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  • 1.
    Edvardsson, Carola
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Stenvall, Hanna
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Familj på lånad tid - hjälp oss att minnas vår tid tillsammans: Föräldrars erfarenhet av neonatal palliativ vård. En litteraturöversikt2016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: In today’s neonatal care, it is uncommon that babies die. When it happens, it is associated with a life-long crisis for the affected parents. In neonatal end-of-life care, the focus is on the entire family and on the relationships that occur between the family and the health care professionals. It is also related to the ethical questions and difficult decisions that take place in this situation. Aim: The aim was to describe parents´ experiences in neonatal end-of-life care. Method: A literature review consisting of 12 articles with a qualitative approach were made. Searches were made in the databases AMED, Cinahl, Medline and PsycINFO. Fribergs three step method for analysis was used. Results: Eight categories were found: To be able to be near; To be involved in making decisions; The importance of information; To be respected; To alleviate child suffering; The meaning of conversation and support; To create memories and The significance of the hospital environmentConclusions: The parents have the need to be involved in the care of their dying child to create lasting memories. They need information to understand and they ask for further contact and follow-up meetings after the death of their child.

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