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  • 1.
    Augustine, Lilly
    et al.
    Jönköping University, School of Education and Communication, HLK, CHILD. Jönköping University, School of Health and Welfare, HHJ, Dept. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Adolfsson, Margareta
    Jönköping University, School of Education and Communication, HLK, CHILD.
    Granlund, Mats
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.
    The utility of the International Classification of Functioning construct as a statistical tool – operationalizing mental health as an indicator of adolescent participation2022In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 44, no 16, p. 4220-4226Article in journal (Refereed)
    Abstract [en]

    Background

    The ICF provides a common scientific language for the study of health and functioning. Adolescent mental health, operationalized as engagement in life situations, is one aspect of functioning. Engagement as mental health has a bi-directional relation with environmental factors.

    Aim

    To test the statistical utility of the International Classification of Functioning (ICF) classification in coding adolescent mental health and mental health problems.

    Methods

    Using data measuring mental health in a representative Swedish sample of 12-13-year-olds linking responses to the classification codes. The internal structure of the classification system constructs was tested using factor analysis.

    Results

    A factorial solution could be found for most chapters indicating that the ICF framework and coding system could be used; however, the variance explained was quite low. Linking worked better at code-level, rather than chapter level. Items measuring risk behavior or risk factors are loaded in separate constructs.

    Conclusions

    When coding items for statistical purposes, code-level rather than chapter level is to be preferred. Also, participation in risk behavior loads in separate factors indicating that these behaviors are separate from other types of participation.

    Implications for rehabilitation

    Considering some challenges with varying level of detail in the ICF-CY's chapters, the framework can be used to identify the content of mental health questionnaires to be used in rehabilitation. To provide more detailed information in rehabilitation addressing mental health, a code-level solution is more appropriate than a chapter level solution. Despite the use of same ICF-CY codes, negative participation, i.e., risk behavior, measures a different dimension than positive participation, is especially relevant in rehabilitation addressing mental health.

  • 2.
    Augustine, Lilly
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Granlund, Mats
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.
    Trajectories of participation, mental health, and mental health problems in adolescents with self-reported neurodevelopmental disorders2022In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 44, no 9, p. 1595-1608Article in journal (Refereed)
    Abstract [en]

    PURPOSE: Having a neurodevelopmental disorder (NDD) increases the risk of mental health problems and lower participation. We investigated the trajectories of mental health problems and participation in adolescents with NDD and compared these with trajectories for peers without NDD. In addition, the relationship between participation, mental health (well-being), and mental health problems were investigated.

    MATERIALS AND METHODS: Data from a Swedish longitudinal survey study (LoRDIA) was used and adolescents with and without self-reported NDD were followed from 12/13 to 17 years, in three waves. Mental health problems were measured using the Strength and Difficulties Questionnaire, and well-being was measured with the Mental Health Continuum short form.

    RESULTS: Adolescents with NDD experience more mental health problems than adolescents without NDD. Hyperactivity, a key feature of NDD, remains stable, while emotional problems and psychosomatic complaints, increase over time for girls, independent of NDD. Participation is stable over time but is more related to well-being than to NDD or mental health problems.

    CONCLUSIONS: Gender is an important factor with girls exhibiting more problems. Mental health explains more of the variation in participation than mental health problems and NDD. Probably participation intervention can enhance mental health which may protect from mental health problems.

    Implications for rehabilitation

    • Mental health, i.e., emotional-, social-, and psychological well-being is more strongly related to participation and to reduced levels of mental health problems than having an NDD or not, thus assessing mental health separately from measuring NDD is important.
    • Interventions focusing on participation may lead to higher mental health and having high mental health (flourishing) may facilitate participation.
    • Girls with self-reported NDD seem to have a higher burden of mental health problems, especially if they also are languishing, i.e., having low mental health, therefore a strong focus on this group is needed both in research and clinical practice.
    • Half of all adolescents are flourishing, independently of NDD or not, even if they are experiencing some symptoms of mental health problems, adolescents with NDD who are also languishing, have much higher ratings of mental health problems.
  • 3.
    Augustine, Lilly
    et al.
    Jönköping University, School of Education and Communication, HLK, CHILD. Kristianstad University, Sweden.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Granlund, Mats
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Social Work. Jönköping University, School of Education and Communication, HLK, CHILD. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Health and Welfare, HHJ. SALVE (Social challenges, Actors, Living conditions, reseach VEnue).
    Adolfsson, Margareta
    Jönköping University, School of Education and Communication, HLK, CHILD.
    Linking youths’ mental, psychosocial, and emotional functioning to ICF-CY: Lessons learned2018In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 40, no 19, p. 2293-2299Article in journal (Refereed)
    Abstract [en]

    Purpose: Linking ready-made questionnaires to codes within the International Classification of Functioning, Disability and Health, Children and Youth Version with the intention of using the information statistically for studying mental health problems can pose several challenges. Many of the constructs measured are latent, and therefore, difficult to describe in single codes. The aim of this study was to describe and discuss challenges encountered in this coding process.

    Materials and methods: A questionnaire from a Swedish research programme was linked to the International Classification of Functioning, Disability and Health, Children and Youth Version and the agreement was assessed.

    Results: Including the original aim of the questionnaire into the coding process was found to be very important for managing the coding of the latent constructs of the items. Items from the International Classification of Functioning, Disability and Health, Children and Youth Version chapters with narrow definitions for example mental functions, were more easily translated to meaningful concepts to code, while broadly defined chapters, such as interactions and relationships, were more difficult.

    Conclusion: This study stresses the importance of a clear, predefined coding scheme as well as the importance of not relying too heavily on common linking rules, especially in cases when it is not possible to use multiple codes for a single item.

    • Implications for rehabilitation
    • The International Classification of Functioning, Disability and Health, Children and Youth Version, is a useful tool for merging assessment data from several sources when documenting adolescents’ mental functioning in different life domains.

    • Measures of mental health are often based on latent constructs, often revealed in the description of the rationale/aim of a measure. The latent construct should be the primary focus in linking information.

    • By mapping latent constructs to the International Classification of Functioning, Disability and Health, Children and Youth Version, users of the classification can capture a broad range of areas relevant to everyday functioning in adolescents with mental health problems.

    • The subjective experience of participation, i.e., the level of subjective involvement, is not possible to code into the International Classification of Functioning, Disability and Health, Children and Youth Version. However, when linking mental health constructs to the International Classification of Functioning, Disability and Health, Children and Youth Version codes, the two dimensions of participation (the being there, and the level of involvement) need to be separated in the linking process. This can be performed by assigning codes focusing on being there as separate from items focusing on the subjective experience of involvement while being there.

  • 4.
    Danielsson, Henrik
    et al.
    Department of Behavioural Sciences and Learning (IBL), Linköping University, Linköping, Sweden.
    Imms, Christine
    Apex Australia Chair of Neurodevelopment and Disability, Melbourne, Australia; The University of Melbourne, Murdoch Children’s Research Institute, Melbourne, Australia.
    Ivarsson, Magnus
    Department of Behavioural Sciences and Learning (IBL), Linköping University, Linköping, Sweden.
    Almqvist, Lena
    Jönköping University, School of Education and Communication, HLK, CHILD. Mälardalen University, Västerås, Sweden.
    Lundqvist, Lars-Olov
    Örebro University, Örebro, Sweden.
    King, Gillian
    Bloorview Research Institute, Toronto, Canada; Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada.
    Adams Lyngbäck, Liz
    Stockholm University, Stockholm, Sweden; FUB Swedish National Association for People with Intellectual Disability, Stockholm, Sweden.
    Andersson, Anna Karin
    Jönköping University.
    Arnell, Susann
    Örebro University, Örebro, Sweden.
    Arvidsson, Patrik
    Centre for Research & Development Region Gävleborg, Gävle, Sweden; Centre for Augmentative and Alternative Communication, University of Pretoria, Pretoria, South Africa.
    Augustine, Lilly
    Jönköping University, School of Education and Communication, HLK, CHILD. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Brooks, Rob
    Faculty of Health Studies, University of Bradford, Bradford, UK.
    Eldh, Maria
    Norrköping Habilitation Centre, Region Östergötland, Norrköping, Sweden.
    Engde, Lisa
    Linköping Habilitation Centre, Region Östergötland, Linköping, Sweden.
    Engkvist, Helena
    Jönköping University, School of Health and Welfare, HHJ, Department of Social Work.
    Gimbler Berglund, Ingalill
    Jönköping University, School of Health and Welfare, HHJ, Department of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Green, Dido
    Jönköping University, School of Health and Welfare, HHJ, Department of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD. College of Health Medicine and Life Sciences, Brunel University London, Uxbridge, UK.
    Huus, Karina
    Jönköping University, School of Health and Welfare, HHJ, Department of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Karlsson, Charlotte
    Jönköping University, School of Health and Welfare, HHJ, Department of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Department of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Sjödin, Linda
    Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping Habilitation Centre, Region Jönköpings län, Jönköping, Sweden.
    Granlund, Mats
    Jönköping University, School of Health and Welfare, HHJ, Department of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.
    A systematic review of longitudinal trajectories of mental health problems in children with neurodevelopmental disabilities2024In: Journal of Developmental and Physical Disabilities, ISSN 1056-263X, E-ISSN 1573-3580, Vol. 36, no 2, p. 203-242Article, review/survey (Refereed)
    Abstract [en]

    To review the longitudinal trajectories – and the factors influencing their development – of mental health problems in children with neurodevelopmental disabilities. Systematic review methods were employed. Searches of six databases used keywords and MeSH terms related to children with neurodevelopmental disabilities, mental health problems, and longitudinal research. After the removal of duplicates, reviewers independently screened records for inclusion, extracted data (outcomes and influencing factors), and evaluated the risk of bias. Findings were tabulated and synthesized using graphs and a narrative. Searches identified 94,662 unique records, from which 49 publications were included. The median publication year was 2015. Children with attention deficit hyperactivity disorder were the most commonly included population in retrieved studies. In almost 50% of studies, trajectories of mental health problems changed by < 10% between the first and last time point. Despite multiple studies reporting longitudinal trajectories of mental health problems, greater conceptual clarity and consideration of the measures included in research is needed, along with the inclusion of a more diverse range of populations of children with neurodevelopmental disabilities.

  • 5.
    Fischer, E.
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Department of Rehabilitation.
    Green, Dido
    Jönköping University, School of Health and Welfare, HHJ, Department of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Department of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Occupation as means and ends in paediatric occupational therapy: A systematic review2023In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 30, no 8, p. 1181-1198Article, review/survey (Refereed)
    Abstract [en]

    Background: There is a lack of evidence-based knowledge in paediatric occupational therapy about the effectiveness of interventions using daily activities as a treatment modality in improving children’s participation.

    Objective: This study aimed to evaluate the effectiveness of occupation-based and occupation-focused interventions in improving participation in everyday occupations for young children with a disability.

    Material and methods: A systematic review based on Joanna Briggs Institute methodology and critical appraisal tools was conducted. Six databases were searched for quantitative intervention studies aimed at improving participation in everyday occupations of young children with a disability through the use of everyday occupation.

    Results: The search yielded 3732 records, of which 13 studies met inclusion criteria. Ten studies met methodological quality criteria and were included in the synthesis, five randomised controlled trials and five quasi-experimental studies, involving a total of 424 children with a mean age of 6.5 years. The studies were classified into cognitive (n = 5), context-focussed (n = 2) and playgroup interventions (n = 3). Study quality ranged from low to moderate, only one study was rated high quality.

    Conclusions and significance: Occupation-based and occupation-focused interventions may have a positive effect on participation in everyday occupations for young children with a disability, but study design, risk of bias and insufficient reporting limit confidence in the body of evidence.

  • 6.
    Fischer, Evelin
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation.
    Green, Dido
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Systematic review protocol of the effectiveness of occupation-based and occupation-focused interventions used in occupational therapy to improve participation in everyday activities for young children with a disability [protocol]2022Other (Other academic)
    Abstract [en]

    Review question / Objective: The aim of this review was to identify, appraise, evaluate and synthesise evidence of the effectiveness of interventions using occupations and/or occupational performance outcomes in improving activities of daily living and participation of young children with a disability. The PICOS framework was used to develop the review question: Population – children with a disability under the age of 10. Intervention – interventions which are both occupation-based and occupation-focused provided by an occupational therapist in groups or individually, incorporating participation in everyday occupations in the most natural context possible or focusing directly on participation in everyday occupations instead of focusing on improving underlying functions in order to better participate in everyday occupations (1)(Fisher, 2013). Control – alternative occupational therapy (OT) intervention, alternative non-OT intervention or no intervention. Outcome – improved participation in everyday occupations assessed before and after the intervention, measured by standardized assessment tools or self-report measures of occupational performance, engagement and participation. Study characteristics – Systematic Review of original studies (levels I and II, Joanna Briggs Institute) including Randomised Controlled Trials (RCTs) or quasiexperimental designs (eg. with Pre-test – post-test or historic/ retrospective control group study). Research Question: “What is the evidence for the effectiveness of occupation-based and occupationfocused interventions in improving participation in everyday occupations for young children with a disability?”

  • 7.
    Fristedt, Sofi
    et al.
    Jönköping University, School of Health and Welfare, The Jönköping Academy for Improvement of Health and Welfare. Jönköping University, School of Health and Welfare, HHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare). Jönköping University, School of Health and Welfare, HHJ. ARN-J (Aging Research Network - Jönköping).
    Johansson, Ann
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ARN-J (Aging Research Network - Jönköping).
    Jansson, Inger
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ADULT.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Edström, Eva
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation.
    Björklund Carlstedt, Anita
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ADULT. Jönköping University, School of Health and Welfare, HHJ. ARN-J (Aging Research Network - Jönköping).
    Morville, Anne-Le
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ADULT.
    Ahlstrand, Inger
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ADULT.
    Wagman, Petra
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ADULT.
    Att synliggöra utbildning och forskning relaterat till hållbarhet i arbetsterapi – en fallbeskrivning2021Conference paper (Refereed)
  • 8.
    Granlund, Mats
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD. The Swedish Institute for Disability Research, Linköping, Sweden.
    Imms, Christine
    Department of Paediatrics, The University of Melbourne, Melbourne, Australia.
    King, Gillian
    Bloorview Research Institute, Torornto, Canada.
    Andersson, Anna Karin
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD. The Swedish Institute for Disability Research, Linköping, Sweden.
    Augustine, Lilly
    Jönköping University, School of Education and Communication, HLK, CHILD. Jönköping University, School of Health and Welfare, HHJ, Dept. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. The Swedish Institute for Disability Research, Linköping, Sweden.
    Brooks, Rob
    School of Clinical and Applied Sciences, Leeds Beckett University, Leeds, UK.
    Danielsson, Henrik
    The Swedish Institute for Disability Research, Linköping, Sweden; Department of Behavioural Sciences and Learning, Linköping University, Linköping, Sweden.
    Gothilander, Jennifer
    School of Health Sciences, Mälardalen University, Västeras, Sweden.
    Ivarsson, Magnus
    The Swedish Institute for Disability Research, Linköping, Sweden.
    Lundqvist, Lars-Olov
    The Swedish Institute for Disability Research, Linköping, Sweden; University Health Care Research Center, Faculty of Medicine and Health, Örebro University, Örebro, Sweden .
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD. The Swedish Institute for Disability Research, Linköping, Sweden.
    Almqvist, Lena
    School of Health Sciences, Mälardalen University, Västerås, Sweden.
    Definitions and operationalization of mental health problems, wellbeing and participation constructs in children with NDD: Distinctions and clarifications2021In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 18, no 4, article id 1656Article in journal (Refereed)
    Abstract [en]

    Children with impairments are known to experience more restricted participation than other children. It also appears that low levels of participation are related to a higher prevalence of mental health problems in children with neurodevelopmental disorders (NDD). The purpose of this conceptual paper is to describe and define the constructs mental health problems, mental health, and participation to ensure that future research investigating participation as a means to mental health in children and adolescents with NDD is founded on conceptual clarity. We first discuss the difference between two aspects of mental health problems, namely mental disorder and mental illness. This discussion serves to highlight three areas of conceptual difficulty and their consequences for understanding the mental health of children with NDD that we then consider in the article: (1) how to define mental health problems, (2) how to define and assess mental health problems and mental health, i.e., wellbeing as separate constructs, and (3) how to describe the relationship between participation and wellbeing. We then discuss the implications of our propositions for measurement and the use of participation interventions as a means to enhance mental health (defined as wellbeing). Conclusions: Mental disorders include both diagnoses related to impairments in the developmental period, i.e., NDD and diagnoses related to mental illness. These two types of mental disorders must be separated. Children with NDD, just like other people, may exhibit aspects of both mental health problems and wellbeing simultaneously. Measures of wellbeing defined as a continuum from flourishing to languishing for children with NDD need to be designed and evaluated. Wellbeing can lead to further participation and act to protect from mental health problems.

  • 9.
    Huus, Karina
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Dada, S.
    University of Pretoria, South Africa.
    Bornman, J.
    University of Pretoria, South Africa.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Health and Welfare, HHJ. SALVE (Social challenges, Actors, Living conditions, reseach VEnue).
    The awareness of primary caregivers in South Africa of the human rights of their children with intellectual disabilities2016In: Child: Care, Health and Development, ISSN 0305-1862, Vol. 42, no 6, p. 863-870Article in journal (Refereed)
    Abstract [en]

    Background

    Besides the right to freedom, human rights can be seen as a basic requirement also for the maintenance of human dignity and the opportunity to thrive – particularly in the case of children with disabilities. It is imperative to explore primary caregivers' awareness of the human rights of their children with intellectual disabilities in view of the role they may play in either facilitating or restricting these rights. This paper explores the awareness of 219 primary caregivers of the human rights of their children with intellectual disabilities.

    Method

    A descriptive survey design was used with a custom-designed questionnaire that employed a deductive content analysis based on the articles of the United Nations Convention on the Rights of a Child. Comparisons were drawn between the awareness of primary caregivers from urban and those from rural areas.

    Results

    The majority (85.5%) of participants agreed that their child with intellectual disability had rights. Three broad kinds of right were mentioned (in descending order): provision rights, protection rights and participation rights. Participants from both urban and rural areas mentioned education (a provision right) most frequently. However, participants from urban areas were more aware of the different rights that existed than were their counterparts from rural areas.

    Conclusion

    Primary caregivers in both rural and urban areas are aware of the rights of their children with disabilities, although there are significant differences between them.

  • 10.
    Huus, Karina
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Granlund, Mats
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Social Work. Jönköping University, School of Education and Communication, HLK, CHILD. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Bornman, J.
    Centre for Augmentative and Alternative Communication, University of Pretoria, South Africa.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Social Work.
    Human rights of children with intellectual disabilities: comparing self-ratings and proxy ratings2015In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 41, no 6, p. 1010-1017Article in journal (Refereed)
    Abstract [en]

    Background

    A child rights-based approach to research articulates well with Article 12 of the United Nations Convention on the Rights of the Child (CRC) and highlights the importance and value of including children's own views about aspects that concern them. The aim of this study is to compare children with intellectual disability's own ratings (as self-raters) to those of their primary caregivers (as proxy raters) regarding human rights of children. The study also aims to establish whether there is an inter-rater agreement between the self-raters and proxy raters concerning Maslow's hierarchy of needs.

    Method

    This study is nested in a larger study examining the human rights of children with intellectual disability in South Africa. In total, 162 children with intellectual disability from 11 schools across three provinces and their primary caregivers participated by answering parts of a Children'sRightsQuestionnaire (CRQ) developed by the researchers based on the United Nation's CRC. We compared the answers for six questions in the questionnaire that were addressed to self-raters (children) and proxy raters (primary caregivers) in the same way.

    Results

    Questions regarding basic needs, such as access to clean water or whether the child had food to eat at home, were answered similarly by self-raters and proxy raters. Larger differences were found when self-raters and proxy raters were asked about whether the child had things or friends to play with at home. Socio-economic variables seemed to affect whether self-raters and proxy raters answered similarly.

    Conclusion

    The results underscore the importance of promoting children's rights to express themselves by considering the opinions of both the children as self-raters and their primary caregivers as proxy raters – not only the latter. The results indicate that it is especially important to include children's own voices when more complex needs are surveyed. Agreement between self- and proxy ratings could be affected by socio-economic circumstances.

  • 11.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Alla barns rätt till en trygg uppväxt - vision eller verklighet? [bloggpost]2022Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Inför valet i september vill jag belysa tre viktiga områden som rör barn och ungdomar. Det handlar om rätten till en trygg uppväxt, en jämlik skola och god psykisk hälsa. I texten nedan beskriver jag mer varför en trygg uppväxt är så viktigt.

  • 12.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Att forska tillsammans med ungdomar, hur gör man det? [bloggpost]2022Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Att involvera den målgrupp som forskningen berör har under senare år blivit alltmer vanligt. Att målgruppen själv involveras kan innebära större träffsäkerhet i insatser som görs baserat på de resultat som forskningen kommit fram till då målgruppen själva varit involverade. När det gäller forskning som rör barn och ungdomar möjliggör detta också ur barnrättssynpunkt att de ges möjlighet att göra sin röst hörd.

  • 13.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Barn och ungdomars hälsa hotas i pandemitider - ett upprop till politiker och beslutsfattare [bloggpost]2020Other (Other (popular science, discussion, etc.))
  • 14.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Barnen som slutat gråta - konsekvenser av krig och att vara på flykt [bloggpost]2022Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Vi får dagligen ta del av rapporter om hur människor flyr från kriget i Ukraina. Många av dessa är kvinnor och barn. SVT Nyheter rapporterade 16 mars, 2022 om att ungefär 70 000 barn om dagen har nu flytt från kriget i Ukraina. Detta motsvarar ungefär ett barn i sekunden enligt James Elder, talesperson på Förenta Nationernas barnfond, Unicef.

  • 15.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Barns rätt till en trygg uppväxt fri från våld [bloggpost]2022Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Dagligen hör vi om brott mot barn i olika former och trots att det finns många initiativ i skolor och i fritidsverksamheter och i andra för barn viktiga miljöer behöver vi fortsätta jobba för att utbilda, informera och uppmärksamma alla barns rätt till en uppväxt fri från våld.

  • 16.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Covid 19; När tysta barn får en röst och ensam blir stark [bloggpost]2020Other (Other (popular science, discussion, etc.))
  • 17.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    "Covid-19 är visst farligt för barn" [bloggpost]2020Other (Other (popular science, discussion, etc.))
  • 18.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Dåligt väder i svensk ekonomi [bloggpost]2020Other (Other (popular science, discussion, etc.))
  • 19.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    En god jul för alla barn IRL och i den digitala världen [bloggpost]2022Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Julen är här igen. Ytterligare ett år har gått och vi har handskats med fortsatta utmaningar som kanske mer än någonsin också avspeglas på våra barn och ungdomar. I och med att Internet är en så naturlig del av mycket unga barns liv, öppnas dörren till den digitala världen i tidig ålder där barn konsumerar och interagerar i filmer, chattar, spel och sociala medier.

  • 20.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    En jämlik hälsa för alla – hur ser det ut i Sverige? [bloggpost]2020Other (Other (popular science, discussion, etc.))
  • 21.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    En skälig levnadsstandard för en god jul till alla, liten som stor [bloggpost]2020Other (Other (popular science, discussion, etc.))
  • 22.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    ”´Farbror Melker, vet du vad? Om du inte kan skriva så att jag förstår det, då kan du lika gärna sluta upp'” [bloggpost]2021Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Oj vad de kan de där barnen och den där Astrid Lindgren. Klokskap förmedlat på ett sätt som barn såväl vuxna kan förstå. Enligt högskolelagens andra paragraf är Sveriges högskolor och universitet ålagda att kommunicera den forskning som görs så att den kommer till nytta.

  • 23.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    ”Hur synliggörs barns rättigheter i föräldraskapsstödjande insatser?” [bloggpost]2021Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Förenta Nationernas konvention om barns rättigheter blev lag i Sverige i Januari 2020. Sverige har som konventionsstat åtagit sig att föräldrar får adekvat stöd i sitt föräldraskap och att det sker en utveckling av de tjänster som ryms inom föräldraskapsstödjande insatser. Men hur syns barns rättigheter i dessa insatser? I vilken grad får barn själva komma till tals i planering, genomförande och utvärdering och vilket stöd får de för att kunna uttrycka sina åsikter?

  • 24.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Hälften av världens barn har varit hemma från skolan [bloggpost]2020Other (Other (popular science, discussion, etc.))
  • 25.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Kan barn vara med i forskning? [bloggpost]2020Other (Other (popular science, discussion, etc.))
  • 26.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    ”Koalition för en jämlik och fullständig skolgång” [bloggpost]2021Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Hur kan vi tillsammans med olika samhällsaktörer kraftsamla för att barn ska få en positiv skolgång? Jag deltar under våren i en digital koalition för en jämlik och fullständig skolgång. Initiativet kommer från Mötesplats Social Innovation Syd och Länsstyrelsen Skåne.

  • 27.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Krig - ett direkt hot mot både vuxnas och barns mänskliga rättigheter [bloggpost]2022Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Nu har vi krig i Europa. Rädda barnen skriver att 7.5 miljoner barn är i fara. Barn är helt beroende av den närmaste miljö som skapar deras vardag. Att ha mat, tillgång till lugna vuxna, en skolväg som är trygg till och från skolan och att inte behöva oroa sig.

  • 28.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    ”Livet är en sak som man måste vara rädd om, förstår du inte det?” [bloggpost]2021Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Vad ska det kosta för att vi ska ta krafttag för att barn och ungdomar det vill säga en viktig del av vår framtid ska tas på allvar? När får vi se krispaket som är specifikt riktade till att hjälpa de ungdomar som fått sämre betyg som en följd av distansundervisningen? Eller stöd till de barn som utsatts för våld i hemmet eller som funderar på att avsluta sitt liv på grund av att hoppet börjar sina?

  • 29.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    ”Lyssna, vi har något att säga!” [bloggpost]2021Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Nu finns rapporten “The State of the World’s Children 2021” utgiven via UNICEF. Denna rapport utvärderar nyckelfaktorer som påverkar barns hälsa utifrån hur globala trender påverkar barn. Årets rapport handlar om barn och ungdomars psykiska hälsa och välmående. I Sverige har det i samarbete med Trygg Hansa och Karolinska Institutet tagits fram en svensk delrapport för att belysa situationen för barn och unga i Sverige. Rapporten har titeln ”Lyssna, vi har något att säga”.

  • 30.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Participation in and outside school: Self-ratings by Swedish adolescents with and without impairments and long-term health conditions2018Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    This thesis concerns the short-term state of and changes in self-rated participation in domestic life, peer relations and, to some extent, school. Participants were adolescents with and without self-reported impairments and long-term health conditions. It is a thesis in disability research and a functional perspective on the participation of adolescents in everyday activities is applied. The thesis is one of several sub-studies in the Swedish research program LoRDIA (Longitudinal Research on Development in Adolescence).

    Aim: The aim was to study the relationships between individual and environmental factors and participation in a two-time point longitudinal study within the frame of the health classification system ICF-CY. The aim was also to study the impact of environmental and individual factors on self-reported participation in adolescents with and without impairments and long-term health conditions.

    Methods: The study designs in the four studies are cross-sectional (studies I and II), and prospective longitudinal (studies III & IV). A combination of person-based (such as cluster analysis in studies II and IV) and variable-based methods (such as ANOVA, multiple regressions, logistic regressions (studies I, II, III and IV)) were used.

    Results: When linking items from a questionnaire aiming to measure mental health in adolescents to codes in the International Classification of Functioning, Disability and Health, Children and Youth version, latent coding is preferable to manifest coding. The focus should be on the underlying meaning of the item and the primary aim of the scale from which the item originated should be taken into consideration. Concerning the self-rated experience of participation, it was stable over time when investigated from a two-time point longitudinal perspective. Results revealed that type of impairment cannot be considered the sole predictor of the experience of participation at home, with peers and in school. Factors in the microsystem, e.g. sibling support, and perceived communication within the family, are of greater importance for the level of both participation attendance and the perceived importance of participating in domestic life and peer relations.

    Conclusion: Everyday functioning in adolescents with self-reported neurodevelopmental impairments is partially affected by the same factors as for children without self-reported neurodevelopmental impairments. The effect of the neurodevelopmental impairment seems more evident in school and decreases in importance with age. Factors in the environment such as the experience of sibling support and communication patterns in the family must be taken into consideration when investigating influences on participation. When measuring participation both the frequency of attendance dimension as well as the perceived importance of the activity should be included as they seem to be related to partly differing influences.

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  • 31.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Patterns of participation within domestic life and peer relations - Youth’s own experiences2018Conference paper (Refereed)
    Download full text (pdf)
    Abstract
  • 32.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    ”Sociala innovationer till förmån för barns bästa” [bloggpost]2021Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Under vecka 14 medverkade jag inom ramen för koalition för en jämlik och fullständig skolgång i en workshop kring identifierade problemområden för barns rätt till en jämlik och fullständig skolgång. Workshopen fokuserade på lösningar och hur vi konkret kan samverka kring utmaningar på olika nivåer för att barn och ungdomar ska kunna få en trygg och jämlik skolgång.

  • 33.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Tre viktiga frågor inför valet [video]2022Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Barnforskare Frida Lygnegård berättar om vilka frågor hon vill belysa inför valet i september.

  • 34.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Tuffa ekonomiska tider - hur påverkar det barn och ungdomars vardag och vilken skillnad gör barnkonventionen? [bloggpost]2022Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Den 20 november var det barnkonventionens dag. Barnkonventionen har nu varit lag i snart två år och i Sverige är i många aspekter ett land som kommit långt när det gäller barnrättsfrågor. Trots detta finns det mycket kvar att göra och i arbetet med detta behöver olika aktörer i samhället arbeta tillsammans för att synliggöra barns rättigheter.

  • 35.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Vad påverkar ungdomars delaktighet? [video]2019Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Att vara delaktig i vardagliga situationer ger möjlighet att skapa färdigheter som är viktiga senare i livet. Frida Lygnegård beskriver hur ungdomar som följer grund- och grundsärskolans läroplan skattar sin delaktighet i aktiviteter i och utanför skolan, och vad som påverkar deras upplevelse av delaktighet. Inspelat den 26 november 2019 på Nalen i Stockholm. Arrangör: Vetenskap & Allmänhet.

  • 36.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Department of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Vertikala samtal med barnombudsmannen [podcast]2020Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Hur påverkar Corona-pandemin barn och ungdomars hälsa och välbefinnande? Vilka signaler får barnombudsmannen och vilken typ av forskning bör vi  barnforskare inrikta oss på för att fånga upp barn och ungdomars egna upplevelser av rådande pandemi? Frida Lygnegård samtalar med inbjudna gäster;  Barnombudsmannen, Elisabeth Dahlin  samt professor Disa Bergnehr.

  • 37.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Department of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Vertikala samtal med Pernilla Baralt [podcast]2020Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    En podcast med UNICEF-Sveriges generalsekreterare Pernilla Baralt, kring frågor som rör alla som är intresserade av att bygga ett hållbart samhälle för våra kommande generationer. Barns rättigheter berörs i relation till pågående pandemi, stadsbyggnadsfrågor, höstbudgeten, hållbara städer och AGENDA 2030  och det faktum att orosanmälningarna ökar. 

  • 38.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    ”Vilket fokus får barns rättigheter när politiken är i gungning?” [bloggpost]2021Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Sommarlovet är här och det betyder sovmorgon, att hänga med kompisar och att vara med sin familj för många barn och ungdomar. Att finnas i en tillvaro som präglas av trygghet, positiva värderingar och avkoppling. Tid att bara vara. För andra barn innebär sommaren det motsatta: ensamhet, oro till följd av våld i nära relationer, eller avsaknad av meningsfulla aktiviteter eller trygga vuxna som skapar ett positivt klimat för barn och ungdomar. Synliggörandet av barns rättigheter är minst lika viktigt i semestertider när barn inte vistas i samma utsträckning inom förskola, skola eller andra verksamheter.

  • 39.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Våra vanor – viktiga, vardagliga och vägen framåt [bloggpost]2020Other (Other (popular science, discussion, etc.))
  • 40.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Ökad psykisk ohälsa bland barn och ungdomar – oacceptabelt och ett hot mot barns mänskliga rättigheter [bloggpost]2020Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Ingress: Den senaste tiden har media uppmärksammat ökningen av psykisk ohälsa hos barn och ungdomar till följd av coronapandemin. Glädjande nog uppmärksammar media i större utsträckning också hur barn och ungdomar själva upplever situationen.

  • 41.
    Lygnegård, Frida
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Almqvist, Lena
    Jönköping University, School of Education and Communication, HLK, CHILD. Mälardalen University.
    Granlund, Mats
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.
    Huus, Karina
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Participation profiles in domestic life and peer relations as experienced by adolescents with and without impairments and long-term health conditions2019In: Developmental Neurorehabilitation, ISSN 1751-8423, E-ISSN 1751-8431, Vol. 22, no 1, p. 27-38Article in journal (Refereed)
    Abstract [en]

    PURPOSE: To investigate how individual and environmental factors relate to self-reported participation profiles in adolescents with and without impairments or long-term health conditions.

    METHODS: A person-oriented approach (hierarchical cluster analysis) was used to identify cluster groups of individuals sharing participation patterns in the outcome variables frequency perceived importance in domestic life and peer relations. Cluster groups were compared using one-way analysis of variance (ANOVA).

    RESULTS: A nine-cluster solution was chosen. All clusters included adolescents with impairment and long-term health conditions. Perceived importance of peer relations was more important than frequent attendance in domestic-life activities. Frequency of participation in dialogues and family interaction patterns seemed to affect the participation profiles more than factors related to body functions.

    CONCLUSION: Type of impairment or long-term health condition is a weaker determinant of membership in clusters depicting frequency and perceived importance in domestic life or peer relations than dialogue and family environment.

  • 42.
    Lygnegård, Frida
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Augustine, Lilly
    Jönköping University, School of Health and Welfare, HHJ. CHILD. Department of Psychology, Faculty of Education, Kristianstad University, Kristianstad, Sweden.
    Granlund, Mats
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD. Department of Special Education, Oslo University, Oslo, Norway.
    Kåreholt, Ingemar
    Jönköping University, School of Health and Welfare, HHJ, Institute of Gerontology. Jönköping University, School of Health and Welfare, HHJ. ARN-J (Aging Research Network - Jönköping).
    Huus, Karina
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Factors Associated With Participation and Change Over Time in Domestic Life, Peer Relations, and School for Adolescents With and Without Self-Reported Neurodevelopmental Disorders. A Follow-Up Prospective Study2018In: Frontiers in Education, E-ISSN 2504-284X, Vol. 3, p. 1-13, article id 28Article in journal (Refereed)
    Abstract [en]

    Even though participation in everyday events is a vital part in the fulfilment of human rights, adolescents with neurodevelopmental disorders often face participation restrictions in every-day activities. Few studies have investigated the predictors for participation in different contexts, over time and in relation to the same outcome variables. The objective of the current study was therefore to investigate predictors of change in participation operationalized as frequency of attendance and perceived importance in domestic life activities, peer related activities, and school activities as experienced by adolescents with and without self-reported neurodevelopmental disorders. Method: Associations with participation, both in terms of frequency and perceived importance, in domestic life, peer relations, and the school setting were investigated using six independent variables measuring experience of time and self, sex, age, stress, support from siblings, and atmosphere in family at two-time (with approximately 2 years in between). The sample consisted of adolescents with and without self-reported neurodevelopmental disorders (n= 916). Adolescents with self-reported neurodevelopmental disorders were n=154 and adolescents without self-reported neurodevelopmental disorders was n= 762. Data was collected via self-reported questionnaires administered in schools. Results: Three key findings are presented. 1) more factors were associated with participation outcomes at time1 for adolescents without NDD than for adolescents with NDD, but this difference in the number of factors decreases with time; 2) few associations were related to time for both adolescents with and without NDD; and 3) patterns of predicting variables were different for adolescents with and without NDD. Conclusion: The findings indicate that the factors related to participation in and outside school differs between groups, when the impairment or disability is not considered as a predictor for participation. This study supports the need for using a multidimensional developmental and contextual perspective in addressing enhanced participation for adolescents with neurodevelopmental disorders.

  • 43.
    Lygnegård, Frida
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Department of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Björkebäck, Maja
    Jönköpings kommun.
    Hur påverkas barn och deras familjer av det rådande läge vi har idag i Sverige och vad gör en hållbarhetsstrateg?: Vertikala samtal med Frida Lygnegård och Maja Björkebäck [podcast]2023Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Frida Lygnegård, barnforskare med fokus på barns rättigheter samtalar med Maja Björkebäck, Hållbarhetsstrateg mänskliga rättigheter – fokus barnrätt i Jönköpings kommun.

    Samtalet rör hur också hur Maja i sin roll som hållbarhetsstrateg arbetar lokalt i Jönköping med att stärka barns rättigheter och implementeringen av barnkonventionen. Medverkar gör också Elvira Gnisterhed, ÅK 8 vid Rosenlundsskolan i Jönköping.

  • 44.
    Lygnegård, Frida
    et al.
    Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Donohue, Dana
    Centre for Augumentative and Alternative Communication, University of Pretoria, South Africa.
    Bornman, Juan
    Centre for Augumentative and Alternative Communication, University of Pretoria, South Africa.
    Granlund, Mats
    Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.
    Huus, Karina
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    A Systematic review of Generic and Special Needs of Children with Disabilities Living in Poverty Settings in Low- and Middle-Income Countries2013In: Journal of Policy Practice, Vol. 12, no 4, p. 296-315Article in journal (Refereed)
    Abstract [en]

    Children with disabilities living in poverty settings in low and middle-income countries are particularly in need of special support designed to meet the needs occurring in an environment where poverty is prevalent and resources are scarce. This paper presents a systematic review of the needs of children with disabilities living in poverty settings in low and middle-income countries using Maslow’s Hierarchy of Needs as a theoretical framework.  The findings demonstrate that needs at the first level of Maslow’s Hierarchy of Needs are more frequently researched in low and middle-income countries.  Higher order needs should be further explored and children’s own voices should be taken into consideration when performing research, designing policies and services aiming at increased service user empowerment.

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  • 45.
    Lygnegård, Frida
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Granlund, Mats
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD. Swedish Institute of Disability Research, Jönköping University, Jönköping, Sweden.
    Kapetanovic, Sabina
    Jönköping University, School of Health and Welfare. Department of Social and Behavioural Studies, University West, Trollhättan, Sweden.
    Augustine, Lilly
    Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD. Swedish Institute of Disability Research, Jönköping University, Jönköping, Sweden.
    Huus, Karina
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD. Swedish Institute of Disability Research, Jönköping University, Jönköping, Sweden.
    Short-term longitudinal participation trajectories related to domestic life and peer relations for adolescents with and without self-reported neurodevelopmental impairments2021In: Heliyon, E-ISSN 2405-8440, Vol. 7, no 4, article id e06784Article in journal (Refereed)
    Abstract [en]

    Background

    With maturity and development, complexity in demands and roles change. As participation is often restricted in children with disabilities, this process might be delayed in adolescents. Investigating profiles of participation for adolescents with and without neurodevelopmental impairments could provide an understanding of which factors relate to high level of participation. The aim is to investigate trajectories of participation in everyday activities across clusters based on self-rated participation patterns in frequency of participation and perceived importance of activities related to domestic life and peer-related activities for adolescents with and without self-reported neurodevelopmental impairments.

    Methods and procedures

    A prospective person-based cohort study design.

    Outcomes and results

    Five typical trajectories were identified. Trajectories between clusters with high perceived involvement in peer relations were associated with sibling support and family communication. Self-reported neurodevelopmental impairments did not predict participation profiles at certain time points, nor movements between clusters when measuring self-reported attendance and importance in domestic life and in peer-related activities.

    Conclusion and implications

    Perceived sibling support and family communication are important for predicting typical trajectories across clusters in frequency of attendance and the perceived importance of domestic life and peer relations. Type of impairment was less important in predicting typical trajectories.

  • 46.
    Lygnegård, Frida
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Department of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Thell, Maria
    Child Health and Parenting (CHAP), Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
    Sarkadi, Anna
    Child Health and Parenting (CHAP), Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
    Adolescent co-researchers identified the central role of social media for young people during the pandemic2023In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 112, no 4, p. 787-793Article in journal (Refereed)
    Abstract [en]

    AIM: To test the method of engaging co-researcher adolescents in data collection and explore stated motives for their selection of social media material related to COVID-19.

    METHODS: Twenty-three adolescents, 13-19-years old, in Sweden participated as co-researchers collecting material from their social media related to COVID-19. Specifically, they motivated their selection of social media material in field notes. Their motives were explored using content analysis.

    RESULTS: Adolescent co-researchers understood and performed the task well, providing insight into the social media exchanges of adolescents during the pandemic. An overarching theme for the motivation for their selection emerged: Social media is an important tool for adolescents' communication and information exchange during COVID-19. Four categories were identified: Keeping track of the talk of the town; Recognition of personally relevant topics; Adolescents as information consumers; Social media as a means for expressing feelings, advice and existential reflections. Co-researchers reported challenges relating to the quality of pandemic-related information available to adolescents.

    CONCLUSION: Including young people as co-researchers on matters relevant to them was successful. This study also underlines the need to consider the role of social media in information exchange during crises and to co-produce health communication with adolescents to meet their specific needs.

  • 47.
    Ramstrand, Nerrolyn
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. Prosthetics and Orthotics.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation.
    Can balance in children with cerebral palsy improve through use of an activity promoting computer game?2012In: Technology and Health Care, ISSN 0928-7329, E-ISSN 1878-7401, Vol. 20, no 6, p. 501-510Article in journal (Refereed)
    Abstract [en]

    INTRODUCTION:

    This study aimed to evaluate if use of an activity promoting computer game, used in the home (Nintendo Wii Fit; Nintendo Co Ltd, Japan), could influence balance related outcome measures in children with cerebral palsy.

    METHOD:

    Eighteen children with hemiplegic or diplegic cerebral palsy were recruited for the study. A randomised cross-over design was used with children tested at baseline, after five weeks of playing Wii Fit games and after five weeks without any intervention. Outcome measures of interest included: performance on the modified sensory organisation test, reactive balance test and rhythmic weight shift test.

    RESULTS:

    No significant difference was observed between testing occasions for any of the balance measures investigated (p > 0.05).

    CONCLUSION:

    Our results suggest that use of a Nintendo Wii balance board and Wii Fit software for a minimum of thirty minutes per day in the patient's own home, over a five week period, is not effective as a balance training tool in children with cerebral palsy.

  • 48.
    Wagman, Petra
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ADULT.
    Johansson, Ann
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ARN-J (Aging Research Network - Jönköping).
    Jansson, Inger
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ADULT.
    Lygnegård, Frida
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.
    Edström, Eva
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation.
    Björklund Carlstedt, Anita
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ADULT. Jönköping University, School of Health and Welfare, HHJ. ARN-J (Aging Research Network - Jönköping).
    Morville, Anne-Le
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ADULT.
    Ahlstrand, Inger
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ADULT.
    Fristedt, Sofi
    Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. ARN-J (Aging Research Network - Jönköping). Jönköping University, School of Health and Welfare, HHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare).
    Making sustainability in occupational therapy visible by relating to the Agenda 2030 goals – A case description of a Swedish university2020In: World Federation of Occupational Therapists Bulletin, ISSN 1447-3828, Vol. 76, no 1, p. 7-14Article in journal (Refereed)
    Abstract [en]

    Occupational therapy has a lot to contribute to sustainable development considering the discipline's occupational focus and knowledge. This has been recognised by researchers and professional associations, but there is still a scarcity of research explicitly mentioning sustainability. Relevant contributions may be identified by relating education and research to the Agenda 2030 sustainable development goals. The aim of this article was to describe explicit and implicit inclusion of sustainable development and Agenda 2030 goals in occupational therapy education and research at one Swedish university. Current course syllabi and study guides, as well as research over the past five-year period, were examined and related to sustainability. The results showed that although only a few courses and articles were explicitly related to sustainable development, more course and research content became relevant when this content was compared with the sustainable development goals. It can be concluded that sustainability was more extensively addressed than first visible, but further studies including more universities are warranted.

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