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  • 1.
    Johnson, Ensa
    et al.
    Centre for Augmentatve and Alternatve Communicaton, Faculty of Humanites, University of Pretoria, Pretoria, South Africa.
    Nilsson, Stefan
    Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD. Insttute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
    Adolfsson, Margareta
    Högskolan i Jönköping, Högskolan för lärande och kommunikation, HLK, CHILD. Centre for Augmentatve and Alternatve Communicaton, Faculty of Humanites, University of Pretoria, Pretoria, South Africa.
    How pain management for children with cerebral palsy in South African schools complies with up-to-date knowledge2019Inngår i: African Journal of Disability, ISSN 2226-7220, Vol. 8, artikkel-id a575Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: Pain in children with cerebral palsy (CP) has its sources in musculoskeletal problems that can influence learning in a school setting. Best pain management is essential for these children, but school staff may not keep up to date with the latest developments and interventions. Therefore, staff’s perceptions of beneficial strategies may not comply with contemporary scientific knowledge about effective evidence-based interventions.

    Objectives: This study investigated how pain management intervention for children with CP in South African schools complied with international scientific knowledge about evidence-based interventions. The intention was to provide support for an update of knowledge on both individual level (i.e. professionals) and system level (i.e. decision makers).

    Method: Five focus groups were conducted with staff members at five schools for children with special educational needs in South Africa. Manifest and latent content analyses of professional statements identified interventions reported as beneficial and related them to higher and lower levels of intervention evidence as reported at the time of data collection.

    Results: Most treatment strategies concerned motor functioning that fell within the framework of physiotherapists and occupational therapists. Access to orthopaedic expertise was limited, waiting times were long and medication for spasticity treatment was not offered.

    Conclusion: A discrepancy between published evidence and clinical practice for pain management in children with CP in South African school settings was noted. Suggestions for improved early intervention to identify children’s hips at risk through surveillance programmes; and orthopaedic management are proposed to prevent deformities and unnecessary suffering in South African children with CP.

  • 2.
    Nilsson, Stefan
    Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    Procedural and postoperative pain management in children: experiences, assessments and possibilities to reduce pain, distress and anxiety2010Doktoravhandling, med artikler (Annet vitenskapelig)
    Abstract [en]

    Introduction

    Children’s visits to hospital are often connected with painfulexaminations and treatments. If these situations are associated withunsuccessful alleviation of pain, the children may develop distress, anxiety and even pain sensitization. Effective pain management including pharmacological treatment and coping methods that support the children when undergoing examinations or treatments could reduce these harmful effects. Distraction methods such as serious games and music medicine are techniques to deviate attention away from procedural or postoperative pain, and these may help children create positive experiences. There is a need to examine these interventions among children in hospital.

    Aim

    The overall purpose of this thesis was to investigate procedural and postoperative pain management among children in hospital. The specific aims were

    • to describe a group of children’s experiences of pain in conjunction with procedural pain
    • to validate an observational behavioural scale for procedural pain assessment in children aged 5-16 years
    • to study pain intensity and distress among children using serious games and music medicine
    • to describe children’s experiences of the use of serious games and music medicine.

    Methods

    Two hundred and twelve children who underwent a medical or surgical procedure at the Queen Silvia Children’s hospital in Gothenburg participated in one or two studies, and data were collected with assessment scales, vital signs and interviews. All the data were analyzed using approved methods of analysis.

    Results

    The results showed that the children emphasized nurses who were clinically competent and that they wanted to participate in decision making concerning distraction techniques as a complement to pharmacological treatment. An observational assessment scale, the Face, Legs, Activity, Cry and Consolability (FLACC) scale, was avaluable tool for assessing procedural pain and complementing retrospective self-reported pain and distress. Distraction techniques were helpful coping strategies for the children, who also needed to feel secure in the pain management. In children undergoing needle related procedures, serious games reduced pain intensity, but only for those who liked the game, and the interviews showed increased wellbeing. Music medicine reduced morphine consumption and decreased the children’s distress when they underwent day surgery.

    Conclusions

    The conclusions of this thesis are that procedural pain can be evaluated using the FLACC scale, the children want to participate in decision-making on distraction techniques such as serious games or music medicine and these self-selected distraction techniques are also helpful coping strategies for the children.

  • 3.
    Nilsson, Stefan
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    Enskär, Karin
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för omvårdnad. Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    Virtual reality in a child oncology unit2007Inngår i: Pediatric blood & cancer Vol. 49 Issue 4: Abstracts of the 39th Annual Congress of the International Society of Paediatric Oncology (SIOP), November 1-3, 2007, Mumbai, India., 2007, s. 412-Konferansepaper (Fagfellevurdert)
  • 4.
    Nilsson, Stefan
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    Finnström, B
    Kokinsky, E
    The FLACC behavioral scale for procedural pain assessment in children aged 5-16 years2008Inngår i: Pediatric Anaesthesia, ISSN 1155-5645, E-ISSN 1460-9592, Vol. 18, nr 8, s. 767-774Artikkel i tidsskrift (Fagfellevurdert)
  • 5.
    Nilsson, Stefan
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    Finnström, Berit
    Kokinsky, Eva
    Enskär, Karin
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för omvårdnad. Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    The use of Virtual Reality for needle-related procedural pain and distress in children and adolescents in a paediatric oncology unit2009Inngår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 13, nr 2, s. 102-109Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Aim: It is essential to minimize pain and distress during painful procedures in children. This study examined the effect of using non-immersive Virtual Reality (VR) during a needle-related procedure on reported pain or distress of children and adolescents in a paediatric oncology unit and surveyed their response to the use of VR-equipment during the procedure.

    Method: Twenty-one children and adolescents were included in an intervention group with non-immersive VR and another 21 children and adolescents in a control group where they underwent either venous punctures or subcutaneous venous port devices. Self-reported pain and distress, heart rate and observational pain scores were collected before, during and after the procedures. Semi-structured qualitative interviews were conducted in conjunction with the completed intervention.

    Results: Self-reported and observed pain and distress scores were low and few significant differences of quantitative data between the groups were found. Two themes emerged in the analysis of the interviews; the VR game should correspond to the child and the medical procedure and children enjoyed the VR game and found that it did distract them during the procedure.

    Conclusion: The interviews showed that non-immersive VR is a positive experience for children undergoing a minor procedure such as venous puncture or a subcutaneous venous port access.

  • 6.
    Nilsson, Stefan
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    Finnström, Berith
    Enskär, Karin
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för omvårdnad. Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    Non-immersive Virtual Reality for reduction of pain2008Inngår i: NOBOS: Linköping, Sweden, 10-13 maj 2008, 2008Konferansepaper (Fagfellevurdert)
  • 7.
    Nilsson, Stefan
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    Hallqvist, Carina
    CITIZYS Research Group, Department of Information Technology and Media, Mid Sweden University, Sundsvall.
    Sidenvall, Birgitta
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för omvårdnad. Högskolan i Jönköping, Hälsohögskolan, HHJ. Åldrande - livsvillkor och hälsa.
    Enskär, Karin
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för omvårdnad. Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    Children's experiences of procedural pain management in conjunction with trauma wound dressings2011Inngår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 67, nr 7, s. 1449-1457Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Aim.  This paper is a report of the experiences of children (5–10 years) of procedural pain when they underwent a trauma wound care session.

    Background.  Procedural pain in conjunction with trauma wound care often induces anxiety and distress in children. Children need to alleviate pain and avoid the development of fear in conjunction with examinations and treatments. The nurse could help children to reach this goal by using the comfort theory, which describes holistic nursing in four contexts: physical, psychospiritual, environmental and sociocultural. Few studies have focused on children’s experiences of comforting activities in conjunction with trauma wound dressings.

    Methods.  This study was conducted between May 2008 and January 2010. Thirty-nine participants aged 5–10 were consecutively included in this study. The wound care session was standardized for all the participants, and semi-structured qualitative interviews with open-ended questions were conducted with all the children in conjunction with the procedure. All the interviews were transcribed verbatim and analysed with qualitative content analysis.

    Findings.  Four themes were identified: clinical competence, distraction, participation and security. The children were helped to reach comforting activities to enhance pain management.

    Conclusion.  Children require more than just analgesics in wound care. They also need to experience security and participation in this context. When children feel clinical competence in wound care, they trust the nurse to carry out the wound dressing and instead can focus on the distraction that increases their positive outcomes.

  • 8.
    Nilsson, Stefan
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    Kokinsky, Eva
    Nilsson, Ulrica
    Sidenvall, Birgitta
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för omvårdnad.
    Enskär, Karin
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för omvårdnad. Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    School-aged children's experiences of postoperative music medicine on pain, distress, and anxiety.2009Inngår i: Pediatric Anaesthesia, ISSN 1155-5645, E-ISSN 1460-9592, Vol. 19, nr 12, s. 1184-1190Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Aim: To test whether postoperative music listening reduces morphine consumption and influence pain, distress, and anxiety after day surgery and to describe the experience of postoperative music listening in school-aged children who had undergone day surgery. Background: Music medicine has been proposed to reduce distress, anxiety, and pain. There has been no other study that evaluates effects of music medicine (MusiCure((R))) in children after minor surgery. Methods: Numbers of participants who required analgesics, individual doses, objective pain scores (Face, Legs, Activity, Cry, Consolability [FLACC]), vital signs, and administration of anti-emetics were documented during postoperative recovery stay. Self-reported pain (Coloured Analogue Scale [CAS]), distress (Facial Affective Scale [FAS]), and anxiety (short State-Trait Anxiety Inventory [STAI]) were recorded before and after surgery. In conjunction with the completed intervention semi-structured qualitative interviews were conducted. Results: Data were recorded from 80 children aged 7-16. Forty participants were randomized to music medicine and another 40 participants to a control group. We found evidence that children in the music group received less morphine in the postoperative care unit, 1/40 compared to 9/40 in the control group. Children's individual FAS scores were reduced but no other significant differences between the two groups concerning FAS, CAS, FLACC, short STAI, and vital signs were shown. Children experienced the music as 'calming and relaxing.' Conclusions: Music medicine reduced the requirement of morphine and decreased the distress after minor surgery but did not else influence the postoperative care.

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