprising 85 mothers and 71 fathers of children on treatment, and 93 mothers and 71 fathers of children off treatment. The results show that the well-being of parents of children with cancer is affected by their child's situation, and that they experience such things as economic strain and a sense of being dependent on the care provided, especially during the child's treatment phase. Mothers whose children are receiving treatment see their life situation as less satisfying, and report being sadder and having lower self-esteem.

  • 225.
    Enskär, Karin
    et al.
    Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Huus, Karina
    Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Björk, Maria
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD. School of Life Science, University of Skövde, Skövde, Sweden.
    Granlund, Mats
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Behavioural Science and Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.
    Darcy, Laura
    Institution of Health Science, University College of Borås, Borås, Sweden.
    Knutsson, Susanne
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Institution of Health Science, University College of Borås, Borås, Sweden.
    An analytic review of clinical implications from nursing and psychosocial research within Swedish pediatric oncology2015In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 30, no 4, p. 550-559Article in journal (Refereed)
  • 226.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Johansson, Inez
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Ljusegren, Gunilla
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Widäng, Ingrid
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Lecturers' experiences of participation in an international exchange2011In: Nurse Education Today, ISSN 0260-6917, E-ISSN 1532-2793, Vol. 31, no 6, p. 541-546Article in journal (Refereed)
    Abstract [en]

    Globalization is a trend in higher education and is judged to be essential to quality; however, there is a lack of publications on the outcome of lecturers' exchange. The aim of this study was to describe lecturers' experiences of participating in an international exchange. Twenty-six lecturers who had taken part in an exchange were invited to participate through writing a narrative. Data was analyzed with a qualitative method, and five categories emerged: Preparation and timing, challenges in teaching, demanding but worthwhile, broadening perspective and expanding network. The overall result showed that participating lecturers judged their international exchange to be a positive experience that had resulted in personal as well as professional development. However, a successful exchange requires planning, support and an open mind from all involved lecturers and institutions.

  • 227.
    Enskär, Karin
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Knutsson, Susanne
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Huus, Karina
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Granlund, Mats
    Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.
    Darcy, Laura
    Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Björk, Maria
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    A literature review of the results from nursing and psychosocial research within Swedish pediatric oncology2014In: Journal of Nursing & Care, ISSN 2167-1168, Vol. 3, no 6, p. 1-8Article, review/survey (Refereed)
    Abstract [en]

    The body of research-based knowledge in paediatric caring science has been increasing leading to dramaticimprovements in treatment. The purpose of this manuscript was to analyze results as stated by the researchers', inrecently published articles on nursing and psychosocial research, within Swedish pediatric oncology setting. Thiswas done through a review of 137 published articles about paediatric oncology related to caring science in Sweden.The result shows that the illness has affected, in both positive and negative ways, the wellbeing of everyone cominginto contact with the child. The cancer also causes distress related to all aspects of life including physical,psychological, existential and social. Mediating factors for the experience of distress and wellbeing are: disease andtreatment severity, age, gender and ethnicity of the participant, time since diagnosis, the use of internal and externalsupport, and the identity of the person reporting the data. Health promoting aspects frequently reported are: familytogetherness, coping strategies, engaging in normal life and activities, and quality of care which includes emotionalsupport, information and family participation in care. The hospital staff has to be aware of the psychosocial issuesexperienced by children with cancer and their families, and they have to acknowledge the value of formalinterventions, reporting benefits for children, families, and themselves.

  • 228.
    Enskär, Karin
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Ljusegren, Gunilla
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Gimbler Berglund, Ingalill
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Eaton, Nicola
    Harding, Rosemary
    Mokoena, Joyce
    Chauke, Motsedisi
    Moleki, Maria
    Attitudes to and knowledge about pain and pain management, of nurses working with children with cancer: A comparative study between UK, South Africa and Sweden2007In: Journal of Research in Nursing, ISSN 1744-9871, Vol. 12, no 5, p. 501-515Article in journal (Refereed)
    Abstract [en]

    Pain is among the most common effects of cancer and its treatment. Children and young people with cancer often consider pain from procedures and treatment to be the worst aspect of their illness. This study aimed to i) identify and describe knowledge and attitudes to pain and pain management amongst nurses working with children with cancer and ii) compare the perspectives on pain and pain management of nurses from UK, South Africa and Sweden. 106 nurses working with children with cancer in UK, South Africa and Sweden completed Salanterä’s (1999) questionnaire on nurses’ attitudes to pain in children. Nurses had good levels of knowledge and positive attitudes to pain management, with Swedish nurses’ having higher levels of knowledge and a more positive attitude to pain management than nurses from UK or South Africa. A high level of knowledge was correlated to a more positive attitude to pain management. Knowledge levels need to be improved to ensure more positive attitudes to pain management, especially for nurses in South Africa. Swedish nurses’ level of knowledge about non-pharmacological pain management strategies has scope for improvement. British nurses may need to focus more on the sociology and psychology of pain.

  • 229.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Ljusegren, Gunilla
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    Gimbler Berglund, Ingalill
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    Eaton, Nicola
    Harding, Rosie
    Mokoena, Joyce
    Chauke, Motshedisi
    Nurses attitudes and knowledge about pain in children: A comparative study Between South Africa, Sweden and United Kingdom2006In: European Journal of Oncology Nursing Volume 10, Issue 3: 37th Congress of the International Society of Paediatric Oncology Vancouver Canada 19-24 September 2005. Abstracts, 2006, p. 233-234Conference paper (Other academic)
  • 230.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Nolbris, Margaretha
    Hellström, Anna-Lena
    Siblings of children with cancer2006In: NOBOS, Nordic Society of Pediatric Oncology Nurses, 6th meeting 6-9 May 2006 Tampere, Finland, 2006Conference paper (Other academic)
  • 231.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. CHILD. HHJAFO.
    Pergert, Pernilla
    Round table discussion on ethics: For nurses in pediatric oncology care2008Conference paper (Other scientific)
  • 232.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    von Essen, L
    Important aspects of care and assistance for children with cancer2000In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 17, no 4, p. 239-249Article in journal (Refereed)
  • 233.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Von Essen, Louise
    Perceptions of distress, coping, support and good care among adolescents, on or off cancer treatment2006In: NOBOS, Nordic Society of Pediatric Oncology Nurses, 6th meeting 6-9 May 2006 Tampere, Finland, 2006Conference paper (Other academic)
  • 234.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    Von Essen, Louise
    Perceptions of distress, support, participation in life and good care among children, 7-12 years of age, on or off cancer treatment2005In: Pediatric blood & cancer Volume 45 Issue 4: Abstracts of the 37th Annual Conference of the International Society of Paediatric Oncology (SIOP), Vancouver, Canada, 21-24 September 2005, 2005, p. 585-Conference paper (Other academic)
  • 235.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    von Essen, Louise
    Physical problems and psychosocial function in children with cancer2008In: Paediatric Nursing, ISSN 0962-9513, Vol. 20, no 3, p. 37-41Article in journal (Refereed)
  • 236.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    von Essen, Louise
    Prevalence of aspects of distress, coping, support and care among adolescents and young adults undergoing and being off cancer treatment2007In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 11, no 5, p. 400-408Article in journal (Refereed)
  • 237.
    Enskär, Karin
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. CHILD.
    von Essen, Louise
    Swedish mothers and fathers perception of distress, coping, support and care2007In: Pediatric Blood & Cancer Vol. 49 Issue 4: Abstracts of the 39th Annual Congress of the International Society of Paediatric Oncology (SIOP), November 1-3, 2007, Mumbai, India., 2007, p. 411-412Conference paper (Refereed)
  • 238.
    Ericsson, Elisabeth
    Jönköping University, School of Health Science, HHJ. CHILD. Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    Improvement of Quality of Life by Tonsillotomy & Tonsillectomy in Children and Youths2009In: 1st Meeting of the European Academy of ORL - HNS, Mannheim, Tyskland  27-30 juni, 2009, 2009Conference paper (Refereed)
    Abstract [en]

    Background: There has been increasing evidence over the last few years that paediatric sleep-disordered breathing is associated with behavioural and neurocognitive problems as well as with poor school performance, failure to thrive and poor health related quality of life (HRQL). Several studies indicate that both behaviour and quality of life improve after tonsillectomy (TE) in children with sleep-disordered breathing (SDB). However, TE causes considerable pain and morbidity which often lasts more than seven days. Postoperative pain is poorly managed and under-treatment of pain leads to increased morbidity and postoperative behavioural changes. Tonsillotomy (TT) for obstructive symptoms has re-appeared with focus on reduction of postoperative morbidity. Removing only the protruding parts of the tonsils seems to have the same beneficial long-term effect on obstructive symptoms due to hypertrophic tonsils.

    Material and Method: Children and youths have been studied in relation to tonsil surgery with the goal of improving care and comparisons have been made between TT and TE.

    The first part of this presentation will cover three randomized trials of children and youth  4 to 25 years old with respect to pain and morbidity and with six months to three years follow-up including assessment of HRQL.

    The second part presents preliminary results from a Swedish national study of a sample of 550 children (4-15 yrs) to determine the impact on HRQL before and six months after TT or TE.

    In the studies, the impact on HRQL was evaluated in the younger age group using the Obstructive Sleep Apnea-18 (OSA-18), Glasgow Children´s Benefit Inventory (GCBI); their behavioural and emotional problems were assessed using the Child Behaviour Checklist (CBCL). In the age group 16-25 yrs, the HRQL was measured using the SF-36.

    Results: In the TT groups, the children recorded less pain from the first day after surgery onwards, used fewer doses of painkillers, and were pain-free 3 days (5-15yrs)/4 days (16-25 yrs) earlier than the children/youths in the TE group. For most TT patients, the combination of Paracetamol and Diclophenac was sufficient for analgesia. However, most of the TE patients with that medication had considerable pain and 50% still experienced substantial pain after one week. Before surgery, HRQL was registered as much lower among patients with obstruction problems when compared to the reference sample. Surgery with either tonsillotomy or tonsillectomy was associated with a marked improvement of the quality of life both for children with severe obstructive sleep related distress or with milder sleep disordered breathing.

     

    Conclusion: TT is a safe method, which causes less pain and postoperative morbidity than regular TE. Children and young adults with tonsillar hypertrophy and different degrees of obstructive sleep related distress all show a negative impact on HRQL and behaviour. All improve dramatically after a tonsillar operation—equally after TT as compared to TE.

  • 239.
    Ericsson, Elisabeth
    Jönköping University, School of Health Science, HHJ. CHILD. Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    Nationella riktlinjer och kvalitetsregister inom tonsillkirurgi2009In: Svenska ÖNH-dagar Specialistförening för öron-näs-halssjuksköterskor, 2009Conference paper (Other academic)
    Abstract [sv]

    Elisabeth Ericsson presenterar sin nuvarande forskning som berör barn och ungdomar i samband med anestesi och operation, med avsikt att komma fram till optimala förhållanden när det gäller att minimiera oro och förbättra smärtbehandling. Presentation av arbetet med nationella riktlinjer och kvalitetsregistret inom tonsillkirurgi; operationsindikationer, information och smärtbehandling. Resultat presenteras om validering av OSA-18 hälsorelaterat livskvalitetsinstrument för barn med obstruktionsbesvär

  • 240.
    Ericsson, Elisabeth
    Jönköping University, School of Health Science, HHJ. CHILD. Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    Validering av OSA-18 på en svensk barnpopulation2009In: Svensk ÖNH-Tidskrift, ISSN 1400-0121, Vol. 16, no 4, p. 16-19Article in journal (Other academic)
  • 241.
    Ericsson, Elisabeth
    et al.
    Jönköping University, School of Health Science, HHJ. CHILD.
    Hemlin, Claes
    Avdelningen för Otorhinolaryngologi, Aleris Sabbatsberg, Stockholm.
    Hessen-Söderman, Ann-Charlotte
    Avdelningen för Otorhinolaryngologi, Karolinska Universitetssjukhus, Stockholm.
    Hultcrantz, Elisabeth
    Avdelningen för Otorhinolaryngologi, Inst för Kliniks och Experimentell Medicin, Hälsouniversitetet, Linköping.
    Månsson, Ingemar
    Avdelningen för Otorhinolaryngologi, Sahlgrenska Universitetssjukhus, Göteborg.
    Roos, Kristian
    Avdelningen för Otorhinolaryngologi, Capio Lundby, Göteborg.
    Stahlfors, Joacim
    Avdelningen för Otorhinolaryngologi, Sahlgrenska Universitetssjukhus, Göteborg.
    The role of information and instruction to children and parents in homemanagement after tonsil surgery - what is it helpful for them to know?2010Conference paper (Refereed)
    Abstract [en]

    OBJECTIVES

    To create national recommendations for information after tonsil surgery to improve the management ofchildren.

    METHODS

    1. A search of Medline addressing evidence on expectations and advice about medication and nonpharamacological techniques to relieve pain after tonsil surgery and 2. A questionnaire focusing on the routines for information before and after tonsil surgery was administrated to all ENT-clinics in Sweden with 99% response rate.

    RESULTS

    There is evidence that information has an empowering effect upon parents to feel more control over their child’s care. Lack of information leads to anxiety and increased perception of pain in the child. Children and parents who were given specific information related to pain and morbidity, reported less pain and were less anxious than those with no or insufficient information. Constructive information should be given gradually, starting preoperatively, to parents and children. A leaflet should contain sufficient information about what happens before, during and is to be expected after surgery, the risks and possible complications, and advice and recommendation of medication and non-pharmacological techniques. Results from the national enquiry (N=48) showed the provision of a variety of different written information from the various clinics, often insufficient. Based on these findings, an information leaflet for patients and a checklist based on the literature for the staff to use at discharge were developed (both will be available).

    CONCLUSIONS

    A checklist for the staff insures that parents and children get consistent advice. A leaflet provided before surgery helps children and parents with methods to relieve pain. This could decrease the number of complications and later consultations and give shorter recovery.

  • 242.
    Ericsson, Elisabeth
    et al.
    Jönköping University, School of Health Science, HHJ. CHILD.
    Hemlin, Claes
    Sophiahemmet AB, Stockholm.
    Hessén Söderman, Anne-Charlotte
    Karolinska Universitetssjukhus, Danderyd.
    Hultcrantz, Elisabeth
    Hälsouniversitete, Linköping.
    Nerfeldt, Pia
    Karolinska Universitetssjukhus, Huddinge.
    Stalfors, Joacim
    Sahlgrenska Universitetsjukhus, Göteborg.
    Friberg, Danielle
    Karolinska Universitetssjukhus, Huddinge.
    Kirurgisk behandling av barn med sömnrelaterade andningsstörningar2009In: Kirurgisk behandling av barn med sömnrelaterade andningsstörningar: ÖNH-dagar, Svensk förening för Otorhinolaryngologi, Huvud och Halskirurgi, Stokholm 13-15 maj, 2009Conference paper (Other academic)
    Abstract [sv]

     

    Kirurgisk behandling av barn med sömnrelaterade andningsstörningar

    Moderator: Danielle Friberg, överläkare, Karolinska Huddinge I panelen: Elisabet Ericsson, disputerad sjuksköterska, Hälsohögskolan, Jönköping, Claes Hemlin, överläkare, Sophiahemmet, Anne-Charlotte Hessén Söderman, överläkare, Karolinska Danderyd, Elisabeth Hultcrantz, professor, Universitetssjukhuset, Linköping, Pia Nerfeldt, disputerad specialistläkare, Karolinska Huddinge, Joacim Stalfors, överläkare, Sahlgrenska, Göteborg.

    Bakgrund: Barn med sömnrelaterade andningsstörningar (SRBD) o/e obstruktivt sömnapnésyndrom (OSAS) behandlas primärt med kirurgi (adenotonsillektomi), varav cirka 80 % blir botade. Det finns flera riskfaktorer till SRBD/OSAS: kraniofaciala missbildningar, neuromuskulära sjukdomar samt övervikt/fetma, som ökar även bland barn. Cirka 1-3 % av barnen har OSAS och 12 % har SRBD och dessa barn löper ökad risk för inlärningssvårigheter, dålig viktsutveckling, hjärtkärlsjukdomar och dödlighet. Fram till nu har dessa barn blivit styvmoderligt behandlade i rutinsjukvården. Detta symposium vill belysa hur vi kan förbättra oss.

    Material och metod: Med mentometerknappar inbjuds auditoriet att delta i kliniska frågeställningar. Typfall demonstreras. Nya kirurgiska metoder presenteras; tonsillotomi, tonsillektomi med coblation eller radiofrekvens, vilka har utvärderats gentemot sedvanlig ”kall” tonsillektomi. Resultat från Kvalitetsregister för tonsilloperation kommer att redovisas. Likaså den nyvaliderade OSA-18, som är ett sjukdomsspecifikt hälsorelaterat  livskvalitetsformulär för barn med misstänkt SRBD/OSAS. Ett polysomnografilab för barn har nyligen startats på Karolinska Huddinge, där flera studier planeras.

    Resultat: Panelmedlemmarna presenterar sina resultat för auditoriet, vilka sen får delta i diskussionen med eller utan mentometer.

    Diskussion: Hur kan vi förbättra omhändertagandet av barn med SRBD/OSAS? Hur ska vi välja ut de som ska opereras? Hur fungerar OSA-18 och hur kan vi använda formuläret i vår vardag? Vilken operationsmetod är att föredra på vilket barn? Vilka frågor kan det förnyade tonsilloperationsregistret besvara? Vilka barn ska följas upp efter kirurgi? Barn med riskfaktorer, hur ska vi hantera dem? Kan vi erbjuda de barn som inte blir bra på kirurgi alternativ behandling? Vilken ytterligare forskning behövs?

  • 243.
    Ericsson, Elisabeth
    et al.
    Jönköping University, School of Health Science, HHJ. CHILD. Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    Hemlin, Claes
    Hultcrantz, Elisabeth
    University of Linköping.
    Månsson, Ingemar
    Roos, Kristian
    Stalfors, Joacim
    Weitz, Per
    Tonsilloperation: Nationella Medicinska Indikationer: Rapport från expertgruppen för tonsilloperation inom Svensk förening för Otorhinolaryngologi, Huvud- och halskirurgi2009Report (Other academic)
  • 244.
    Ericsson, Elisabeth
    et al.
    Jönköping University, School of Health Science, HHJ. CHILD. Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    Hultcrantz, Elisabeth
    University, Linköping.
    Månsson, Ingemar
    Hälso- och sjukvårdsstyrelsens kansli, Göteborg .
    Roos, Kristian
    Capio Lundby Sjukhus AB, Göteborg .
    Stalfors, Joachim
    Sahlgrenska Universitetssjukhus, Göteborg.
    Weitz, Per
    Centrallasarettet, Västerås .
    Erfarenheter från kvalitetsregistret för tonsilloperation 1997-20082008In: Medicinska Riksstämman, Göteborg 26-28 nov, 2008, 2008Conference paper (Other academic)
    Abstract [sv]

    Bakgrund

    Kvalitetsregister för svensk ÖNH-sjukvård infördes successivt med början 1997, ett av registren ägnades tonsillektomi. Detta register har nu varit i bruk i drygt 10 år. Det kommer att avslutas med operationer utförda t.o.m. 081231. Registret beräknas komma att omfatta ca 50 000 ingrepp, det fortsätter sedan i modifierad form och med ny teknik för insamling av data. Med anledning av att en period för tonsilloperationsregistret nu avslutas, ges här en översiktlig rapport om erfarenheterna.

    Metod

    Kvalitetsregistret är tänkt att användas såväl på kliniknivå som på nationell nivå. På kliniknivå ska effekter och bieffekter av ingreppet jämföras dels med riksgenomsnittet och dels med sig själv över tid. På riksnivå kan förändringar i indikationer, operationsmetoder och organisatoriska förändringar m.m. studeras. Rapporten analyserar utvecklingen av det nuvarande tonsilloperationsregistret med fokus på den nationella nivån samt presenterar några rapporter som tillkommit i anslutning till registret.

    Resultat

    En översiktlig presentation ges av: ⋅ Registrets data på nationell bas ⋅ Hälso- och sjukvårdsrapport 2001 ⋅ Oväntad ålders- och könsfördelning ⋅ Oplanerade återbesök ⋅ Patienters upplevelse av komplikationer till tonsillektomi ⋅ Nationella indikationer för tonsilloperation ⋅ M.m.

    Sammanfattning

    En sammanfattning av utvecklingen av ett nationellt kvalitetsregister med 50 000 tonsilloperationer presenteras.

  • 245.
    Ericsson, Elisabeth
    et al.
    Jönköping University, School of Health Science, HHJ. CHILD. Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    Lundeborg, Inger
    University, Linköping.
    Hultcrantz, Elisabeth
    University, Linköping.
    Child Behavior and quality of life before and after tonsillotomy versus tonsillectomy2009In: International Journal of Pediatric Otorhinolaryngology, ISSN 0165-5876, E-ISSN 1872-8464, Vol. 73, no 9, p. 1254-1262Article in journal (Refereed)
    Abstract [en]

    Objectives: Compare two techniques for pediatric tonsil surgery with respect to postoperative pain and morbidity and changes in sleep behavior, health related quality of life (HRQL) and benefits due to surgery.

    Methods: 67 children (4.5–5.5 years) with tonsillar hypertrophy and obstructive sleep-disordered breathing with or without recurrent tonsillitis were randomized to either regular tonsillectomy (TE) (n = 32) or intracapsular tonsillectomy/tonsillotomy (TT) (n = 35) with Radiofrequency surgical technique (ellman Int.). Before TT/TE, the parents completed a validated Quality of Life survey of pediatric obstructive sleep apnea, the OSA-18 (Obstructive Sleep Apnea-18) and a standardized assessment of their children’s behavior with the Child Behavior Checklist (CBCL). Six months after surgery, the parents repeated these measurements, and assessed the health related benefits of the surgery using the Glasgow Children’s Benefit Inventory (GCBI).

    Results: In the TT group, the children recorded less pain from the first day after surgery on wards, used fewer doses of painkillers and were pain-free 3 days earlier than the children in the TE group. Six months after surgery, there were no significant difference between TT and TE with regard to snoring and ENT-infections. The differences in the total scores and in all the individual domains between the initialOSA-18 and postsurgery scores were all significant (P < 0.0001). The improvement in the total problem score measured with CBCL was also significant (P < 0.01) and there was no difference between the TT and TE children. The improvements in all subscores of the GCBI indicated a significant health benefit of both TT and TE.

    Conclusions: TT with RF-surgery causes less pain and postoperative morbidity than regular TE and has an equal effect on snoring and recurrent infections. Pre-school children with tonsillar hypertrophy and obstructive sleep-disordered breathing all show an impact on HRQL and behavior before surgery and improve dramatically just as much after TT as after TE. Therefore TT would be considered for treatment of small children

  • 246. Eriksson, L
    et al.
    Granlund, Mats
    Jönköping University, School of Health Science, HHJ, Dep. of Behavioural Science and Social Work. Jönköping University, School of Health Science, HHJ. CHILD.
    Aktivt deltagande: En jämförelse mellan elever med och utan funktionshinder2003Report (Other academic)
  • 247. Eriksson, L
    et al.
    Granlund, Mats
    Jönköping University, School of Health Science, HHJ, Dep. of Behavioural Science and Social Work. Jönköping University, School of Health Science, HHJ. CHILD.
    Att vara delaktig i sitt liv: en fältprövning av ICIDH-22001Other (Other academic)
  • 248. Eriksson, L
    et al.
    Granlund, Mats
    Jönköping University, School of Health Science, HHJ, Dep. of Behavioural Science and Social Work. Jönköping University, School of Health Science, HHJ. CHILD.
    Miljö och delaktighet2003Report (Other academic)
  • 249. Eriksson, L
    et al.
    Granlund, Mats
    Jönköping University, School of Health Science, HHJ, Dep. of Behavioural Science and Social Work. Jönköping University, School of Health Science, HHJ. CHILD.
    Participation in school activities: a comparison between students with and without disabilities2004In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 6, p. 206-224Article in journal (Refereed)
  • 250. Eriksson, L
    et al.
    Granlund, Mats
    Jönköping University, School of Health Science, HHJ, Dep. of Behavioural Science and Social Work. Jönköping University, School of Health Science, HHJ. CHILD.
    Perceived participation: a comparison of students with disabilities and students without disabilities2003In: Developmental medicine and child neurology. Supplement 97, Volume 45: Abstracts: European Academy of Childhood Disability, 15th annual meeting, Oslo, 2003, London: MacKeith , 2003, p. 40-Conference paper (Other academic)
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