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  • 1.
    Börjesson, Ulrika
    et al.
    Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    “They say this is a home”: the challenge of “home” in residential care settings for old and young2022Inngår i: Journal of Housing and the Built Environment, ISSN 1566-4910, E-ISSN 1573-7772, Vol. 37, s. 1093-1108Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    In this article, we want to bolster a critical discussion of how the “home” is used in research on residential care, and additionally make sense of young and old residents’ feelings of resistance, through the lens of a critical geography of home. We illustrate how the home ideal might be provocative and frustrating for the residents, although previous studies point out that the ideal is used by staff and in policy to reassure residents of a sense of belonging and mastery. Examples from interviews with young unaccompanied boys as well as older residents living in residential care have been used and the analysis resulted in two themes: “Residents’ conflicting experiences of space” (shared space, restricted space and regulated space, and “Residents’ feelings of homelessness” (transitional space and encroached space). How the residents themselves understand the space that is called their home and why their home can stir ambivalent or negative feelings of isolation, exclusion, and homelessness, is relevant in order to avoid romanticizing home. Residents’ understanding of home can be different from the staff, a reminder that home is a much more complex notion than the rosy ideal.

  • 2.
    Bülow, Pia H.
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Högskolan i Jönköping, Hälsohögskolan, HHJ. ADULT.
    Bülow, Per
    Region Jönköpings län.
    Wilińska, Monika
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Ernsth-Bravell, Marie
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Jegermalm, Magnus
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete.
    Care and living conditions for older people with severe mental illness in a Swedish municipality2018Konferansepaper (Fagfellevurdert)
  • 3.
    Bülow, Pia H.
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd).
    Bülow, Per
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Department of Psychiatry, Ryhov County Hospital, Jönköping, Sweden.
    Wilińska, Monika
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Ernsth-Bravell, Marie
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Jegermalm, Magnus
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    The meaning of illness, times and spaces: Stories about severe mental illness from a life course perspective2019Konferansepaper (Fagfellevurdert)
  • 4.
    Bülow, Pia H.
    et al.
    Jönköping University, Hälsohögskolan, HHJ, Avdelningen för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Research Fellow in Department of Social Work, University of the Free State, Bloemfontein, South Africa.
    Finkel, Deborah
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping). Department of Psychology, Indiana University Southeast, New Albany, USA.
    Allgurin, Monika
    Jönköping University, Hälsohögskolan, HHJ, Avdelningen för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping). Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd).
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Jegermalm, Magnus
    Jönköping University, Hälsohögskolan, HHJ, Avdelningen för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping). Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd).
    Ernsth-Bravell, Marie
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Bülow, Per
    Jönköping University, Hälsohögskolan, HHJ, Avdelningen för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Regional Forensic Psychiatric Hospital, Vadstena, Sweden.
    Aging of severely mentally ill patients first admitted before or after the reorganization of psychiatric care in Sweden2022Inngår i: International Journal of Mental Health Systems, E-ISSN 1752-4458, Vol. 16, nr 1, artikkel-id 35Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: The concept of deinstitutionalization started in the 1960s in the US to describe closing down or reducing the number of beds in mental hospitals. The same process has been going on in many countries but with different names and in various forms. In Europe, countries like Italy prescribed by law an immediate ban on admitting patients to mental hospitals while in some other European countries psychiatric care was reorganized into a sectorized psychiatry characterized by open psychiatric care. This sectorization has not been studied to the same extent as the radical closures of mental hospitals, even though it entailed major changes in the organization of care. The deinstitutionalization in Sweden is connected to the sectorization of psychiatric care, a protracted process taking years to implement.

    METHODS: Older people, with their first admission to psychiatric care before or after the sectorization process, were followed using three different time metrics: (a) year of first entry into a mental hospital, (b) total years of institutionalization, and (c) changes resulting from aging. Data from surveys in 1996, 2001, 2006, and 2011 were used, together with National registers.

    RESULTS: Examination of date of first institutionalization and length of stay indicates a clear break in 1985, the year when the sectorization was completed in the studied municipality. The results show that the two groups, despite belonging to the same age group (birthyears 1910-1951, mean birthyear 1937), represented two different patient generations. The pre-sectorization group was institutionalized at an earlier age and accumulated more time in institutions than the post-sectorization group. Compared to the post-sectorization group, the pre-sectorization group were found to be disadvantaged in that their level of functioning was lower, and they had more unmet needs, even when diagnosis was taken into account.

    CONCLUSIONS: Sectorization is an important divide which explains differences in two groups of the same age but with different institutional history: "modern" and "traditional" patient generations that received radically different types of care. The results indicate that the sectorization of psychiatric care might be as important as the Mental Health Care Reform of 1995, although a relatively quiet revolution.

  • 5.
    Ernsth-Bravell, Marie
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Bülow, Per
    Region Jönköpings län.
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Wilińska, Monika
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Bülow, Pia H.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Högskolan i Jönköping, Hälsohögskolan, HHJ. ADULT.
    Jegermalm, Magnus
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete.
    Older people with and without mental illness – Register-based population study from Sweden2018Konferansepaper (Fagfellevurdert)
  • 6.
    Ernsth-Bravell, Marie
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Delaktighet i hälso- och sjukvård i Jönköpings kommun2019Rapport (Annet vitenskapelig)
    Abstract [sv]

    Under de senaste decennierna har det skett en rad organisatoriska förändringar inom vård och omsorg. En av de stora konsekvenserna av förändringarna är ett utökat hälso- och sjukvårds-ansvar för kommunerna i landet. Inom hälso- och sjukvården har det också skett lagföränd-ringar, där bland annat delaktighet lyfts fram tydligare nu. Den här studien syftade därför till att undersöka hur personer som erhåller hälso- och sjukvård i kommunen uppfattar sin del-aktighet i planering, genomförande och uppföljning av hälso- och sjukvårdsinsatser.

    Studien omfattar tre olika kontexter; 1) hälso- och sjukvård i ordinärt boende, 2) hälso- och sjukvård i särskilt boende för äldre samt 3) hälso- och sjukvård i boende inom socialpsykiatrin. Olika metoder har använts (enkäter i studie 1 och 3 och intervjuer i studie 2) och rapporten är därför uppbyggd i tre delar.

    Resultaten visar dock att delaktighet är viktigt för personerna i samtliga tre kontexter men att det kan vara svårt att sätta ord på vad delaktighet egentligen betyder. Personer som ingår i studien ger flera goda exempel på när de känt sig delaktiga, men även det motsatta. Delaktighet är således en fråga som ständigt är aktuell och som man ständigt behöver arbeta med.   

    Fulltekst (pdf)
    Fulltext
  • 7.
    Finkel, Deborah
    et al.
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping). Department of Psychology, Indiana University Southeast, USA.
    Bülow, Pia H.
    Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Department of Social Work, University of the Free State, South Africa.
    Wilińska, Monika
    Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping). Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd).
    Jegermalm, Magnus
    Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping). Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Department of Social Work, Ersta Sköndal Bräcke University College, Sweden.
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Ernsth-Bravell, Marie
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Bülow, Per
    Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete. Regional Forensic Psychiatric Hospital, Vadstena, Sweden; Psychiatric Clinic, Ryhov County Hospital, Region Jönköping County, Sweden.
    Does the length of institutionalization matter? Longitudinal follow-up of persons with severe mental illness 65 years and older: shorter-stay versus longer-stay2021Inngår i: International Journal of Geriatric Psychiatry, ISSN 0885-6230, E-ISSN 1099-1166, Vol. 36, nr 8, s. 1223-1230Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objectives

    As part of the process of de-institutionalization in the Swedish mental healthcare system, a reform was implemented in 1995, moving the responsibility for services and social support for people with severe mental illness (SMI) from the regional level to the municipalities. In many ways, older people with SMI were neglected in this changing landscape of psychiatric care. The aim of this study is to investigate functional levels, living conditions, need of support in daily life, and how these aspects changed over time for older people with SMI.

    Methods

    In this study we used data from surveys collected in 1996, 2001, 2006, and 2011 and data from national registers. A group of older adults with severe persistent mental illness (SMI-O:P) was identified and divided into those who experienced shorter stays (less than 3 years) in a mental hospital (N = 118) and longer stays (N = 117).

    Results

    After correcting for longitudinal changes with age, the longer-stay group was more likely than the shorter-stay group to experience functional difficulties and as a result, were more likely to have experienced 're-institutionalization' to another care setting, as opposed to living independently.

    Conclusions

    The length of mental illness hospitalization has significant effects on the living conditions of older people with SMI and their ability to participate in social life.

  • 8.
    Gimbler Berglund, Ingalill
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för omvårdnad. Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Goda exempel på konkret internationalisering på hemmaplan. Med fokus på lärare och deras kompetenser2018Konferansepaper (Annet vitenskapelig)
  • 9.
    Gjessing, Kristian
    et al.
    Linköpings universitet, Avdelningen för samhällsmedicin.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Hammar, Mats
    Linköpings universitet, Avdelningen för kliniska vetenskaper.
    Dahlberg, Johanna
    Linköpings universitet, Avdelningen för mikrobiologi och molekylär medicin.
    Faresjö, Tomas
    Linköpings universitet, Avdelningen för samhällsmedicin.
    Improvement of quality and safety in health care as a new interprofessional learning module – evaluation from students2014Inngår i: Journal of Multidisciplinary Healthcare, ISSN 1178-2390, E-ISSN 1178-2390, nr 7, s. 341-347Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: Interprofessional teamwork is in many ways a norm in modern health care, and needs to be taught during professional education.

    Description: This study is an evaluation of a newly introduced and mandatory learning module where students from different health profession programs used Improvement of Quality and Safety as a way to develop interprofessional competence in a real-life setting. The intention of this learning module was to integrate interprofessional teamwork within the students' basic education, and to give students a basic knowledge about Improvement of Quality and Safety. This report focuses on evaluations from the participating students (n=222), mainly medical and nursing students.

    Materials and methods: To evaluate this new learning module, a questionnaire was developed and analyzed using a mixed methods design, integrating both qualitative and quantitative methods. The evaluation addressed learning concepts, learning objectives, and interprofessional and professional development.

    Results and conclusion: A majority of students responded positively to the learning module as a whole, but many were negative towards specific parts of the learning module and its implementation. Medical students and male students were less positive towards this learning module. Improvements and alterations were suggested. 

    Fulltekst (pdf)
    fulltext
  • 10.
    Hedman, Karl
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd).
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Räddningstjänstens suicidpreventionsarbete i Region Jönköpings län2018Konferansepaper (Annet vitenskapelig)
  • 11.
    Hedman, Karl
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd).
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Suicide prevention services in Jönköping, Sweden2019Konferansepaper (Annet vitenskapelig)
  • 12.
    Jegermalm, Magnus
    et al.
    Jönköping University, Hälsohögskolan, HHJ, Avdelningen för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping). Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Ersta Sköndal University College, Stockholm, Sweden.
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Three caregiver profiles: who are they, what do they do, and who are their co-carers?2023Inngår i: European Journal of Social Work, ISSN 1369-1457, E-ISSN 1468-2664, Vol. 26, nr 3, s. 466-479Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    In Sweden, a country with one of the highest public spending on long term care, there is also extensive informal care, i.e. unpaid care by family, friends, or neighbours. In this article, we explore the spectrum of informal caring using data from a nationally representative survey of caregivers in the Swedish population. We describe three different caregiver profiles and analyse them in relation to their panorama of care, i.e. the extent to which caring is shared with other formal- and informal co-carers. The first profile, the co-habitant family carer, consists of caregivers providing help for someone in the same household with special care needs, and were mostly alone in intensive caregiving. The second profile, persons in the care network, consists of caregivers providing help to someone with care needs in another household. They have a network of both informal and formal co-carers. Finally, the helpful fellowman consists of caregivers providing help for someone without special needs in another household. In developing relevant carer support, it is important to acknowledge that caregivers are not a homogenous group. Thus, to fulfil national ambitions to support carers across the board, policy and practice need to have a diverse group of carers in mind.

  • 13.
    Jegermalm, Magnus
    et al.
    Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd).
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Wilińska, Monika
    Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd).
    Frivilligt stöd till äldre med psykisk funktions­nedsättning2020Inngår i: Äldre i centrum, ISSN 1653-3585, nr 1, s. 58-61Artikkel i tidsskrift (Annet vitenskapelig)
    Abstract [sv]

    Ingress: Ädre personer med psykisk funktionsnedsättning är till viss del osynliggjorda. En aktuell studie pekar på behovet av att både kommuner och frivilliga organisationer behöver förbättra sitt arbete med att identifiera och synliggöra denna grupp och deras behov av hjälp och stöd.

  • 14.
    Jegermalm, Magnus
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Wilińska, Monika
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Ernsth-Bravell, Marie
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Bülow, Pia H.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd).
    Bülow, Per
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Department of Psychiatry, Ryhov County Hospital, Jönköping, Sweden.
    Filling the gaps? – The role of voluntary organizations in supporting older people with severe mental illnesses in Sweden: Towards increased responsibility for the civil society beyond the dichotomous substitute-or-complement paradigm2019Konferansepaper (Fagfellevurdert)
  • 15.
    Jegermalm, Magnus
    et al.
    Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Department of Social Science, Ersta Sköndal Bräcke University College, Stockholm, Sweden.
    Wilińska, Monika
    Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Ernsth-Bravell, Marie
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Bülow, Pia H.
    Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Jönköping University, Hälsohögskolan, HHJ. ADULT. Department of Social Work, University of the Free State, Bloemfontein, South Africa.
    Bülow, Per
    Jönköping University, Hälsohögskolan. Ryhov County Hospital, Region Jönköping County, Sweden.
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Filling the gaps? The role of voluntary organizations in supporting older people with severe mental illnesses2020Inngår i: Nordic Social Work Research, ISSN 2156-857X, E-ISSN 2156-8588, Vol. 10, nr 3, s. 219-229Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Older people ageing with severe mental illness (SMI) usually fall in between mental health care and old age care services. The role of informal care in filling this gap is recognized. The role of other welfare providers, such as voluntary organizations, is unclear. The aim of this article is to analyze and discuss local voluntary organizations' ability to recognize and respond to the needs of older people with SMI in the community.

    11 local organizations focusing on mental illness, social care or old age were identified in a mid-sized Swedish city. Seven voluntary organizations participated in the study.

    Our analysis revealed three overarching themes: 'Age as a non-issue?', 'Public and voluntary sector (non)links' and 'organizational vulnerabilities'. Our results show that older people with SMI are to some extent also invisible in the voluntary sector. We were also able to discern differences in the 'we-for-us' organizations that provide support for their own members with SMI, and 'we-for-them' organizations that provide help to a broader group.

    Overall, older people with SMI remain a relatively invisible as a group for the voluntary organizations. We discuss these findings in relation to the specificity of the group and welfare contexts of voluntary work in communities.

  • 16.
    Johansson, Anette
    et al.
    Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping). Health Care Administration, Jönköping Municipality, Sweden.
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Fristedt, Sofi
    Jönköping University, Hälsohögskolan, HHJ, Avd. för kvalitetsförbättring och ledarskap. Jönköping University, Hälsohögskolan, The Jönköping Academy for Improvement of Health and Welfare. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Ernsth-Bravell, Marie
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Relationships and gender differences within and between assessments used in Swedish home rehabilitation - a cross-sectional study2022Inngår i: BMC Health Services Research, E-ISSN 1472-6963, Vol. 22, artikkel-id 807Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: Home rehabilitation programmes are increasingly implemented in many countries to promote independent living. Home rehabilitation should include a comprehensive assessment of functioning, but the scientific knowledge about the assessment instruments used in this context is limited. The aim of this study was to explore relationships between standardised tests and a self-reported questionnaire used in a home rehabilitation programme. We specifically studied whether there were gender differences within and between assessments.

    METHOD: De-identified data from 302 community-dwelling citizens that participated in a municipal home rehabilitation project in Sweden was analysed. A Mann Whitney test and an independent t-test were used to analyse differences within the following assessment instruments: the Sunnaas Activity of Daily Living Index, the General Motor Function assessment scale and the European Quality of Life Five Dimension Five Level Scale. Spearman's bivariate correlation test was used to analyse relationships between the instruments, and a Fischer's Z test was performed to compare the strengths of the correlation coefficients.

    RESULT: Gender differences were found both within and between the assessment instruments. Women were more independent in instrumental activities of daily living than men. The ability to reach down and touch one's toes while performing personal activities of daily living was stronger for men. There was a difference between men's self-reported performance of usual activities that included instrumental activities of daily living and the standardised assessment in performing instrumental activities of daily living. The result also showed an overall difference between the self-reported assessment and the standardised test of motor function for the total group.

    CONCLUSION: The results indicate that a comprehensive assessment with the combination of standardised tests, questionnaires and patient-specific instruments should be considered in a home rehabilitation context in order to capture different dimensions of functioning. Assessment instruments that facilitate a person-centred home rehabilitation supporting personally meaningful activities for both men and women should be applied in daily practice. Further research about gender-biased instruments is needed to facilitate agreement on which specific instruments to use at both individual and organisation levels to promote gender-neutral practice.

  • 17.
    Johansson, Anette
    et al.
    Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Avdelningen för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping). Department of Culture and Society, Division of Social Work, Linköping University, Linköping.
    Rydwik, Elisabeth
    Division of Physiotherapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Huddinge, Sweden; Medical unit Occupational Therapy and Physical Therapy, Women’s Health and Allied Health Professionals Theme, Karolinska University Hospital, Solna, Sweden.
    Fristedt, Sofi
    Jönköping University, Hälsohögskolan, HHJ, Avdelningen för kvalitetsförbättring och ledarskap. Jönköping University, Hälsohögskolan, The Jönköping Academy for Improvement of Health and Welfare. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Ernsth-Bravell, Marie
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Older adults’ experiences of home rehabilitation – a scoping reviewManuskript (preprint) (Annet vitenskapelig)
  • 18.
    Johansson, Isabelle
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Jansson, Henrik
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för naturvetenskap och biomedicin. Högskolan i Jönköping, Hälsohögskolan, HHJ. Oral hälsa. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Lindmark, Ulrika
    Högskolan i Jönköping, Hälsohögskolan, HHJ. Oral hälsa. Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för naturvetenskap och biomedicin. Högskolan i Jönköping, Hälsohögskolan, HHJ. ADULT. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Effekt på munhälsa av samarbete mellan tandhygienist och personal i äldreomsorg2017Konferansepaper (Annet vitenskapelig)
    Fulltekst (pdf)
    fulltext
  • 19.
    Johansson, Isabelle
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ. ADULT. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Lindmark, Ulrika
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för naturvetenskap och biomedicin. Högskolan i Jönköping, Hälsohögskolan, HHJ. Centrum för oral hälsa. Högskolan i Jönköping, Hälsohögskolan, HHJ. ADULT.
    Is an oral health coaching programme a way to sustain oral health for elderly people in nursing homes: A feasibility study2020Inngår i: International Journal of Dental Hygiene, ISSN 1601-5029, E-ISSN 1601-5037, s. 107-115Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objectives

    This study examines the feasibility of an oral health coaching programme involving practical support on individual level to staff in a nursing home in Sweden, aiming to improve oral health care‐related beliefs of nursing staff and the oral health of residents.

    Methods

    This intervention study consisted of three wards from one nursing home, and both staff (n = 48) and residents (n = 58) were invited. In the control ward, 9 staff and 16 residents participated; in test ward 1, 10 staff and 13 residents participated; and at test ward 2, 14 staff and 17 residents participated. An oral health coaching programme was performed 4 h/wk for 3 months. The staff completed the nursing Dental Coping Beliefs Scale at baseline and after 9 months. Oral health of the residents was assessed using the Revised Oral Assessment Guide and mucosal‐plaque score at baseline and after 3, 6 and 9 months.

    Results

    At baseline, 33 staff participated and 22 at 9 months follow‐up. For the residents, the figures were 48 and 32, respectively. After the intervention, the nursing DCBS revealed changes related to usage of fluoride, oral health support, gum disease and approximal cleaning. The most frequently reported oral health problems among the residents pertained to teeth and gums. The residents’ relatively high level of oral health was stable during the study period.

    Conclusions

    Despite limitations in the programme, an oral health coaching programme can support nursing staff in maintaining a high level of oral health in residents. The programme was shown feasible, although design improvements are needed.

  • 20.
    Kåreholt, Ingemar
    et al.
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Dahl Aslan, Anna K.
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Siverskog, Anna
    Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd).
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    ARN-J: A beautiful kaleidoscope of gerontologists and gerontological research: Three examples of our research2019Konferansepaper (Fagfellevurdert)
  • 21.
    Nilsson, Pia
    et al.
    Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete.
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Rolander, Bo
    Futurum, Academy for Health and Care, Region Jönköping, Jönköping, Sweden.
    Jegermalm, Magnus
    Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping). Jönköping University, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Maria Cederschiöld högskola.
    Former, förutsättningar och mål för anhörigstöd från anhörigkonsulenters och biståndshandläggares perspektiv: Resultat från en webbaserad enkät i Jönköpings län och Stockholms län2022Rapport (Fagfellevurdert)
    Abstract [sv]

    Den här rapporten är en resa genom anhörigkonsulenters och biståndshandläggares erfarenheter, uppfattningar och förutsättningar för att bedriva anhörigstöd och vilka former av stöd som erbjuds anhöriga.

    Studien baseras på en webbenkät utskickad till anhörigkonsulenter och biståndshandläggare i Jönköpings län och Stockholms län och vill bidra till en fördjupad kunskap och förståelse för den komplexitet som yrkesrollerna hanterar i sitt dagliga arbete med anhörigstöd.

    Få studier har hittills gjorts ur det här perspektivet. Att sätta fokus på anhörigkonsulenterna är givet, men biståndshandläggarna möter också många anhöriga i sin yrkesutövning. Tillsammans ger de oss en bredare bild av de förutsättningar man har för att bedriva arbetet med anhörigstöd, vilka stödformer man erbjuder och vilka arbetsformer man använt under covid-19-pandemin. Vi får också en bild av i vilken utsträckning man når de anhöriga och i vilken omfattning man samarbetar med andra aktörer kring anhörigstöd. I studien har vi också ställt frågorom synen på vad socialtjänstens anhörigstöd kan och bör leda till.

    Resultaten i studien är många och ur dem har vi identifierat fem utvecklingsområden som synliggör möjliga riktningar för kommunerna i arbetet med att utveckla anhörigstödet. På så sätt önskar vi bidra till att stärka det viktiga arbete som anhörigkonsulenter och biståndshandläggare gör dagligen för att underlätta vardagen för alla anhöriga de möter.

    Fulltekst (pdf)
    Fulltext
    Download (png)
    Omslag
  • 22.
    Persson, Jessica
    et al.
    Univ West, Dept Hlth Sci, S-46186 Trollhattan, Sweden.;Reg Vastra Gotaland, Ctr Gerodontol, Publ Dent Serv, S-40233 Gothenburg, Sweden..
    Johansson, Isabelle
    Reg Vastra Gotaland, Ctr Gerodontol, Publ Dent Serv, S-40233 Gothenburg, Sweden.;Univ Gothenburg, Sahlgrenska Acad, Inst Odontol, Dept Periodontol, S-40530 Gothenburg, Sweden..
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Bergstrom, Eva-Karin
    Reg Vastra Gotaland, Ctr Gerodontol, Publ Dent Serv, S-40233 Gothenburg, Sweden.;Univ Gothenburg, Sahlgrenska Acad, Inst Odontol, Dept Cariol, S-40530 Gothenburg, Sweden..
    Hagglin, Catharina
    Reg Vastra Gotaland, Ctr Gerodontol, Publ Dent Serv, S-40233 Gothenburg, Sweden.;Univ Gothenburg, Sahlgrenska Acad, Inst Odontol, Dept Behav & Community Dent, S-40530 Gothenburg, Sweden..
    Wardh, Inger
    Karolinska Inst, Dept Dent Med, S-14152 Huddinge, Sweden.;Karolinska Inst, Acad Ctr Geriatr Dent, S-14152 Huddinge, Sweden.;Karlstad Univ, Dept Hlth Sci, S-65188 Karlstad, Sweden..
    Oral Care Cards as a Support in Daily Oral Care of Frail Older Adults: Experiences and Perceptions of Professionals in Nursing and Dental Care-A Qualitative Study2022Inngår i: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 19, nr 15, artikkel-id 9380Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Frail older adults often have poor oral health. In Sweden, oral care cards are designed to be used as an interprofessional tool for documenting the oral health status of older adults with extensive care needs and to describe oral care recommendations. The aim of this study was to explore nursing and dental professionals' experiences and perceptions of oral care cards. Nursing and dental care staff were interviewed in groups or individually. The recorded data were transcribed verbatim and analyzed using qualitative content analysis. A theme emerged: Navigating an oral care responsibility that is not anchored in the nursing and dental care context. The theme was elucidated in three categories: "Accessibility and usefulness", "Coordination between nursing and dental care", and "Ethical approach". The participants perceived a lack of surrounding frameworks and collaboration concerning oral care and the use of oral care cards. An oral care card could ideally facilitate interprofessional and person-centered oral care. However, oral health does not seem to have found its place in the nursing care context. Further research is needed to investigate how oral care cards ought to be developed and designed to support oral health care work.

  • 23.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Ageing and Care Among Disabled Couples2013Inngår i: Ageing with disability: a lifecourse perspective / [ed] Eva Jeppsson Grassman and Anna Whitaker, Bristol: Policy Press , 2013, s. 109-127Kapittel i bok, del av antologi (Annet vitenskapelig)
    Abstract [en]

    "This is the first book to address the issue of ageing after a long life with disability. It breaks new ground through its particular life course perspective, examining what it means to age with a physical or mental disability and what the implications are of 'becoming old' for people who have had extensive disabilities for many years. These people may have had to leave the labour market early, and the book looks at available care resources, both formal and informal. Ageing with disability challenges set ideas about successful ageing, as well as some of those about disabilities. The life course approach that is used unfolds important insights about the impact of multiple disabilities over time and on the phases of life. The book highlights the meaning of care in unexplored contexts, such as where ageing parents are caregivers or regarding mutual care in disabled couples. These are areas of knowledge which have, to date, been totally neglected."--Publisher's website.

  • 24.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Ageing and Caring as Couples with Disabilities2014Doktoravhandling, med artikler (Annet vitenskapelig)
    Abstract [en]

    In gerontology and care research, care is often studied in ways in which older people and people with disabilities are portrayed as dependent on the care of younger or non-disabled people. This thesis, in contrast, studies care provided by people that are both old and have physical disabilities. The thesis explores how care is actualized and experienced by older couples who both have long-term or lifelong disabilities, and investigates the implications of this caring in the couples’ lives. Nine couples between 60 and 84 years old, of whom most had had disabilities for over 20 years, were interviewed as dyads; a process also conjoint interviewing. These interviews were analysed using grounded theory methods of coding and constant comparison. The results of the thesis confirm that it can make sense to be a carer even if one also needs care in everyday life. The analysis considers how conjoint interviewing resulted in relational and performative data about mutual care. The study helps explain the significance helping a partner despite having other sources of formal support and the difficulties of providing this help oneself. Finally, in a study whose participants are growing old together with disabilities, the results also show that the couples could regard themselves as ageing advantageously compared to other groups. Through its focus on caring for and by older people with disabilities, this thesis is at the intersection of social gerontology, care research and disability studies. However, from its interdisciplinary perspective, it can also challenge established discourses in these fields. Specifically, the study problematizes the absence of a care discourse in disability studies and the mostly age- and function-coded ways in which care is discussed in care research. The thesis problematizes dichotomies used in understanding care, such as roles of carers/care receiver and caring/servicing. It also challenges established ways of thinking about successful ageing. Lastly, the thesis contributes to the still growing literature on ageing with a disability.

    Fulltekst (pdf)
    fulltext
  • 25.
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi.
    Ageism, disablism and growing old with disabilities2015Konferansepaper (Fagfellevurdert)
  • 26.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Ambiguities about thesis writing as a final assessment tool in undergraduate education2011Konferansepaper (Annet (populærvitenskap, debatt, mm))
  • 27.
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    “Being in-Between”: Spouses that cohabit with and provide care for their partners in nursing homes2020Inngår i: Journal of Applied Gerontology, ISSN 0733-4648, E-ISSN 1552-4523, Vol. 39, nr 4, s. 377-384Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    It is increasingly possible for couples with differing care needs to move to nursing homes together. To our knowledge, this is the first study about spousal caregiving in this context. This study explores spouse and staff experiences when relatively healthy spouses cohabit with and provide care to their partners in Swedish nursing homes. The overarching theme, ?being in-between,? reflects the spouse?s overlapping role transition and the staff?s unfamiliarity with the spouse?s role. The spouses are both ?insiders? and ?outsiders? and are torn between maintaining and letting go of caregiving. Meanwhile, the staff express concern about the spouse?s need for respite yet being constantly present, and struggle to balance the staff?s and the spouse?s control of the caregiving situation. This article provides insight into the challenges experienced by spouses who accompany their partners to residential care and how to best support them in this unfamiliar role.

    Fulltekst (pdf)
    Post-print
  • 28.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Caringscapes, caring routes and the care context of couples growing old together with disabilitites2011Inngår i: The Gerontologist, vol 51, p.621, Boston, MA: Gerontological Society of America , 2011, s. 621-621Konferansepaper (Fagfellevurdert)
    Abstract [en]

    n/a

  • 29.
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Dilemma of Maintaining Nearness and Maintaining Distance2018Konferansepaper (Fagfellevurdert)
  • 30.
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Family life and care among couples in care homes2016Konferansepaper (Fagfellevurdert)
    Abstract [en]

    This presentation introduces the background and first results of a study exploring family life and care among couples in care homes, where only one partner is needs-tested and the other is an accompanying co-habiting spouse. In 2012, a co-habitation guarantee came into effect in Sweden, giving older people in care homes the right to continue living with their spouse as part of a reasonable standard of life, regardless if the accompanying spouse is relatively healthy. Since the guarantee, about 300 couples per year choose to live together in care homes despite only one being needs-assessed. Little is known about their conditions for family life in the care home, which is an ambiguous environment that is the couple’s legal home, a shared space with other needs-tested older people, and a workplace for care staff with institutional characteristics. Couples with unequal health needs in care homes blur the spatial distinction between family home and the formal care organization, since the formal care environment also becomes a site for the couple’s family life and mutual caring. Few studies consider the experiences of couples living together in care homes, and there is also limited knowledge of relatives’ roles in the care home in the long term (Davies & Nolan, 2006). This ethnographic study contributes to this gap using participant observations, conjoint interviews with couples and focus groups with staff in five Swedish municipalities.

  • 31.
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Filling the Gaps? – Voluntary Organizations’ Support for Older People with Severe Mental Illness2019Inngår i: Catalogue, Senior Generation, 14th International Forum, 10-13 April 2019, St. Petersburg, Russia, 2019, s. 44-44Konferansepaper (Annet vitenskapelig)
  • 32.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Freedom and Imperative: Mutual Care Between Older Spouses With Physical Disabilities2014Inngår i: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 20, nr 2, s. 204-225Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This article explores mutual caregiving between older spouses aging with physical disabilities. Nine older couples, where both partners had lived long lives with physical disabilities, were interviewed as dyads about mutual caregiving. The couples not only had access to different kinds and degrees of formal support but also provided mutual care to each other in a variety of ways. Interview coding using grounded theory led to two overarching categories from which motivation for mutual caregiving could be understood. These categories were Mutual care as freedom and Mutual care as imperative. The results extend understanding about how older couples with disabilities attached meaning to their mutual caregiving, and why mutual care was sometimes preferable, despite the availability of other sources of help and despite practical difficulties of providing this help. These findings suggest that health care professionals need to be sensitive to the dynamics of the couple relationship and carefully explore the couple’s preferences for how formal support can best be provided in ways that honor and sustain the integrity of the couple relationship

    Fulltekst (pdf)
    fulltext
  • 33.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Grounding care in social relationships2013Inngår i: NNDR 2013, Åbo, 2013, s. 205-Konferansepaper (Annet vitenskapelig)
    Abstract [en]

    Within disability studies and feminist care research as fields, problems regarding "caring" have been framed in different ways that set the care giver and care receiver as opposing stakeholders. Both views have however tended to limit the discussions on care to certain issues. Consequently, other meanings and actors of care had become invisible. What this paper shows is that studying care as enacted in relationships not only provides an alternative way to discuss care outside the traditional disciplinary frames but also can contribute to a broadened understanding of what actions to define as "caring". Studies that ground their discussion of care in relationships already question the definition of "carers" as mostly able-bodied women and "care" mostly as instrumental tasks. What these studies also do is to broaden understanding of care through raising it as something ongoing and temporal. Both carer / care receiver roles and the nature of what one defines as caring can thus change over time. This can lead to interesting and broadened discussions in disability studies, where the word "care" has long been linked to dependence and "help" often limited to discourse on assistance. For example, disabled people as both carers and receivers of help can be a possibility for study

  • 34.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Interviewing couples: creating data about shared experiences2015Inngår i: Att studera funktionshinder och åldrande: en bok om metoderfarenheter / [ed] Eva Jeppsson Grassman, Annika Taghizadeh Larsson, Norrköping: Nationella institutet för forskning om äldre och åldrande (NISAL), Linköpings universitet , 2015, s. 81-103Kapittel i bok, del av antologi (Annet vitenskapelig)
  • 35.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Older couples with long-term disabilities: Multiple jeopardy or successful ageing?2014Konferansepaper (Annet vitenskapelig)
  • 36.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    On couples ageing together with disabilities2012Konferansepaper (Annet vitenskapelig)
  • 37.
    Torgé, Cristina Joy
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Samhällsteoretiska perspektiv på åldrande2020Inngår i: Äldre och åldrande: grundbok i gerontologi / [ed] Marie Ernsth Bravell & Lena Östlund, Malmö: Gleerups Utbildning AB, 2020, 3, s. 237-266Kapittel i bok, del av antologi (Annet vitenskapelig)
  • 38.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    “The right hand helps the left”: Care in couplehood where both partners are disabled2010Inngår i: Disability Studies ConferenceLancaster University7th-9thSeptember, 2010: Book of abstracts, Lancaster, UK: Lancaster University , 2010, s. 159-159Konferansepaper (Annet vitenskapelig)
    Abstract [en]

    Couplehood is an area of relationship between disabled people that is underresearched in comparison to self-evident family relationships with their parents and siblings. Although disabled people do enter into relationships with one another and there are expanding networks between disabled adults, few texts explore partnerships of love between the physically disabled. Most texts that discuss disability and relationships usually only describe spousal care by an able-bodied partner to a disabled one. It is also taken for granted that the disability was acquired after the marriage. But how does spousal care look like in a relationship where both partners are seen to be in need of help? How do the actualizations of such care change over time, over changing bodily states and with age? This paper describes a newly started PhD project placed at the intersection of disability studies, care studies and gerontology. The aim of the project is to explore the actualizations of care between disabled couples above the age of 55, who can both look back on a long relationship together, as well as look ahead to their future. Evidently, what is of interest to the project are not couples who acquire disability with advanced age, but rather those who have acquired impairments earlier in life. The focus is on the concept of care understood in a broader meaning, which challenges notions of dependence in care. The preliminary results of the qualitative interview study will be discussed. Interviews have been conducted with couples, where both partners have a long-term disability and have had the opportunity to live long lives together with their impairments. The dichotomy between caregiver and care receiver become less clear as partners usually take on both these roles simultaneously. Care in the relationships might also have different meanings and actualizations depending on the changing needs and bodily states of both partners.

  • 39.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Using conjoint interviews with couples that have been living with disabilities and illnesses for a long time – implications and insights2013Inngår i: Qualitative Studies, E-ISSN 1903-7031, Vol. 4, nr 2, s. 100-113Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This article discusses conjoint interviews and takes its starting point from a study with nine older couples who have been living with disabilities for a long period of time. Conjoint interviewing where dyads are interviewed together produces a different kind of data from individual interviews – specifically data that conduce different ways of talking about “we-ness” and produce interaction between the participants. This article discusses how this appeared in a study that was interested in the understandings and actualizations of spousal care when both have a disability or illness. The method leads to an analysis centered on mutuality and has potential to problematize traditional caring tasks and caring roles in the context of living with disability or chronic illness. Potentials and limitations of the method are discussed.

    Fulltekst (pdf)
    fulltext
  • 40.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    “What will happen to me when I'm old?” Autonomy and class in residential housing for the old in the Philippines2010Inngår i: Rum för åldrande: Essäer om äldres boende: Essäer skrivna i forskarutbildningskursen Äldres boende / [ed] Abramsson, M., Hagberg, J-E., Lukkarinen Kvist, M. och Nord, C., Linköping: Linköping University , 2010, s. 37-42Kapittel i bok, del av antologi (Annet vitenskapelig)
    Abstract [sv]

    Denna antologi ingår elva essäer som ur olika perspektiv behandlar äldre och gamlas boende. De är skrivna i en forskarutbildningskurs vid Humanistisk-samhällsvetenskapliga forskarskolan i äldre, åldrande och omsorg. Red. Abramsson, M., Hagberg, J-E., Lukkarinen Kvist, M. och Nord, C. Linköpings Universitet.

  • 41.
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Whose right to a “Reasonable Level of Living”? Spouses with differing care needs in Swedish nursing homes2018Inngår i: The Journal of Aging and Social Change, ISSN 2576-5310, Vol. 8, nr 1, s. 45-60Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    In Sweden, eligibility to move to a nursing home is usually based on an individual needs assessment. In 2012, an amendment to the Social Services Act was enacted, giving persons with residential care the right to live with a spouse in the nursing home, even if the spouse is relatively healthy and does not need nursing care. In this article, two contrasting case studies of cohabiting couples are presented. These case studies are based on field observations and qualitative interviews with the couples and staff in two nursing homes in two Swedish municipalities. The article shows that local municipal guidelines, establishing who has the right to help and care, affect the ways that both the staff and the couple talk about the spouse’s rights and roles as a coresident in the nursing home. In the two cases, there were also different staff attitudes about the spouse’s need for support in the role as spousal caregiver.

    Fulltekst (pdf)
    Fulltext
  • 42.
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Whose right to a worthy life?: Two case studies of spouses moving with their partner to assisted living2016Konferansepaper (Fagfellevurdert)
    Abstract [en]

    In Sweden, eligibility to move to an assisted living facility is usually based on individual needs assessment. Since 2012, a new addition to the Social Services Act makes it possible for needs-assessed older people to live with their spouse in the facility, regardless if the accompanying spouse is relatively healthy and does need the social- and nursing care provided there.  In this presentation, two contrasting case studies of cohabiting couples will be presented. These case studies are based on qualitative interviews with couples and staff in two assisted living facilities in two different Swedish municipalities. Local municipal guidelines establishing who has the right to help and care trickle down in the ways both the staff and couple talk about the spouse’s rights and roles in the facility. In the two cases, there were also different staff attitudes about the spouses’ need for support in their role as spousal caregiver within the facility.

  • 43.
    Torgé, Cristina Joy
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    With This (Disabled) Body: Distributed paper, RC 11 (Sociology of Ageing)2010Inngår i: XVII ISA World Congress of Sociology Sociology on the MoveGothenburg, Sweden 11 - 17 July, 2010: Conference Abstracts / [ed] Laurel Conly, Edwin Fontanilla, David Miller, Matthew Ruben, Karen Stevens, Gothenburg, Sweden, 2010, s. 180-180Konferansepaper (Annet vitenskapelig)
    Abstract [en]

    Couplehood is an area of relationship between disabled people that is under-researched in comparison to self-evident family relationships withtheir parents & siblings. Although there are expanding networks between disabled adults, few texts explore partnerships of love between disabled people. Most texts that discuss disability and relationships usually only describe spousal care by an able-bodied partner to a disabled one. It is also taken for granted that the disability was acquired after the marriage. This paper discusses the preliminary results of a qualitative interview study with couples, where both partners have a long-term disability and have hadthe opportunity to live long lives together with their impairments. The aimof the study is to contribute to knowledge about disabled people’s relationships,as well as to explore the meanings & actualizations of care in these relationships over time, changing bodily states & age. The study is ongoing & is being analyzed using a Grounded Theory approach. Preliminary results indicate that the dichotomy between caregiver & care receiver become less clear as partners usually take on both these roles simultaneously. Care in the relationships might also have different meanings & actualizations depending on the changing needs & bodily states of both partners.

  • 44.
    Torgé, Cristina Joy
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Ernsth-Bravell, Marie
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Bülow, Per
    Region Jönköpings län.
    Wilińska, Monika
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Bülow, Pia H.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Högskolan i Jönköping, Hälsohögskolan, HHJ. ADULT.
    Jegermalm, Magnus
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete.
    Similarities and Differences when Comparing Older People with Severe Mental Illness and a Population-based Study of Older People: Care and Living Conditions for Older People with Severe Mental Illness2018Konferansepaper (Fagfellevurdert)
  • 45.
    Torgé, Cristina Joy
    et al.
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Johansson, Linda
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Östlund, Lena
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Äldres psykiska hälsa och sårbarhet2020Inngår i: Äldre och åldrande: grundbok i gerontologi / [ed] Marie Ernsth Bravell & Lena Östlund, Malmö: Gleerups Utbildning AB, 2020, 3, s. 125-152Kapittel i bok, del av antologi (Annet vitenskapelig)
  • 46.
    Torgé, Cristina Joy
    et al.
    Jönköping University, Hälsohögskolan, HHJ, Avdelningen för socialt arbete. Division of Social Work, Department of Culture and Society, Linköping University, Linköping, Sweden.
    Nilsson, Pia
    Jönköping University, Hälsohögskolan, HHJ, Avdelningen för socialt arbete. Ersta Diakoni, Stockholm, Sweden.
    Jegermalm, Magnus
    Jönköping University, Hälsohögskolan, HHJ, Avdelningen för socialt arbete. Department of Social Sciences, Marie Cederschiöld University, Stockholm, Sweden.
    Support to ‘non-clients’: care managers’ role in direct and indirect carer support2024Inngår i: European Journal of Social Work, ISSN 1369-1457, E-ISSN 1468-2664Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Social service provision in Europe has increasingly incorporated informal carers. Consequently, these carers are now included within the scope of all social workers, including care managers. Most support for carers is indirect support, where opportunities for respite are channelled through the care receiver’s needs assessment. This approach highlights the unique role of care managers providing carer support as they balance their public task directed towards clients with the concurrent policy-driven expectation to support carers. The aim of this article is to explore how care managers, as street-level bureaucrats, ‘make’ carer support policy on the ground. Using systematic text condensation of 10 qualitative interviews with care managers in Sweden, we present three themes to understand care managers’ experiences. Care managers work ‘Hand-in-hand’ and ‘hands on’ with carers, carers are within, yet outside one’s scope of work, and there are possibilities and practices towards a carer perspective. Following Lipsky’s dictum that street-level bureaucrats’ actions effectively ‘become’ the public policy they carry out, our results highlight care managers’ possibilities and challenges in shaping what direct and indirect carer support looks like on the ground.

  • 47.
    Torgé, Cristina Joy
    et al.
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Nyman, Rosita
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    CENTENARIANS IN SWEDISH MASS MEDIA: IS IT REVERSE AGEISM?2022Inngår i: Innovation in Aging, E-ISSN 2399-5300, Vol. 6, nr Supplement 1, s. 661-661Artikkel i tidsskrift (Annet vitenskapelig)
    Abstract [en]

    Studies on ageism often deal with negative stereotypes due to increasing age. Seldom studied is the increase in status that seems to occur at the turning point of 100 years. This study explores how centenarians are portrayed in Swedish media texts and relates this to mechanisms of ageism and age coding. We used Retriever database, which is the biggest Nordic database containing news media, to search for press articles concerning 100- to 105-year-olds. Our search resulted in 1468 articles, consisting of both news articles and feature articles. Excluding articles that did not deal with persons, articles with a paywall and redundant articles resulted in 235 articles. We analyzed (1) the contexts in which centenarians appeared, (2) the relevance of the persons’ age to the event and (3) feelings and values evoked in the articles. On the one hand, news reports evoke how centenarians ought to be shielded from harm and emphasize the indignity of even small wrongdoings. On the other hand, feature articles often use superhuman adjectives to describe centenarians, and emphasize their “youthfulness”. In birthday features, there was also an expectation for centenarians to publicize their celebrations and there was a recurrent trope was that centenarians held well-kept secrets about ageing well. Portrayals of centenarians show that they are an esteemed group. However, we also interpret that these portrayals can hide other forms of ageism, particularly compassionate ageism, and a stereotyping of centenarians that play down ill health and emphasize youthfulness at the extremes of old age.

  • 48.
    Torgé, Cristina Joy
    et al.
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Nyman, Rosita
    Jönköping University, Hälsohögskolan, HHJ, Institutet för gerontologi. Jönköping University, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Omvänd ålderism? Gestaltningar av 100-åringar i svenskatidningar2021Inngår i: Perspektiv på ålderism / [ed] Håkan Jönson, Lund: Social Work Press , 2021, s. 172-193Kapittel i bok, del av antologi (Fagfellevurdert)
  • 49.
    Torgé, Cristina Joy
    et al.
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Taghizadeh Larsson, Annika
    Linköpings universitet, NISAL - Nationella institutet för forskning om äldre och åldrande.
    Older couples with long-term disabilities: Multiple jeopardy or successful ageing?Manuskript (preprint) (Annet vitenskapelig)
    Abstract [en]

    In a study where older couples who had lived long lives with physical disabilities were interviewed about mutual care, an unexpected finding that while the couples reported worsening disabilities, they also described themselves as advantaged, and as maintaining a high level of activity in some areas of life. In this article, we investigate how the couples achieve this sense of ageing successfully when the participants’ stories of physical decline, from an outsider’s perspective, might be thought to produce double-, triple- or multiple jeopardy. The results show how the couples use different types of reference groups and refer to various resources to frame themselves as privileged. Furthermore, through environmental adaptations, technical aids and supportive services, they managed to maintain a high level of activity, despite living with disabilities. Notably, the couples described themselves as advantaged by referring to being older, to the long life with disabilities and to ageing with disabilities together. The overarching ambition of the article is to problematize established notions of successful ageing. Considering that the couples referred to the very conditions that might be seen as disadvantageous,  the problem of pre-defined criteria for successful ageing becomes particularly apparent.

  • 50.
    Wilińska, Monika
    et al.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Bülow, Pia H.
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd). Högskolan i Jönköping, Hälsohögskolan, HHJ. ADULT.
    Bülow, Per
    Region Jönköpings län.
    Ernsth-Bravell, Marie
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Jegermalm, Magnus
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete.
    Torgé, Cristina Joy
    Högskolan i Jönköping, Hälsohögskolan, HHJ, Institutet för gerontologi. Högskolan i Jönköping, Hälsohögskolan, HHJ. ARN-J (Aging Research Network - Jönköping).
    Severe mental illness from a life course perspective – the meaning of times and spaces. Narratives by older people living in homes for the Elderly2018Konferansepaper (Fagfellevurdert)
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