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  • 1.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Assessment of coping and quality of life in adults with neuromuscular diseases.1998In: European Congress on Evaluation of Rehabilitation in a Lifelong Course, 1998Conference paper (Refereed)
  • 2.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Consequences of Muscular Dystrophy: Impairment, Disability, Coping and Quality of Life.1994Doctoral thesis, monograph (Other scientific)
  • 3.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Coping with Long-term Neurological illness and the Implications for Nursing.2005In: Journal of neuroscience nursing, ISSN 0888-0395, Vol. 37, no 6, p. 301-302Article in journal (Refereed)
  • 4.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Coping with Long-term Neurological Illness and the Implications for Nursing Interventions.2005In: 9th Quadrennial World Federation of Neuroscience Nurses, 2005Conference paper (Refereed)
  • 5.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Experiences of loss and chronic sorrow in person with neurological disorders.2001In: 8th World Federation of Neuroscience Nurses Congress, 2001Conference paper (Refereed)
  • 6.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Experiences of loss and chronic sorrow in person with neurological disorders.2001In: 8th World Federation of Neuroscience Nurses Congress, 2001Conference paper (Refereed)
  • 7.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Experiences of Loss and Chronic Sorrow in Persons with Neurological disorders.2004In: The First Affiliated Hospital of Kunming Medical College, 2004Conference paper (Refereed)
  • 8.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Experiences of loss and chronic sorrow in persons with severe chronic illness2007In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 16, no 3A, p. 76-83Article in journal (Refereed)
    Abstract [en]

    Aims and objectives. The aims of the present study were to describe losses narrated by persons afflicted with severe chronic physical illness and to identify the concomitant occurrence of chronic sorrow. Background. Reactions connected with repeated losses are referred to in the literature as chronic sorrow, which has recently been described in conjunction with chronic illness. Design. A qualitative study with an abductive approach of analysis, including both inductive and deductive interpretations. Method. The study is based on 30 persons of working age with average disease duration of 18 years. The average age was 51 years. All of the persons had personal assistance for at least three months because of considerable need for help in daily life due to physical disability. Each person was interviewed twice. There was also an independent assessment of the deductive results concerning chronic sorrow. Results. The inductive findings show that all persons had experienced repeated physical, emotional and social losses. Most common were 'Loss of bodily function', 'Loss of relationship', 'Loss of autonomous life' and 'Loss of the life imagined'. 'Loss of identity' included the loss of human worth, dignity and a changed self-image. In addition, the deductive findings suggest that chronic sorrow exists in the study population. Sixteen of 30 participating subjects were assessed by both assessors to be in a state of chronic sorrow and there was an especially high agreement with respect to one criterion of chronic sorrow 'Loss experience, ongoing or single event' (28 of 30 subjects). Conclusions. This study shows that persons with severe chronic illness often experience recurring losses. These experiences are consistent with the phenomenon of chronic sorrow. Relevance to clinical practice. Knowledge of the existence of chronic sorrow in persons with chronic illness will enable nurses to support these persons in a more sensitive and appropriate way.

  • 9.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Living with Neurological Disorders: Illness Experiences, Coping and Coping Resources.2004In: WENR-conference, 2004Conference paper (Refereed)
  • 10.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Mänskliga resurser och empowerment vid kronisk sjukdom.2002In: Kongress Lust & Kunskap, 2002Conference paper (Refereed)
  • 11.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Nursing rehabilitation programme and its effect on patients' coping and quality of life.1997In: 7th Quadrennial Congress, 1997Conference paper (Refereed)
  • 12.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Personal assistance for patients living with a severe neurological disorder.2006In: Journal of Neuroscience Nursing, ISSN 0888-0395, Vol. 38, no 3, p. 183-193Article in journal (Refereed)
    Abstract [en]

    Patients with neurological diseases increasingly are being cared for at home. The purpose of this study was to describe stressful everyday experiences in connection with neurological disorders, to learn how people cope with such experiences, and gain knowledge about coping resources. Twenty-seven persons receiving personal assistance were interviewed twice at home. The 54 interviews were subjected to inductive content analysis. The persons encountered many problems in everyday life and usually handled them by means of acceptance, avoidance, practical problem solving, and reappraisal. Dependence on personal assistance gave rise to a sense of helplessness, but it was also the major coping resource. Nurses can improve home care by giving instruction and guidance to persons working as personal assistants.

  • 13.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Project neuromuscular diseases in Sweden.1989In: EAMDA-kongress., 1989Conference paper (Refereed)
  • 14.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Triangulering och multimetod - i teori och forskningspraktik.1995In: Kongressrapport från Hälso- och Sjukvårdsstämman, 1995Conference paper (Refereed)
  • 15.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Anshelm, Margareta
    Bedömning av livskvalitet vid svåra sjukdomstillstånd - vem har tolkningsföreträde.2001In: Kongressrapport, Nationella forskarskolan i vård och omsorg, 2001Conference paper (Refereed)
  • 16.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Anshelm, Margareta
    Förluster och kronisk sorg vid neurologiska sjukdomstillstånd.2001In: Kongressrapport, Nationella forskarskolan i vård och omsorg, 2001Conference paper (Refereed)
  • 17.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Anshelm, Margareta
    Göra det bästa av det sämsta: rörelsehindrades syn på sin livssituation2000Report (Other academic)
  • 18.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Anshelm, Margareta
    Livskvalitet vid svåra kroniska sjukdomar och skador. Sett ur den funktionshindrades, anhöriges och personliga assistentens synvinkel.2001In: Kongressrapport från Hälso- och Sjukvårdsstämman, 2001Conference paper (Refereed)
  • 19.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Carlsson, Catrin
    Att visa upp sin värld: hur personer med stora varaktiga funktionshinder uppfattar sin livssituation relaterat till de etiska principerna i LSS2002Report (Other academic)
  • 20.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Casco, Marie
    Vara synlig men ändå osynlig: personliga assistenters vardag2000Report (Other academic)
  • 21.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Davidsson, Solveig
    Tre kärnfulla berättelser: Anhörigas uppfattningar om vad assistans innebär för den funktionshindrade och hur de etiska värdegrunderna i LSS tillämpas.2000Report (Other academic)
  • 22.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Gunnarsson, Lars-Gunnar
    Disability and quality of life in individuals with muscular dystrophy.1996In: Scandinavian Journal of Rehabilitation Medicine, ISSN 0036-5505, E-ISSN 1940-2228, Vol. 28, no 3, p. 147-157Article in journal (Refereed)
    Abstract [en]

    In the county of Orebro, Sweden, 32 individuals with myotonic disorders and 25 with other types of muscular dystrophy were examined. Disability was assessed with functional tests and standardized observations of muscle function (mainly based on those proposed by Dr. Brooke), a new self-administered questionnaire regarding the Activities of Daily Living (ADL) and the ADL staircase (based on Katz ADL index). The results of the different tests of disability were highly correlated. The Sickness Impact Profile and the Kaasa test were used for assessing the quality of life, and no significant differences were found between the groups of muscular dystrophy. In an explanatory factor analysis three main factors of disability were found. The factors "walk and move" and "finger function" were fair to good associated with the quality of life. This study offers an approach for research on the consequences of muscular dystrophy using established as well as new methods.

  • 23.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Gunnarsson, Lars-Gunnar
    Intervenering för bättre livskvalitet.1997In: Rapport från forskningskonferensen Människa, handikapp, livsvillkor: Örebro den 9 och 10 april 1997, Örebro: Psykiatri och habilitering, Örebro läns landsting , 1997Conference paper (Refereed)
  • 24.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Gunnarsson, Lars-Gunnar
    Rehabilitering för bättre livskvalitet hos vuxna med muskeldystrofi1997Report (Other academic)
  • 25.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Gunnarsson, Lars-Gunnar
    Kihlgren, Annika
    Arvill, Anders
    Sjödén, Per-Olow
    Respiratory function, electrocardiography and quality of life in individuals with muscular dystrophy.1994In: EAMDA, 1994Conference paper (Refereed)
  • 26.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Gunnarsson, Lars-Gunnar
    Kihlgren, Annika
    Arvill, Anders
    Sjödén, Per-Olow
    Respiratory function, electrocardiography and quality of life in individuals with muscular dystrophy.1994In: Chest, ISSN 0012-3692, E-ISSN 1931-3543, Vol. 106, no 1, p. 173-179Article in journal (Refereed)
    Abstract [en]

    All individuals in a Swedish county afflicted with any type of hereditary muscular dystrophy (MD) were identified and 57 (85 percent) of eligible individuals in the age range 16 to 64 were included in the study. Respiratory disturbances were estimated by means of spirometry and analysis of arterial blood gases, and 58 percent yielded abnormal results on at least one of these examinations. Elevated PCO2 was found more commonly than reduced forced vital capacity (FVC) and there was a moderate association between these parameters. Respiratory symptoms, most commonly breathlessness, were encountered in 79 percent. Pathologic ECG recordings were found in 21 individuals (37 percent). Conduction disturbances and affection of the myocard were most frequent in myotonic dystrophy. Quality of life was assessed by means of the Sickness Impact Profile instrument and the Kaasa test. The results showed that quality of life was significantly related to FVC and to the symptom of abnormal fatigue. Respiratory and cardiac parameters showed a greater number of significant correlations with measures of functional ability than with subjective well-being.

  • 27.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Gunnarsson, Lars-Gunnar
    Leissner, Per
    Sjödén, Per-Olow
    Epidemiology of neuromuscular diseases, including the postpolio sequelae, in a Swedish county.1993In: Neuroepidemiology, ISSN 0251-5350, E-ISSN 1423-0208, Vol. 12, no 5, p. 262-269Article in journal (Refereed)
    Abstract [en]

    The epidemiology of neuromuscular diseases was studied in the county of Orebro, Sweden (study population 270,000). Several different sources of data were utilized, compared and validated. On the prevalence of day (January 1, 1988) 474 patients were identified. The rate per 100,000 population was 92 for the postpolio sequelae (PPS) and 84 for the other neuromuscular diseases (motor neuron disease 9, hereditary neuropathies 9, myoneural disorders 16, myotonic disorders 19, muscular dystrophies 20 and myositis 11). Of the patients with the PPS, 80% reported late-onset symptoms. On the basis of an expanded survey including all medical records in one health care district, the prevalence of the PPS was estimated to be 186/100,000 population.

  • 28.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Hansson, Birgitta
    A model for supporting the patient's coping with chronic illness.2000In: Vård i Norden, ISSN 0107-4083, E-ISSN 1890-4238, Vol. 20, no 3, p. 34-38Article in journal (Refereed)
  • 29.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Karlsson, Ulf
    Disability and quality of life in individuals with postpolio syndrome.2000In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 22, no 9, p. 416-422Article in journal (Refereed)
    Abstract [en]

    PURPOSE: The purpose of the study is to investigate disability and quality of life in individuals with the characteristic symptoms of postpolio syndrome. METHOD: Disability is assessed by means of the self-report activities of daily living instrument, and quality of life by means of Kaasa's questionnaire and the quality of life profile. RESULTS: The 39 subjects have on average lived with polio sequelae for 52 years. Their main difficulties are with moving, lifting and carrying. This means restricted mobility, sedentary activities and a need to prioritize. Half of them feel that polio has lessened their possibilities in life, and a quarter have still not accepted the limitations polio has involved. Nevertheless the majority report a high level of psychosocial well-being, and almost a quarter say that living with polio has meant personal development and strength. We found a significant correlation between on the one hand disability with regard to ambulation, arm strength and finger strength on the self-report ADL, and on the other hand the number of negative problems on the quality of life profile (0.33-0.45). CONCLUSION: The latter instrument needs further testing before its validity can be determined with certainty.

  • 30.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Klinkert, Pia
    Den svåra balansgången: personliga assistenters möjligheter att tillämpa de etiska värdegrunderna i LSS2001Report (Other academic)
  • 31.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Lindvall, Björn
    Wenneberg, Stig
    Gunnarsson, Lars-Gunnar
    A comprehensive rehabilitation programme tailored to the needs of adults with muscular dystrophy.2006In: Clinical Rehabilitation, ISSN 0269-2155, E-ISSN 1477-0873, Vol. 20, no 2, p. 132-141Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: To assess if activities of daily living (ADL), coping and quality of life could be improved in adults with muscular dystrophy through a comprehensive rehabilitation programme. DESIGN: Quasi-experimental, controlled clinical study comparing patients with similar age and disease aspects. SETTING: Two different counties in Sweden, being either study or control setting. SUBJECTS: The study group comprised 37 adults (21 women, 16 men; mean age 50 years), while the control group comprised 39 people (25 women, 14 men; mean age 46 years). INTERVENTIONS: Four rehabilitation sessions tailored to different medical, physical and psychosocial needs of the patients, comprising a total of 10 days over a period of 18 months. MAIN MEASURES: ADL, the Mental Adjustment to Cancer Scale measuring coping strategies, the Sickness Impact Profile measuring health-related quality of life, the Hospital Anxiety and Depression Scale, and the Psychosocial Well-being Questionnaire. RESULTS: No significant differences were found between groups with regard to the outcome measures. There was increased dependence on others in ADL after 18 months in both groups, but it was more pronounced in the control group. Furthermore, a clear trend was observed in the data with regard to coping patterns, the control group using more coping strategies such as 'Helplessness/hopelessness' (P= 0.057), 'Anxious preoccupation' (P = 0.085) and 'Fatalistic' (P= 0.073) when being compared to the study group. CONCLUSIONS: No apparent effects on ADL were found from the rehabilitation programme, although there was a tendency of reduction of maladaptive coping patterns in the study group. This initial study may provide the rationale and basis for a randomized controlled trial.

  • 32.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Sjöden, Per-Olow
    Coping with illness-related problems and quality of life in adult individuals with muscular dystrophy.1996In: Journal of Psychosomatic Research, ISSN 0022-3999, E-ISSN 1879-1360, Vol. 41, no 4, p. 365-376Article in journal (Refereed)
    Abstract [en]

    Illness-related problems and coping were examined in 60 individuals with muscular dystrophy (MD) identified in a population survey of the county of Orebro, Sweden. In addition, the extent to which coping is related to quality of life (QoL) was investigated as was the impact of impairment and disability on the relation between coping and QoL. Emotion/appraisal-focused coping was utilized by respondents more than twice as often as problem-focused coping. High QoL was significantly correlated to "Stoic acceptance" and "Tried alternative treatment." Low QoL was associated with "Helpless/hopeless," "Anxious preoccupation," "Minimization," "Social comparison," "Establishment of control over everyday life," "Performs the task with the aid of an appliance" and "Accepts help or leaves it to others." When measures of impairment and disability were included in the analysis, the impact of these measures explained the association between coping and physical QoL by 16% to 43%.

  • 33.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Sjödén, Per-Olow
    Assessment of coping with muscular dystrophy: a methodological evaluation.1994In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 20, no 2, p. 314-323Article in journal (Refereed)
    Abstract [en]

    There is no published research on coping with muscular dystrophy among adults. In the present study, two questionnaires, the Reaction to the Diagnosis of Cancer Questionnaire (RDCQ) and the Mental Adjustment to Cancer scale (MAC), were modified in order to measure coping with muscular dystrophy (MD). A total of 60 people (16-64 years) with diagnosed MD answered the questionnaires in two interviews including semi-structured questions. The replies to these questions were analysed by two independent judges on the basis of the RDCQ and MAC categories for coping. The purpose was twofold: to investigate if cancer-coping categories could be used for the classification of interview answers concerning coping with MD, and to gain knowledge about specific coping with MD. Analysis indicated that 82% of replies to semi-structured questions concerned with emotion/appraisal-focused coping with MD can be described by means of RDCQ and MAC categories. Eight new categories were developed to classify the remaining 18%: Anticipation, Creation of new life values, Minimization, Establishment of control over everyday life, Secretiveness, Fear, Social comparison and Coping with heredity. In addition, 997 replies were classified to represent problem-focused coping. The judges reached good agreement with respect to the proportions of replies in the respective coping categories. However, kappa (kappa) values were within the range of fair to good agreement.

  • 34.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Sjödén, Per-Olow
    Coping with Muscular Dystrophy: manual for analysis and categorizing of coping from interview data.1993Other (Other scientific)
  • 35.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Sundmark, Gunvor
    Wetterstrand, Johanna
    Upplevelser av att arbeta som personlig assistent.2001Report (Other academic)
  • 36.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Tang, Ping Fen
    Wadensten, Barbro
    Johansson, Camilla
    Wenneberg, Stig
    Workplace Distress and Ethical Dilemmas in Neuroscience Nursing: A qualitative study of Chinese nurses’ experience.2007In: 8th Quadrennial Congress of The European Association of Neuroscience Nurses (EANN), 2007Conference paper (Refereed)
  • 37.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Wadensten, Barbro
    Uppsala University.
    Encounters in close care relations from the perspective of personal assistants working with persons with severe disablility.2010In: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 18, no 2, p. 180-188Article in journal (Refereed)
    Abstract [en]

    Abstract In Sweden adults with major and sustainable disabilities can be granted publicly financed support in the form of personal assistance after assessment and decision-making in accordance with government rules. The purpose of the present study was to explore more deeply the encounters in close care relations between personal assistants and disabled persons of working age, as well as the prerequisites for and obstacles to the success of such encounters, this from the perspective of the personal assistants. Thirty-two personal assistants (22- to 55-year old) who worked for 32 persons with serious neurological diseases living at home were interviewed. The transcribed unstructured interviews were qualitatively analysed using latent content analysis. The analyses resulted in five main themes: Perceptive awareness, Entering into the other's role, Mutuality, Handling the relationship and Personal difficulties facing the assistant. These themes illustrated that a prerequisite for the encounter's being meaningful is that the assistant should be able to observe and understand the unique needs of the disabled person. The assistant must furthermore be able to put herself/himself into the other person's position. It is also important that the personal chemistry between the assistant and the disabled person should be good. Being able to share feelings and interests with the functionally impaired person provides the assistant with positive emotional confirmation of a good relationship. A distressing dilemma the assistant faces is that of distinguishing between the working relationship and the personal friendship. In this borderline area are found experiences, feelings and events that the assistant may view as negative or even unacceptable. This study contributes to the understanding of the complexity underlying the daily community care of disabled persons with an extensive need for care and assistance.

  • 38.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Wenneberg, Stig
    Coping with illness-related problems in persons with progressive muscular diseases: the Swedish version of the Ways of Coping Questionnaire.2002In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 16, no 4, p. 368-375Article in journal (Refereed)
    Abstract [en]

    One of the most widely used self-assessment inventories of coping is the Ways of Coping Questionnaire. The aims of the study were to describe coping with illness-related problems in persons with muscular diseases and to investigate the influence of demographic variables. Also, the reliability of the Swedish version of the Ways of Coping Questionnaire was to be evaluated. Forty-four persons with muscular dystrophy and 32 persons with postpolio syndrome, along with a comparison group of 214 students, completed the questionnaire. The findings of this study show that there are some different coping patterns in students as compared with persons with chronic disease. The coping strategy Distancing was used more and the strategy Accepting Responsibility used less frequently in the chronic disease groups and may be an expression of the inevitable physical limitations caused by the progressiveness of muscular dystrophy and postpolio syndrome. Furthermore, persons with muscular dystrophy also used less problem-focused coping in the form of Confrontive Coping and Planful Problem Solving when compared with the postpolio and student groups. In addition, women in the three groups employed the strategy of Seeking Social Support more often than did men. Regarding the psychometric properties of the Swedish version of the Ways of Coping Questionnaire, internal consistency was acceptable for the total score, but lower and not acceptable for several of the subscales. In the student group, but not in the chronic disease groups, there were low correlations between subscales, which indicate discriminative ability. More research is necessary to further investigate the reliability and validity of the Swedish version of the Ways of Coping Questionnaire before this instrument can be used routinely to assess coping patterns in patients with chronic disease.

  • 39.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Wenneberg, Stig
    Komplementära hälsometoder för patienter med kronisk sjukdom.2001In: Kongressrapport, Nationella forskarskolan i vård och omsorg, 2001Conference paper (Refereed)
  • 40.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Wideheim, Ann-Kristin
    Leva med hjärntumör i ett familjeperspektiv.2001In: Kongressrapport, Nationella forskarskolan i vård och omsorg, 2001Conference paper (Refereed)
  • 41. Alm, Anita
    et al.
    Fåhraeus, Christina
    Wendt, Lill-Kari
    Jönköping University, School of Health and Welfare, HHJ. Oral health.
    Koch, Göran
    Andersson-Gäre, Boel
    Jönköping University, School of Health and Welfare, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Birkhed, Dowen
    Body adiposity status in teenagers and snacking habits in early childhood in relation to approximal caries at 15 years of age2008In: International Journal of Paediatric Dentistry, ISSN 0960-7439, E-ISSN 1365-263X, Vol. 18, no 3, p. 189-196Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: The prevalence of overweight and obesity in children is steadily increasing in many countries. Dental caries and obesity are both multifactorial diseases and are associated with dietary habits.

    OBJECTIVE: The purpose of this study was to investigate the relationship between body weight status in adolescents and snacking habits in early childhood to approximal caries prevalence at 15 years of age.

    METHODS: This study is part of a series of surveys of oral health in children followed from the ages of 1 year to 15 years. Body adiposity status was estimated at 13.5-16.4 years using the International Obesity Task Force cut-off values [age-specific body mass index (isoBMI)]. Information about snacking habits in early childhood was collected from interviews conducted at 1 year and 3 years. Approximal caries information was obtained from bitewing radiographs at 15 years. Data related to isoBMI and approximal caries were available in 402 teenagers.

    RESULT: Adolescents with isoBMI > or = 25 (n = 64) had an approximal caries prevalence that was a mean of 1.6 times higher than those with isoBMI < 25 (n = 338) (4.64 vs. 2.94; P = 0.014). Furthermore, children's snacking habits at an early age were associated with approximal caries at 15 years.

    CONCLUSION: Overweight and obese adolescents had more approximal caries than normal-weight individuals. Moreover, the frequent consumption of snacking products during early childhood appears to be a risk indicator for caries at 15 years. Future preventive programmes should therefore include, on a multidisciplinary level, strategies to prevent and reduce both obesity and dental caries at an early age.

  • 42. Alm, Anita
    et al.
    Isaksson, Helen
    Fåhraeus, Christina
    Jönköping University, School of Health Science, HHJ. Oral health.
    Koch, Göran
    Andersson-Gäre, Boel
    Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work. Jönköping University, The Jönköping Academy for Improvement of Health and Welfare.
    Nilsson, Mats
    Birkhed, Dowen
    Wendt, Lill-Kari
    Jönköping University, School of Health Science, HHJ. Oral health.
    BMI status in Swedish children and young adults in relation to caries prevalence: BMI and caries prevalence2011In: Swedish Dental Journal, ISSN 0347-9994, Vol. 35, no 1, p. 1-8Article in journal (Refereed)
    Abstract [en]

    Overweight and obesity are increasing as health problems at global level. Dental caries and obesity are both multifactorial diseases and are associated with dietary habits. The aim of the present study was to investigate the relationship between body weight status and caries prevalence in an unselected population followed from pre-school years to young adulthood. The present investigation was designed as a longitudinal analysis of the association between overweight/obesity and dental caries in one population at 3, 6, 15 and 20 years of age. The result shows that adolescents (15 years) and young adults (20 years) who are overweight/obese had a statistically significantly higher caries prevalence than normal-weight young people. At 6 years of age, the odds (OR) of having caries among obese children are 2.5 times higher than the odds for caries among six-year-old children of normal weight (p = 0.04). At 3 years of age, no association between overweight/obesity and caries was found. To conclude, overweight and obese adolescents and young adults had more caries than normal-weight individuals. The present study emphasises the need for multidisciplinary approaches to change the lifestyle factors causing both overweight/obesity and dental caries.

  • 43. Almerud, S
    et al.
    Alapack, RJ
    Fridlund, Bengt
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Ekebergh, M
    Caught in an artificial split: a phenomenological study of being a caregiver in the technologically intense environment.2008In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 24, no 2, p. 130-136Article in journal (Refereed)
    Abstract [en]

    A symbiotic relationship exists between technology and caring, however, technologically advanced environments challenge caregivers. The aim of this study is to uncover the meaning of being a caregiver in the technologically intense environment. Ten open-ended interviews with intensive care personnel comprise the data. A phenomenological analysis shows that ambiguity abounds in the setting. The act of responsibly reading and regulating instruments easily melds the patient and the machinery into one clinical picture. The fusion skews the balance between objective distance and interpersonal closeness. The exciting captivating lure of technological gadgets seduces the caregivers and lulls them into a fictive sense of security and safety. It is mind-boggling and heart-rending to juggle 'moments' of slavish mastery and security menaced by insecurity in the act of monitoring a machine while caring for a patient. Whenever the beleaguered caregiver splits technique from human touch, ambiguity decays into ambivalence. Caring and technology become polarized. Everyone loses. Caregiver competence wanes; patients suffer. The intensive care unit should be technologically sophisticated, but also build-in a disclosive space where solace, trust, and reassurance naturally happen. Caring professionals need to balance state-of-the-art technology with integrated and comprehensive care and harmonize the demands of subjectivity with objective signs

  • 44. Almerud, S
    et al.
    Baigi, A
    Hildingh, C
    Jogre, J
    Lyrström, L
    Fridlund, Bengt
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Acute coronary syndrome: social support and coping ability on admittance.2008In: British Journal of Nursing, ISSN 0966-0461, Vol. 17, no 8, p. 527-531Article in journal (Refereed)
    Abstract [en]

    Aim: To compare social support and coping ability in acute coronary syndrome patients at the time of the cardiac event with a healthy community-based sample, with regard to age, sex, education and marital status. Method: The study comprised 241 patients and 316 healthy controls. The participants answered a self-administered questionnaire that included three well-established scales. Multiple logistic regression was used in the analysis to compare the health situation between the patients and controls. Results: Persons suffering from acute coronary syndrome rated emotional support significantly lower than the healthy controls. However, there were no differences between the two groups in terms of socio-demographic variables. Conclusion: This study indicates that social support may be a predictor of acute coronary syndrome.

  • 45. Almerud, Sofia
    et al.
    Alapack, Richard J
    Fridlund, Bengt
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Ekebergh, Margaretha
    Beleaguered by technology: care in technologically intense environments.2008In: Nursing Philosophy, ISSN 1466-7681, E-ISSN 1466-769X, Vol. 9, no 1, p. 55-61Article in journal (Refereed)
    Abstract [en]

    Modern technology has enabled the use of new forms of information in the care of critically ill patients. In intensive care units (ICUs), technology can simultaneously reduce the lived experience of illness and magnify the objective dimensions of patient care. The aim of this study, based upon two empirical studies, is to find from a philosophical point of view a more comprehensive understanding for the dominance of technology within intensive care. Along with caring for critically ill patients, technology is part of the ICU staff's everyday life. Both technology and caring relationships are of indispensable value. Tools are useful, but technology can never replace the closeness and empathy of the human touch. It is a question of harmonizing the demands of subjectivity with objective signs. The challenge for caregivers in ICU is to know when to heighten the importance of the objective and measurable dimensions provided by technology and when to magnify the patients' lived experiences, and to live and deal with the ambiguity of the technical dimension of care and the human side of nursing.

  • 46. Almerud Österberg, S
    et al.
    Baigi, A
    Bering, C
    Fridlund, Bengt
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Knowledge of heart disease risk in patients declining rehabilitation2010In: British Journal of Nursing, Vol. 19, no 5, p. 288-293Article in journal (Refereed)
    Abstract [en]

    Background:

    Participation in cardiac rehabilitation programmes (CRPs) allows patients to increase their knowledge of the importance of established risk factors to help them maintain healthy lifestyle changes after coronary heart disease (CHD).

    Aim: To explore perceived importance and knowledge of known risk factors for CHD among non-attendees in CRPs.

    Method: Consecutive non-attendees in CRPs (n=106) answered a questionnaire focusing on patients' attitudes towards risk factors and cardiac rehabilitation.

    Results: The non-attendees lacked knowledge of non-physical characteristics such as depression and social isolation. They also had poor knowledge about biological causes and hereditary factors. However, those who said they knew enough about CHD to prevent recurrent illness did have sufficient knowledge about the established risk factors.

    Conclusion: There is a lack of knowledge about social isolation and depression and their importance in the development of CHD among the non-attendees. They show greater knowledge about biological risk factors than the importance of companionship, joy and happiness. CHD and loneliness are intimately correlated, so creating a sense of belonging must not be underestimated as a measure to prevent CHD.

  • 47. Alm-Roijer, C
    et al.
    Fridlund, Bengt
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Stagmo, M
    Erhardt, L
    Pivotal factors for successful implementation of secondary prevention actions in patients with coronary heart diseaseIn: AAMA. E-pubArticle in journal (Refereed)
  • 48.
    Andersson, Bodil T.
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    Fridlund, Bengt
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Elgán, C
    Axelsson, ÅB
    Radiographers' areas of professional competence related to good nursing care2008In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 22, no 3, p. 401-409Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Radiographers' ability and competence is a matter of vital importance for patients. Nursing care is an integral part of the radiographer's work. The demand for high competence in clinical activities has increased in diagnostic radiology and has had an impact on the development of the profession.

    AIM: The aim was to describe the radiographer's areas of professional competence in relation to good nursing care based on critical incidents that occur in the course of radiological examinations and interventions.

    METHOD: A descriptive design with a qualitative approach, using the Critical Incident Technique was employed. Interviews were conducted with a strategic sample of registered radiographers (n = 14), based at different hospitals in Sweden.

    ETHICAL ISSUES: The appropriate ethical principles were followed. All the participants provided informed consent, and formal approval for conducting the research was obtained according to national and local directives.

    RESULTS: The data analysis resulted in two main areas; direct and indirect patient-related areas of competence, which describe the radiographers' skills that either facilitate or hinder good nursing care. In the direct patient-related area of competence, four categories emerged, which illustrate good nursing care in the patient's immediate surroundings. In the indirect patient-related area of competence, four categories illuminated good nursing care that is provided without direct contact with the patient.

    CONCLUSIONS: The study highlights the different areas of the radiographer's unique professional competence. The findings provide insight into the radiographer's profession, on one hand as a carer and on the other as a medical technologist as well as highlighting the importance of each role. The radiographer's work encompasses a variety of components--from caring for the patient to handling and checking the technical equipment.

  • 49.
    Andersson Gäre, Boel
    et al.
    Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work. Jönköping University, The Jönköping Academy for Improvement of Health and Welfare.
    Fasth, Anders
    Presentation, clinical features and special problems in children2010In: Rheumatology / [ed] Marc C. Hochberg, Alan J. Silman, Josef S. Smolen, Michael E. Weinblatt, Michael H. Weisman, London: Mosby Elsevier , 2010, 5Chapter in book (Refereed)
  • 50.
    Andersson-Gäre, Boel
    Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Barnreumatologi - en specialitet under stark utveckling2008In: Barnreumatologi / [ed] S. Hagelberg et al., Lund: Studentlitteratur , 2008, p. 11-20Chapter in book (Other academic)
1234567 1 - 50 of 482
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