Change search
Refine search result
1 - 19 of 19
CiteExportLink to result list
Permanent link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Rows per page
  • 5
  • 10
  • 20
  • 50
  • 100
  • 250
Sort
  • Standard (Relevance)
  • Author A-Ö
  • Author Ö-A
  • Title A-Ö
  • Title Ö-A
  • Publication type A-Ö
  • Publication type Ö-A
  • Issued (Oldest first)
  • Issued (Newest first)
  • Created (Oldest first)
  • Created (Newest first)
  • Last updated (Oldest first)
  • Last updated (Newest first)
  • Disputation date (earliest first)
  • Disputation date (latest first)
  • Standard (Relevance)
  • Author A-Ö
  • Author Ö-A
  • Title A-Ö
  • Title Ö-A
  • Publication type A-Ö
  • Publication type Ö-A
  • Issued (Oldest first)
  • Issued (Newest first)
  • Created (Oldest first)
  • Created (Newest first)
  • Last updated (Oldest first)
  • Last updated (Newest first)
  • Disputation date (earliest first)
  • Disputation date (latest first)
Select
The maximal number of hits you can export is 250. When you want to export more records please use the Create feeds function.
  • 1.
    Taubner, Helena
    Högskolan i Halmstad, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Afasi och narrativt aktörskap – mediebilder, självberättelser och multimodala litteracitetspraktiker2019Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Aphasia is an aquired language disability, most commonly caused by stroke. Since aphasia involves difficulties producing and/or understanding language, written as well as spoken, it entails a reduced ability and opportunity to author one’s own narrative. In the face of this reduced narrative agency (Baldwin, 2005), people who acquire aphasia need to renegotiate their identity. To do so they mirror their stories of self in social structures, including the contemporary communication landscape in which digital tools play an important part, but also norms and attitudes – strongly influenced by the media – towards people with language disabilities. Drawing on theories about the interplay between agency and social structures, this doctoral thesis aims to – by studying media representations of people with aphasia, stories of self authored by people with aphasia and literacy practices within a group of people with aphasia – examine narrative agency in people who live with aphasia in a society influenced by textual and digitally mediated communication.Three studies (A-C), presented in four articles, were conducted. Study A aimed at investigating narrative types in Swedish newspaper articles about living with aphasia. A majority of the newspapers contained stories in which the person with aphasia was talked aboutrather than talked to. In the few cases in which the person was given voice (or was assisted by a vicarious voice), the stories were mainly framed as successs stories. Study B then aimed at examining stories of self authored by nine individuals with aphasia who were interviewed and then observed in social media. They applied a variety of strategies to manage their stigma (Goffman, 1963)and to navigate identity dilemmas (Bamberg, 2011). In addition, the participants experienced a higher degree of narrative agency when communicating in social media than in other practices. The key to this enhanced narrative agency was the multimodality offered by the digital tools. Finally, study C aimed at describing literacy practices within a group of people with aphasia attending an aphasia course at a Swedish folk high school. Ethnographic data were collected during three weeks. The group’s narrative agency was strongly influenced by the use of digital screens to access multimodal literacy practices and by co-creation of literacy events between group members in which they used each other’s abilities. To discuss the overall findings from all three studies, Bourdieus thinking tools linguistic capital, linguistic markets and legitimate language (1991)were used. Although aphasia means partial language loss, some linguistic capitals may remain. When a linguistic market includes multiple modalities, a person with aphasia may chose ways of communication based on her remaining abilities. Thus, her narrative agency increases when her remaining linguistic capitals correspond to what is considered legitmate language within a certain linguistic market. That was the case when the participants in study B and C engaged in multimodal literacy practices. But when the stories of people with aphasia are told in Swedish newspapers, they are portrayed with a low degree of narrative agency. In addition, the newspaper stories are framed as success stories, meaning that when people with aphasia renegotiate their stories of self, they mirror their stories in grand narratives about happy endings. Further research is suggested about representations of people with aphasia in other media types (with a higher degree of multimodality), but also about how the linguistic capitals of people with aphasia interact with other forms of social capital such as gender and class.

    Download full text (pdf)
    FULLTEXT01
  • 2.
    Taubner, Helena
    Jönköping University, School of Education and Communication, HLK, CHILD.
    Afasilinjer på folkhögskola [video]2022Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Helena Taubner är lektor i specialpedagogik vid Jönköping University. Här berättar hon om forskning kring personer med afasi som läser på folkhögskolans afasilinjer, både vad vi vet hittills och vad hon skulle vilja ta reda på. 

  • 3.
    Taubner, Helena
    Högskolan i Halmstad, Wigforss-gruppen.
    “At least I can walk” – online re-negotiation of identity in post-stroke aphasia2017Conference paper (Refereed)
  • 4.
    Taubner, Helena
    Högskolan i Halmstad, Wigforss-gruppen.
    Increased Agency through Screens and Co-Creation – Literacy Practices within a Group of People with Aphasia at a Swedish Folk High School2019In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 21, no 1, p. 197-206Article in journal (Refereed)
    Abstract [en]

    This article aims to analyse characteristics of collective and authentic literacy practices within a group of people with aphasia attending an aphasia course at a Swedish folk high school. The group included 12 individuals with aphasia who were studied during a period of 3 weeks. Ethnographic data consists of video and audio recordings, photos and field notes. Two main characteristics of the literacy practices were identified: digital screens dominated and bridged the online/offline boundary, and shared knowledge enabled the participants to co-create literacy. The literacy practices were emancipatory, because they provided ways for the participants to un-mask their inherent competence, increasing their agency. When the use of digital technology transforms a (formerly non-literacy) practice into a multimodal literacy practice, and when an individual with aphasia becomes part of a literacy co-creation practice, the disability (understood as a relation between individual and environmental characteristics) caused by aphasia is reduced. 

    Download full text (pdf)
    FULLTEXT01
  • 5.
    Taubner, Helena
    Högskolan i Halmstad, Wigforss-gruppen.
    Multimodality as a key to identity re-negotiation when living with post-stroke aphasia in a digitalised society2019Conference paper (Refereed)
  • 6.
    Taubner, Helena
    Högskolan i Halmstad, Wigforss-gruppen.
    Online and offline re-negotiation of identity when living with post-stroke aphasia2017Conference paper (Refereed)
  • 7.
    Taubner, Helena
    Högskolan i Halmstad, Wigforss-gruppen.
    Online and offline re-negotiation of self when living with post-stroke aphasia2017Conference paper (Refereed)
    Abstract [en]

    Background: Aphasia, i.e. language disorder caused by brain injury (most commonly stroke), affects some 10.000 people in Sweden every year, 30% of whom are between 18 and 65. Much has been said about neurological or medical aspects of aphasia, but experiences of people affected are much less studied.

    When living with post-stroke aphasia, the stroke constitutes a boundary between separate phases of life, often evoking an identity crisis and a need of a re-negotiation of self. Considering that 90% of the Swedish working-age population are Internet users, this re-negotiation process will necessarily include online aspects. Nevertheless, research combining aphasia, identity and online communication is scarce. Thus, this study aimed to investigate how working-age Swedish Internet users with post-stroke aphasia re-negotiate their identity, offline and online.

    Method: Qualitative interviews were conducted with nine individuals (three men and six women) living with post-stroke aphasia (all diagnosed R470). At the time of the interviews, they were between 26 and 61 years old. In addition, a total of 1,581 online posts (e.g. photos, videos, text, emoticons) created by the same participants were analysed.

    Results: The analyses indicate that the participants, in their re-negotiation of self, frequently position themselves in relation to other disabilities, e.g. by stating “I am not stupid” or “At least, I can walk”. This positioning varied depending on which points in time (i.e. pre-stroke, acute phase, rehabilitation, post-stroke) were taken into account.

    Conclusion: Whereas some of the participants struggled to maintain a representation of themselves similar to their pre-stroke identity, some proudly embraced aphasia as a new aspect of their identity. Furthermore, they seemed to have better opportunities to control the renegotiation process in online settings than offline.

  • 8.
    Taubner, Helena
    Högskolan i Halmstad, Wigforss-gruppen.
    Online communication as improved stigma management in post-stroke aphasia2016Conference paper (Refereed)
    Abstract [en]

    Background: As in most developed countries, a large majority of the Swedish population are Internet users. Within the working-age population, the percentage is >90. Hence a large extent of the literacy practices and identity construction of Swedish people take place online. The increasing importance of being able to read and write is a challenge for people living with an acquired language disorder, such as aphasia (affecting some 10.000 individuals in Sweden every year). Linguistic practices are important mediating tools for identity construction. Aphasia can therefore be understood not only as (partially) losing one’s language and literacy skills per se, but also as being deprived of one’s identity. However, this is rarely taken into account in aphasia rehabilitation, and research combining aphasia, identity and online communication practices is scarce.

    Aim: The aim of the current study is to examine how working-age Swedish Internet users with post-stroke aphasia construct their identity online.

    Methods: Interviews were conducted with nine Swedish individuals (aged 26-61, three men and six women) with post-stroke aphasia. In addition, a total of >2000 online posts (e.g. photos, videos, text, emoticons) made by the same participants were collected.

    Results: Analyses of the data, based on Goffman’s theory of stigma management, indicated that the participants made active choices whether to display or hide their aphasia online. Some of them proudly displayed their difficulties (e.g. by posting their medical record, or posting texts with errors) while others made efforts to hide them (e.g. by sharing texts written by others instead of writing themselves, or preferring emoticons or the like-button over commenting in writing), thus creating a difference between their offline and online identity. Offline, this kind of stigma management was less available to them.

    Conclusion: A possible conclusion is that the participants’ online literacy practices to a large extent aimed at controlling who knew what about them, i.e. to control their stigma by presenting different identities in different contexts. It appears as if the participants consider the Internet, with its wide range of communication tools (including pictures, like-buttons, emoticons), a better arena for stigma management than their offline practices.

  • 9.
    Taubner, Helena
    Högskolan i Halmstad, Wigforss-gruppen.
    Online re-negotiation of identity in post-stroke aphasia2016Conference paper (Refereed)
  • 10.
    Taubner, Helena
    Högskolan i Halmstad, Wigforss-gruppen.
    Success Stories – Narrative Types in Swedish Journalistic Newspaper Articles about Living with Aphasia2021Conference paper (Refereed)
    Abstract [en]

    Background: Acquiring aphasia may entail a need to tell new ‘stories of self’. This identity re-negotiation must be understood in relation to ‘grand narratives’ which are highly influenced by the media. In other words, media representations form backdrops against which people construct their narrative identities. The media reports and reproduces ideals and norms regarding e.g. health, success, happiness and disabilities. Thus, it is in relation to this backdrop that people with aphasia re-negotiate their identities. Nevertheless, research on how people with aphasia are actually portrayed in the media is scarce. Aim: This study aimed to increase the knowledge about media representations of people living with aphasia, by studying Swedish journalistic newspaper articles. It focused on stories in which people with aphasia were included in the discussion rather than merely being the subject of the discussion, i.e. stories in which people with aphasia were talked to rather than being talked about.  Methods/procedures: A qualitative ethnographic content analysis (Altheide & Schneider, 2013) was conducted, using a typology of narrative types (Frank 1995/2013) as an analytical toolkit. The typology consists in restitution, chaos, quest, and broken narratives. Swedish print media material published between 2007 and 2018 was collected, resulting in an initial number of almost seven thousand entries. The material was scanned for irrelevant entries and duplicates, and eventually 84 articles were identified for inclusion in the qualitative analysis. Themes and sub-themes were identified within each narrative type, and the narrative types were also grouped into larger categories. Results: All of Frank’s narrative types were found in the studied articles. A major divide was identified between two emergent overarching frames: success stories and defeat stories. Although defeat stories did exist, they were outnumbered by the success stories. Stories about frustration, hopelessness, or giving up were rarely told. Instead, hardships were described as possible to overcome if the person with aphasia was stubborn enough. Thus, the overall finding is that, within Swedish journalistic newspaper articles, living with aphasia is framed as a success story. Discussion and clinical implications: ‘Stories of self’ authored by people with aphasia are more complex than simply being about success or defeat. Success stories may therefore be difficult to relate to for people with aphasia. Claiming that stubbornness is key to recovery implies that people with aphasia who are not recovering are not trying hard enough, when actually a number of neurological, medical and social factors influence their prognosis. Thus, success stories about stubbornness may induce feelings of failure in a person with aphasia who is not improving despite their efforts. Increased knowledge about these issues may prepare clinicians and researchers to address the complexity of the identity re-negotiation related to living with aphasia. 

  • 11.
    Taubner, Helena
    et al.
    Högskolan i Halmstad, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Hallén, Malin
    Högskolan i Halmstad, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Success Stories: Narrative Types in Swedish Journalistic Newspaper Articles about Living with Aphasia2021In: The European Journal of Health Communication, ISSN 2673-5903, Vol. 2, no 1, p. 56-76Article in journal (Refereed)
    Abstract [en]

    Aphasia is a language impairment caused by acquired brain injury such as stroke. Public awareness about aphasia is low in Sweden as well as internationally. The media is an important source of information on aphasia, but research on how people with aphasia are portrayed in the media is scarce. Therefore, this study aimed to increase the knowledge about media representations of people living with aphasia, by studying Swedish journalistic newspaper articles. It focused on stories in which people with aphasia were included in the discussion rather than merely being the subject of the discussion. Drawing on framing theory and Frank’s typology of narrative types, a qualitative ethnographic content analysis was conducted. Swedish print media material published between 2007 and 2018 was collected and 84 articles were identified for inclusion in the analysis. The overall finding was that, within Swedish journalistic newspaper articles, living with aphasia is framed as a success story. Themes and sub-themes were identified within each narrative type, and we suggest expanding Frank’s typology with humour narratives and necessity narratives. Although several narrative types were identified in the studied articles, the overarching success story frame was predominant. 

    Download full text (pdf)
    FULLTEXT01
  • 12.
    Taubner, Helena
    et al.
    Högskolan i Halmstad, Wigforss-gruppen.
    Hallén, Malin
    Högskolan i Halmstad, Wigforss-gruppen.
    Wengelin, Åsa
    Department of Swedish, University of Gothenburg, Gothenburg, Sweden.
    Signs of aphasia: Online identity and stigma management in post-stroke aphasia2017In: Cyberpsychology : Journal of Psychosocial Research on Cyberspace, E-ISSN 1802-7962, Vol. 11, no 1Article in journal (Refereed)
    Abstract [en]

    This study aimed to investigate online strategies for re-negotiating identity, in terms of stigma management, developed by working-age Swedish Internet users with post-stroke aphasia, i.e., acquired language impairment caused by brain injury. Interviews were conducted with nine individuals (aged 26-61, three men and six women) with post-stroke aphasia. In addition, a total of 1,581 screenshots of online posts (e.g., photos, videos, text, emoticons) created by the same participants were collected. Drawing on social semiotics (specifically the three dimensions of online communication mentioned by Kress (2003), i.e., composition, content and context) and Goffman’s theory of stigma (1963, specifically the concepts of stigma management and passing), qualitative thematic analysis was performed. Regarding composition, three themes emerged: Relying on others or technology, Beyond speaking and writing, and Controlling speed and timing. The participants rarely posted content about aphasia, but some of them used the Internet to raise awareness. Different online contexts had different meaning to the participants in terms of identity. Being open about the aphasia in one forum did not imply the same behaviour in another forum (e.g., dating sites). For the participants to pass (Goffman, 1963), should they want to, they needed to control all three dimensions. If the context or the composition revealed the stigma, controlling the content was not enough to pass. The multimodality of the Internet enabled the participants to manage their stigma in a variety of ways and to choose whether to be perceived as persons with aphasia or not. 

    Download full text (pdf)
    FULLTEXT01
  • 13.
    Taubner, Helena
    et al.
    Högskolan i Halmstad, Wigforss-gruppen.
    Hallén, Malin
    Högskolan i Halmstad, Wigforss-gruppen.
    Wengelin, Åsa
    Department of Swedish, University of Gothenburg, Gothenburg, Sweden.
    Still the same? – Self-identity dilemmas when living with post-stroke aphasia in a digitalised society2020In: Aphasiology, ISSN 0268-7038, E-ISSN 1464-5041, Vol. 34, no 3, p. 300-318Article in journal (Refereed)
    Abstract [en]

    Background: Self-identity construction through “stories of self” is highly relevant for people with aphasia, not only because the onset entails a “biographical disruption” but also since their ability to keep their “stories of self” going is reduced. Three dilemmas (constancy/change, sameness/difference and agency/dependency) are known to be central to identity. In a digitalised society like Sweden, self-identity construction, including the navigation of these dilemmas, takes place both online and offline. Nevertheless, research combining aphasia, identity and online issues is scarce.

    Aim: This qualitative study aims, in terms identity dilemmas, to investigate self-identity construction in working-age persons living with post-stroke aphasia in a digitalised society (i.e. Sweden). Are the dilemmas relevant to the participants, and if so, how do they navigate them online and offline?

    Methods and Procedures: Nine individuals (three men and six women, aged 24–54 at onset) with mild or moderate post-stroke aphasia participated. The data comprises nine individual audio-recorded interviews and 1,581 screenshots from online observations. Qualitative analyses were performed (vertically and horizontally), combining inductive and deductive approaches.

    Outcomes and Results: All three dilemmas are relevant to the participants. They construct their self-identity as both the same as they were pre-stroke and changed. They are both the same and different in relation to other stroke survivors (with or without aphasia), i.e. both “disabled” and “normal”. They display both dependency and agency. Thus, they navigate the dilemmas by constantly negotiating what to include in their stories of self. In addition, telling one story of self offline does not imply telling the same story online.

    Conclusion: The dilemmas are intertwined and highly relevant to the participants. Offline and online settings evoke different ways for them to navigate the dilemmas. Increased awareness of the possible struggle with self-identity dilemmas in people with aphasia, and the possible difference between their online and offline self-identities, should be of value to family members, clinicians and researchers. Further research based on a larger sample is suggested. 

    Download full text (pdf)
    FULLTEXT01
  • 14.
    Taubner, Helena
    et al.
    Högskolan i Halmstad, Wigforss-gruppen.
    Hallén, Malin
    Högskolan i Halmstad, Wigforss-gruppen.
    Wengelin, Åsa
    University of Gothenburg, Gothenburg, Sweden.
    Stories of self when living with aphasia in a digitalized society2020In: Identity Construction and Illness Narratives in Persons with Disabilities / [ed] Chalotte Glintborg & Manuel L. de la Mata, Abingdon: Routledge, 2020, p. 20-35Chapter in book (Refereed)
    Abstract [en]

    We are our stories of self. The stories we tell about ourselves is the interface between us and others, as we keep our “narratives going”. What happens, then, if we lose our language due to a brain injury? In this chapter, stories of people with post-stroke aphasia are related and analysed. They have lost their linguistic abilities overnight, entailing a need of identity re-negotiation. However, their key to this re-negotiation, i.e. language, has been reduced “when most needed”. In a highly digitalized society like Sweden, identity is “always online” and online literacy practices are central to everyday communication. Thus, the stories of self told by people living in Sweden – including people with aphasia – include online aspects. The aim of this chapter is, therefore, to explore stories of self of nine Swedish individuals (6 women and 3 men, aged 24–56 at onset) with aphasia, and to analyse the role played by multimodal online literacy practices when telling these stories. The participants were interviewed and observed online. The interviews were based on the PCI methodology which aims to generate storytelling and emphasises the participant’s right to be understood. The online observations were inspired by netnography and included the social media platforms in which the participants were active. Findings show that the participants recurrently negotiated what to include in their stories of self, and that they constantly navigated identity dilemmas. They constructed self-identities as both the same as they were pre-stroke and changed. They were both the same and different in relation to others, i.e. both “disabled” and “normal”. They displayed both dependency and agency. Because of the multimodality, the online literacy practices provided an opportunity for the participants to express their stories of self in a more elaborate way than in offline settings. Thus, online multimodality increased the participants’ control of their identity re-negotiation.

  • 15.
    Taubner, Helena
    et al.
    Högskolan i Halmstad, Akademin för hälsa och välfärd.
    Tideman, Magnus
    School of Health and Welfare, Halmstad University, Halmstad, Sweden; School of Allied Health, Human services and Sport, La Trobe University, Melbourne, Victoria, Australia.
    Carin, Staland‐Nyman
    School of Health and Welfare, Halmstad University, Halmstad, Sweden.
    People with intellectual disability and employment sustainability: A qualitative interview study2023In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 36, no 1, p. 78-86Article in journal (Refereed)
    Abstract [en]

    Background: Swedish employment rates are disproportionately low among people with intellectual disability and research on employment sustainability in this group is scarce. This study investigated employment sustainability among people with intellectual disability, with a focus on identifying facilitators.

    Method: Fifteen persons with intellectual disability who were gainfully employed and had been so for at least 1 year during the last 3 years, and 10 representatives from their employers, were interviewed.

    Results: Five facilitators were identified: (1) having tried various types of work, (2) liking to be at work, (3) balance concerning expectations and adaptations, (4) mutual engagement and flexibility, and (5) wage subsidies.

    Conclusion: Employment sustainability needs to be understood at individual as well as environmental and societal levels. In addition, both duration and progress should be considered regarding employment sustainability in this population. 

  • 16.
    Taubner, Helena
    et al.
    Högskolan i Halmstad, Akademin för hälsa och välfärd.
    Tideman, Magnus
    Högskolan i Halmstad, Akademin för hälsa och välfärd.
    Nyman, Carin
    Högskolan i Halmstad, Akademin för hälsa och välfärd.
    Employment Sustainability for People with Intellectual Disability: A Systematic Review2022In: Journal of occupational rehabilitation, ISSN 1053-0487, E-ISSN 1573-3688, Vol. 32, p. 353-364Article in journal (Refereed)
    Abstract [en]

    Purpose Previous reviews about employment for people with intellectual disability (ID) have left questions about employment sustainability unanswered. Therefore, the aim of this systematic review was to identify and analyse research regarding employment sustainability for people with ID. The research questions were: What research about employment sustainability for people with ID has been published internationally between 2010 and 2020? In the identified studies, how is employment sustainability defined and measured and what are the main findings regarding employment sustainability?

    Methods A systematic review was conducted using eight databases from various disciplines including medical, health, and social sciences. After a selection process, 10 articles remained, and a framework matrix was created to analyse them. An employment sustainability definition was used as an analytical tool.

    Results Ten articles were identified as being about employment sustainability for people with ID. Five of them used qualitative designs and five used quantitative designs. Only four out of ten contained a definition of employment sustainability, and there was an inconsistency in measurement methods. The reported findings in the studied articles were categorised into three types: proportions of long-term employed individuals within the studied population, facilitators and barriers to long-term employment.

    Conclusions There is only a limited amount of research about employment sustainability for people with ID. Nevertheless, a few facilitators and barriers could be identified. There is no consensus about how to define or measure employment sustainability, making comparisons difficult.

  • 17.
    Taubner, Helena
    et al.
    Jönköping University, School of Education and Communication, HLK, CHILD.
    Tideman, Magnus
    Högskolan i Halmstad.
    Staland-Nyman, Carin
    Högskolan i Halmstad.
    Long-term employment for people with intellectual disability2023Conference paper (Refereed)
    Abstract [en]

    Maintaining work over time, and not only gaining brief or unstable jobs, is included in the UN Convention on Rights for People with Disabilities and mentioned in the UN Sustainability Development Goals. Still, employment rates among people with intellectual disabilities (ID) are low. We have reviewed previous international research on employment sustainability for people with ID and thereafter conducted a qualitative interview study with Swedish employees with ID and their employers.

    The systematic review showed that very little research is available about employment sustainability for people with ID, especially regarding societal factors. Ten studies were identified as published internationally between 2010 and 2020, and among them only two reported societal factors – (1) having been in an inclusive school environment or living in an area with a larger population size and (2) living without basic living security assistance or in a household with greater income level. The findings also highlight a lack of a consensus definition of sustainability and an inconsistency in measurements.

    The interview study focused on identifying what facilitates employment sustainability for people with ID, according to themselves and their employers. Fifteen persons with ID who were long-term employed, and ten representatives from their employers, were interviewed. Five facilitators were identified: (1) having tried various types of work, (2) liking to be at work, (3) balance concerning expectations and adaptations, (4) mutual engagement and flexibility, and (5) wage subsidies. In addition, remaining at a workplace may be the result of lacking alternatives.

    Employment sustainability needs to be understood at individual as well as environmental and societal levels. In addition, both duration and progress should be considered regarding employment sustainability in this population. We strongly suggest further research in this field, not least qualitative studies in which people with ID are given voice themselves.

  • 18.
    Tideman, Magnus
    et al.
    Ersta Sköndal Bräcke högskola, Högskolan i Halmstad.
    Björne, Petra
    Lunds universitet, Malmö stad.
    Appelgren, Marie
    Aspling, Jenny
    Ersta Sköndal Bräcke högskola.
    Hellberg, Dag
    Ersta Sköndal Bräcke högskola.
    Lövgren, Veronica
    Umeå universitet, Institutionen för socialt arbete.
    Szönyi, Sofie
    Ersta Sköndal Bräcke högskola.
    Takter, Martina
    Malmö stad.
    Taubner, Helena
    Högskolan i Halmstad.
    Vuxna med intellektuell funktionsnedsättning och covid-19-pandemin: personernas egna erfarenheter av hur pandemin påverkat deras vardagsliv2021Report (Other academic)
    Abstract [sv]

    Personer med intellektuell funktionsnedsättning befinner sig i en utsatt position vid kriser som en pandemi, dels beroende på funktionsnedsättningen och dess konsekvenser, dels beroende på de levnadsförhållanden man lever under. Det saknas dock systematisk kunskap om hur personer med intellektuell funktionsnedsättning i Sverige upplevt de restriktioner och begränsningar som covid-19-pandemin inneburit och hur den påverkat deras vardagsliv. 

    I denna studie har 34 vuxna med lindrig eller måttlig intellektuell funktionsnedsättning och som har någon form av stödinsats från samhället intervjuats om sina erfarenheter av ett drygt års pandemi. 18 män och 16 kvinnor i åldrarna 23 till 77 år från olika delar av landet har medverkat. Utöver dessa har nio representanter för intresseorganisationen FUB (Föreningen för barn, ungdomar och vuxna med utvecklingsstörning) intervjuats för att i första hand delge erfarenheter av vardagslivet under pandemin för personer med mer omfattande intellektuell funktionsnedsättning. 

    Syftet med studien har varit att beskriva och analysera de erfarenheter och upplevelser av pandemin och dess konsekvenser i vardagen som personer med intellektuell funktionsnedsättning har. Huvudresultaten av intervjuerna sammanfattas i en typologi med tre typer: 

    • Nästan som vanligt 

    • En begränsad vardag 

    • Att vara i “lock-down” 

    Som namnen antyder finns en grupp personer med intellektuell funktionsnedsättning som upplever att de kunnat leva ett nästan vanligt liv under pandemin. De har påverkats av restriktionerna på samma sätt som andra medborgare men kunnat fortsätta med ett tämligen vanligt vardagsliv. Mellangruppen beskriver en begränsad vardag som periodvis dominerats av begränsningar av sysselsättning och aktiviteter liksom begränsade möjligheter till sociala kontakter. Den tredje gruppen; Att vara i “lock-down”, är den största till antalet personer och det är de individerna som upplevt de mest genomgripande och långvariga begränsningarna av vardagslivet. Besöksförbud, inställd sysselsättning och fritidsaktiviteter samt begränsningar i rörelsefrihet under långa perioder har mycket påtagligt påverkat deras vardag. Gemensamt för alla tre grupperna är upplevelser av att pandemin medfört ökad ensamhet och begränsningar i vardagslivet som påverkat deras välbefinnande. Studien visar att ju fler och mer omfattande begränsningar, desto mer upplevelser av ensamhet och mer negativ påverkan på välbefinnandet och det psykiska måendet. 

    Det är personer som bor i bostad med särskild service enligt lagen om stöd och service till vissa funktionshindrade (LSS) och har sysselsättning genom daglig verksamhet som upplevt en hög grad av begränsande åtgärder, medan flertalet av de som inte bor i en särskild boendeform i stort sett kunnat leva som den övriga befolkningen. De som bedömts ha störst behov av stöd i vardagen och av en meningsfull sysselsättning har således erfarit ett mer begränsat vardagsliv under pandemin. Dessutom visar intervjumaterialet att det funnits stora skillnader i hanteringen av pandemin på kommunal nivå: från mindre anpassningar av verksamheter till total nedstängning, från stöd att hålla avstånd till förbud att ta emot besök i sitt eget hem. Vägledningen för den lokala funktionshinderverksamheten från nationella myndigheterna har, liksom tillgången på tillgänglig information för personer med intellektuell funktionsnedsättning om pandemin, varit begränsad och kommit sent. Den senfärdighet som nationella myndigheter uppvisat i relation till pandemins konsekvenser för personer med intellektuell funktionsnedsättning är anmärkningsvärd. 

    De begränsande åtgärderna majoriteten av deltagarna i studien beskriver kan till viss del vara en konsekvens av bristande framförhållning och krisplanering. Det handlar om brister i alla sektorer i samhället: hälso- och sjukvård, statliga myndigheter, samt privata och kommunala utförare av insatser enligt LSS och Socialtjänstlagen (SoL). Bristerna bedöms ha lett till att personer med intellektuell funktionsnedsättning tvingats bära en oproportionerligt stor börda under pandemin. 

    Studiens kunskapsbidrag kan samhället lära av. Erfarenheter som personer med intellektuell funktionsnedsättning själva, men också deras anhöriga och personal inom funktionshinderområdet, har gjort och fortsatt gör under pandemin behöver dokumenteras och utvärderas så att samhället på lokal, regional och nationell nivå blir bättre rustat att möta en utsatt grupps behov vid framtida kriser och utmaningar. 

    För att framgångsrikt förbereda för framtida kriser är det väsentligt att människor med funktionsnedsättning får stöd som tillgodoser deras psykiska, fysiska och sociala behov (SOSFS, 2002:9). De har rätt till stöd, inte i första hand för att de har en funktionsnedsättning eller för att det finns lagstiftning, främst har de rätt till det för att de är människor. Med ett holistiskt och humanistiskt synsätt och vilja att lära av covid 19-pandemins erfarenheter kan fler och bättre lösningar vara tillgängliga nästa gång vi befinner oss i ett läge som kräver krishantering. 

    Download full text (pdf)
    FULLTEXT01
  • 19.
    Tideman, Magnus
    et al.
    Högskolan i Halmstad.
    Staland Nyman, Carin
    Högskolan i Halmstad, Akademin för hälsa och välfärd.
    Taubner, Helena
    Jönköping University, School of Education and Communication, HLK, CHILD.
    Att få och behålla ett arbete: Hållbarhet i arbetslivet för personer med intellektuell funktionsnedsättning2024Report (Other academic)
    Abstract [sv]

    Arbete och meningsfull sysselsättning är viktigt för människors inkludering i samhället och för trygga livsvillkor och utveckling. Att vara en del av arbetslivet anses vara avgörande för unga och deras etablering i vuxenlivet. Det är väl känt att deltagande i arbetslivet för den enskilde i ett livsloppsperspektiv generellt visar på ett positivt samband med faktorer såsom ekonomisk situation, social status och hälsa. För samhället är tillgången till människors olika kompetenser och deras möjlighet till självförsörjande angelägen. Alternativet till försörjning via eget förvärvsarbete är i många fall ersättning från socialförsäkringen. En grupp som historiskt sett stått, och fortfarande i betydande utsträckning står, utanför den öppna arbetsmarknaden är personer med intellektuell funktionsnedsättning (IF). Andelen personer med IF i befolkningen är knappt två procent, varav tre fjärdedelar bedöms ha lindrig funktionsnedsättning. Forskning har dock visat att en relativt liten andel av unga vuxna med IF återfinns på den öppna arbetsmarknaden men att många fler i gruppen skulle önska att ha ett förvärvsarbete, om det fanns bättre möjligheter och förutsättningar. Kunskapen om vilka faktorer som är av betydelse för att unga med IF ska komma in på arbetsmarknaden samt behålla arbetet, dvs få en varaktig och hållbar arbetsmarknadsanknytning, är mycket liten. Syftet med detta projekt var mot denna bakgrund att,  utifrån studier som fokuserar på personer med IF som arbetar, identifiera faktorer som kan vara av betydelse för att främja en hållbar anknytning till arbetsmarknaden.  

1 - 19 of 19
CiteExportLink to result list
Permanent link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf