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  • 1.
    Aaby Orellana, Tanja
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Kirkegaard, Betina
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Sjuksköterskors upplevelser av att implementera personcentrerad omvårdnad i slutenvården: -         En Empirisk Studie2016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Person-centred care (PCC) is when the person seeking care get’s involved in their care and are seen as more then their illness or ailment. PCC as a concept began in dementia care, but is now the approach that most healthcare institutions strive after. To achieve the improved care that PCC can bring, there is need for a well- planned and clear implementation plan from the management.

    Aim: To describe the nursing staffs experience of implementing person-centred care as a work procedure in inpatient care.

    Method: An inductive qualitative study where eleven interviews was completed. Eight interviews were strategically chosen and a content analysis was carried out.

    Result: There is hope among the participants that implementation will bring a better and safer care, but also concerns about fear of change among the healthcare staff and increased workloads. Participants experience that PCC will place higher demans on the healthcare staff, especially nurses, regarding time, knowledge and communication skills.

    Conclusion: To provide the best care, there has to be dedicated and competent staff who also have the support and understanding from the management. Despite the obstacles that seem to exist, there is a positive spirit among the nurses in relation to the implementation of person-centred care.  There is hope that person-centred care, among other things, will increase participation that could lead to shorter hospital stays and risk of needing to seek care again short after being discharged from the hospital. Ultimately it provides a better care in the whole for the individual person seeking care.

  • 2. Aberg, Anna Cristina
    et al.
    Sidenvall, Birgitta
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Ageing - living conditions and health.
    Hepworth, Mike
    O'Reilly, Karen
    Lithell, Hans
    On loss of activity and independence, adaptation improves life satisfaction in old age: a qualitative study of patients' perceptions.2005In: Quality of Life Research, ISSN 0962-9343, Vol. 14, no 4, 1111-1125 p.Article in journal (Refereed)
  • 3.
    Aboutouk, Rana
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Forsberg, Fredrik
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Erfarenheter av egenvård hos personer med diabetes typ 22017Independent thesis Basic level (degree of Bachelor), 180 HE creditsStudent thesis
    Abstract [sv]

    Sammanfattning

    Bakgrund: Antalet personer med diabetes Mellitus typ 2 växer snabbt i världen. Egenvård krävs för att bromsa progressionen av DMT2 och förhindra eller fördröja komplikationer. Många personer med DMT2 sköter emellertid inte sin egenvård enligt rekommendationer.

    Syftet: Att beskriva erfarenheter av egenvård hos personer med DMT2.

    Metod: Med hjälp av Fribergs femstegsmodell gjordes en litteraturöversikt av elva kvalitativa studier om erfarenheter av egenvård hos personer med DMT2.

    Resultat: Att integrera egenvården i vardagen är en utmaning. Familjen och vårdpersonalen har en nyckelroll och kan utgöra såväl ett hinder som ett stöd för egenvården. Andra personer med diabetes upplevs som ett entydigt positivt stöd. Att acceptera sjukdomen är en förutsättning för att kunna bedriva egenvården. Brist på förståelse och okunskap kring DMT2 utgör ett hinder mot egenvård. Personliga mål och feedback är avgörande för motivationen.

    Slutsatser: Socialt stöd, acceptans av sjukdomen, positiv feedback och individualiserad information upplevs underlätta egenvård.

  • 4.
    Abyan, Luul
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Gustavsson, Ellinor
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Unga vuxnas upplevelser av att leva med diabetes typ-12016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Summary

    Background: Diabetes type-1 is an autoimmune disease and one of the most common chronic diseases in Sweden. Diabetes type-1 can be developed at any age, but usually appears during childhood and adolescence. Living with the disease implicates being responsible for their self-care.

    Aim: The aim of the study was to describe the young adult’s experiences of living with diabetes type-1, based on Orem’s self-care deficit nursing theory.

    Method: This study is a qualitative study with deductive approach. The study is based on three blogs. Orem’s self-care deficit nursing theory was used in this study.

    Results: The relationship with family and other diabetics are perceived to be a great support and can serve as an aid in self-care. Self-care can be difficult to achieve and sometimes they can experience that planning and structure be in vain. According to the individuals, it is important not to let the disease limit the social life. There is a major ignorance of diabetes type-1 in the society which leads to insecurity and lack of trust. Despite an environment of supportive people, individuals with diabetes type-1 can experience loneliness.

    Conclusion: An insight of young adult’s experiences of living with diabetes type-1 is important for the nurse because of the ability to reduce conflicts between nurse and patient and thereby improve conditions for a successful self-care.

  • 5.
    Agren, Susanna
    et al.
    Department of Medical and Health Sciences, Linköping University, 581 83 Linköping, Sweden and Department of Cardiothoracic Surgery, Linköping University, Linköping, Sweden.
    Ivarsson, Bodil
    Department of Cardiothoracic Surgery, Clinical Sciences, Lund University, 221 85 Lund, Sweden and Department of Cardiothoracic Surgery/THAI, Sk˚ane University Hospital and Medical Services, 221 85 Lund, Sweden.
    Rönning, Helén
    Jönköping University, School of Health Science, HHJ. ADULT. Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    The Unsteady Mainstay of the Family: Now Adult Children's Retrospective View on Social Support in Relation to Their Parent's Heart Transplantation.2014In: Nursing Research and Practice, ISSN 2090-1429, E-ISSN 2090-1437Article in journal (Refereed)
    Abstract [en]

    The needs for support among children with a seriously ill parent, who is waiting for heart transplantation, are unknown today. The aim was to describe now adult children's experiences of social support in relation to a parent's heart transplant during childhood. Nine females and four males were interviewed. The median age for the children was 18 at the transplantation and their parents had been ill before for 18 months (median) and on waiting list for 161 days (mean). Three categories emerged: health care professionals' approaches, family and friends' approaches, and society approaches. Our results show that there was lack of support for children of heart transplantation patients. Support in the shape of information was in most cases provided by the sick or healthy parent. It is of great clinical importance to develop psychosocial support programs for children with a seriously ill parent waiting for heart transplantation (before, during, and after surgery).

  • 6.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Assessment of coping and quality of life in adults with neuromuscular diseases.1998In: European Congress on Evaluation of Rehabilitation in a Lifelong Course, 1998Conference paper (Refereed)
  • 7.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Consequences of Muscular Dystrophy: Impairment, Disability, Coping and Quality of Life.1994Doctoral thesis, monograph (Other scientific)
  • 8.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Coping with Long-term Neurological illness and the Implications for Nursing.2005In: Journal of neuroscience nursing, ISSN 0888-0395, Vol. 37, no 6, 301-302 p.Article in journal (Refereed)
  • 9.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Coping with Long-term Neurological Illness and the Implications for Nursing Interventions.2005In: 9th Quadrennial World Federation of Neuroscience Nurses, 2005Conference paper (Refereed)
  • 10.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science.
    Coping with Neuromuscular disease and the Implications for Interventions2008In: The First International Symposium on Psychosocial Aspects of Neuromuscular Disorders, Bilbao, June 20-21 2008: University of Deusto, Bilbao , 2008, 1- p.Conference paper (Refereed)
    Abstract [en]

    Coping with Neuromuscular disease and the Implications for Interventions

    The lecture is based on results from three theses and about 25 scientifically articles about the plight of the patient with muscular dystrophy (MD), and the patients’ ways of coping with illness-related problems from a psychosocial perspective. MD is a group of inherited disorders characterised by muscular weakness caused by muscle wasting. Three subgroups are distinguished in our research: one group with different types of proximal MD and the other two groups characterized chiefly by distal weakness. The research was to elucidate how persons with muscular dystrophy experience their everyday life over a ten years period. The research includes four data collections with qualitative and quantitative methods. The data was selected in three different county councils in Sweden.

    The persons with MD described the change from being independent to being an individual in need of assistive devices and/or personal support to manage activities of every day life. Besides muscular weakness the persons have the strain it means to have a hereditary disease. The deterioration in a decennium was mainly with regard to ambulation. The number of persons walking without assistive devices and working has almost been halved. They experienced periods of sorrow due to losses of independence, control, status and social roles and the loss of one’s identity as a healthy person. The sorrow connecting with repeated losses are in the literature designate as chronic or episodic sorrow. Also, in the lecture the patients’ illness trajectory were described by a model of Sullivan (1994) into four dimensions in order to increase the understanding of what it means to live with muscular dystrophy.

    The aim of interventions is to support the patient’s appropriate ways of coping as Problem-focused coping/Searching for a solution, Fighting spirit/Struggling, Re-appraising of life values, Maintaining hope, Social comparison, Laughing and joking  and Caring about self.

  • 11.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Experiences of loss and chronic sorrow in person with neurological disorders.2001In: 8th World Federation of Neuroscience Nurses Congress, 2001Conference paper (Refereed)
  • 12.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Experiences of loss and chronic sorrow in person with neurological disorders.2001In: 8th World Federation of Neuroscience Nurses Congress, 2001Conference paper (Refereed)
  • 13.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Experiences of Loss and Chronic Sorrow in Persons with Neurological disorders.2004In: The First Affiliated Hospital of Kunming Medical College, 2004Conference paper (Refereed)
  • 14.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Experiences of loss and chronic sorrow in persons with severe chronic illness2007In: Journal of Clinical Nursing, ISSN 0962-1067, Vol. 16, no 3A, 76-83 p.Article in journal (Refereed)
    Abstract [en]

    Aims and objectives. The aims of the present study were to describe losses narrated by persons afflicted with severe chronic physical illness and to identify the concomitant occurrence of chronic sorrow. Background. Reactions connected with repeated losses are referred to in the literature as chronic sorrow, which has recently been described in conjunction with chronic illness. Design. A qualitative study with an abductive approach of analysis, including both inductive and deductive interpretations. Method. The study is based on 30 persons of working age with average disease duration of 18 years. The average age was 51 years. All of the persons had personal assistance for at least three months because of considerable need for help in daily life due to physical disability. Each person was interviewed twice. There was also an independent assessment of the deductive results concerning chronic sorrow. Results. The inductive findings show that all persons had experienced repeated physical, emotional and social losses. Most common were 'Loss of bodily function', 'Loss of relationship', 'Loss of autonomous life' and 'Loss of the life imagined'. 'Loss of identity' included the loss of human worth, dignity and a changed self-image. In addition, the deductive findings suggest that chronic sorrow exists in the study population. Sixteen of 30 participating subjects were assessed by both assessors to be in a state of chronic sorrow and there was an especially high agreement with respect to one criterion of chronic sorrow 'Loss experience, ongoing or single event' (28 of 30 subjects). Conclusions. This study shows that persons with severe chronic illness often experience recurring losses. These experiences are consistent with the phenomenon of chronic sorrow. Relevance to clinical practice. Knowledge of the existence of chronic sorrow in persons with chronic illness will enable nurses to support these persons in a more sensitive and appropriate way.

  • 15.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science.
    Integrating improvement learning into health professional educational curricula2008In: International Forum on Quality Improvement in Healthcare, France, April 24 2008: International Forum on QI , 2008, 1- p.Conference paper (Refereed)
    Abstract [en]

    We all need to start where we are and also wanting to go further all the time. This is the essence in quality improvement. The leader and the teachers must own this attitude themselves in order to have the ability to be trustworthy for the students. There is evidence in the literature about the impact of education on the professional attitude and role. This means that it is important to work with better professional development for better outcomes in the faculty.

    One starting point for us in the planning of our different programs are that improvement knowledge will be a streak through the whole education in order to establish a professional attitude of daily inspiration to produce the best practise. We have applied all curricula to Boologna declaration and in this system progression in learning is a key point. We have four levels in the basic education (3-years education which lead to Bachelor degree) where we start to introduce 1) Concepts and models in health improvement. Then let our students make a 2) Personal improvement in their everyday life. Later in the education we teach about 3) Evidence practise and systematic literature reviews. Finally the students are 4) Making health improvements in collaboration with the staff during one clinical education.

    All educational programmes on basic level since 2007 include aim descriptions about quality improvement. The aim of the learning is to have the competence to initiate and participate in work about health care improvements.

    Finally, besides the mentions aspects in improvement education there are some other factors that needs for better system performance.

  • 16.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science.
    Intentional Partnerships—Creating New Partnerships: A national and international model2008In: Quality and Safety in Nursing Education: A Clinical Microsystems Approach, Chicago, USA: The Joint Comission , 2008, 6- p.Conference paper (Refereed)
    Abstract [en]

    Since one of the aims of this meeting is to create a strategy for the participants to connect and share experiences post-conference I will start by giving a very brief account of Jönköping University and the School of Health Sciences, this in order to give you a sense of the school as a possible partner for collaboration. Then I will describe how teachers work to increase knowledge with regard to health care improvement within the nursing program. Thereafter I will talk about a research project and relate this to what we can learn about interprofessional education. The basic values regarding health care improvement described by Paul Batalden and his colleagues are central to our present development. We share the theoretical assumptions concerning the Clinical Microsystem and the view of redesigning health care education in order to produce the best care for the patient and his/her family. So within our organization both teachers and students — like nurses — have two jobs, one of which is to bring about improvement. So we have started the process where the educators need to change their teaching for the sake of better patient outcomes, better system performance, and better professional development. This means communicating not only the existing evidence-based knowledge but also improvement knowledge which involves a substantial shift in our idea of the work of health care — a challenging task that can benefit from the use of a wide variety of tools and methods. A key concern for us in the planning of our different programs is that the improvement of knowledge shall permeate the education and contribute to establishing a professional attitude marked by daily inspiration to produce the best care. The basic education involves four stages. First there is an introduction to concepts and models in health care improvement. This content is in the first semester.  Second the students’ are making a personal improvement in their everyday life. The students apply PDSA-cycle for improvement of an issue, commonly their time-table for studies, time spending for eating breakfast in the morning or eating habits in general. The third stage involves evidence-based nursing and systematic literature reviews and in the fourth stage, the students make health care improvements in collaboration with the staff during a clinical training period. The nurses at the clinic formulate the area of improvement. Then the students work systematically in pairs to collect data and the results are reported to the nurses. The latter stage is a new content in nursing education but we know from occupational therapy that the staff appreciated these works and the results were in most cases used by the staff in their job.

     

    The overall aim of the research project “Bridging the gaps” is to generate evidence about the process and outcome of clinical work within the area of quality improvement. The project contributes to an advanced environment for learning and innovation, research and development in the field of health-care management and improvement. There are 14 doctoral students at the research school, who takes part in the research project. Three of them are nurses and doctoral students at the School of Health Sciences. All PhD students have to take two compulsory courses, one is named “Bridging the gaps — a multidisciplinary research field” and the other is named “Interactive Research Methodology”. The Microsystem as a theoretical model is included in the mention research course “Bridging the gaps” and in each doctoral student’s research proposal. The PhD students shall work together with health-care staff by way of an interactive research method. This means that there is an integration of research and practice. The PhD students and the health-care staff are working together throughout the project. The staff is involved at every stage, from designing the improvement work, formulating the research questions to reporting the results. Research with this methodology generates knowledge of great relevance for clinical practice.

  • 17.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Living with Neurological Disorders: Illness Experiences, Coping and Coping Resources.2004In: WENR-conference, 2004Conference paper (Refereed)
  • 18.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    Lära tillsammans: ett rehabiliteringsprogram för personer med avancerad multiple skleros och deras personliga assistenter.1999Report (Other academic)
  • 19.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Mänskliga resurser och empowerment vid kronisk sjukdom.2002In: Kongress Lust & Kunskap, 2002Conference paper (Refereed)
  • 20.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Nursing rehabilitation programme and its effect on patients' coping and quality of life.1997In: 7th Quadrennial Congress, 1997Conference paper (Refereed)
  • 21.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Personal assistance for patients living with a severe neurological disorder.2006In: Journal of Neuroscience Nursing, ISSN 0888-0395, Vol. 38, no 3, 183-193 p.Article in journal (Refereed)
    Abstract [en]

    Patients with neurological diseases increasingly are being cared for at home. The purpose of this study was to describe stressful everyday experiences in connection with neurological disorders, to learn how people cope with such experiences, and gain knowledge about coping resources. Twenty-seven persons receiving personal assistance were interviewed twice at home. The 54 interviews were subjected to inductive content analysis. The persons encountered many problems in everyday life and usually handled them by means of acceptance, avoidance, practical problem solving, and reappraisal. Dependence on personal assistance gave rise to a sense of helplessness, but it was also the major coping resource. Nurses can improve home care by giving instruction and guidance to persons working as personal assistants.

  • 22.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Project neuromuscular diseases in Sweden.1989In: EAMDA-kongress., 1989Conference paper (Refereed)
  • 23.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Triangulering och multimetod - i teori och forskningspraktik.1995In: Kongressrapport från Hälso- och Sjukvårdsstämman, 1995Conference paper (Refereed)
  • 24.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Anshelm, Margareta
    Bedömning av livskvalitet vid svåra sjukdomstillstånd - vem har tolkningsföreträde.2001In: Kongressrapport, Nationella forskarskolan i vård och omsorg, 2001Conference paper (Refereed)
  • 25.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Anshelm, Margareta
    Förluster och kronisk sorg vid neurologiska sjukdomstillstånd.2001In: Kongressrapport, Nationella forskarskolan i vård och omsorg, 2001Conference paper (Refereed)
  • 26.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Anshelm, Margareta
    Göra det bästa av det sämsta: rörelsehindrades syn på sin livssituation2000Report (Other academic)
  • 27.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Anshelm, Margareta
    Livskvalitet vid svåra kroniska sjukdomar och skador. Sett ur den funktionshindrades, anhöriges och personliga assistentens synvinkel.2001In: Kongressrapport från Hälso- och Sjukvårdsstämman, 2001Conference paper (Refereed)
  • 28.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Carlsson, Catrin
    Att visa upp sin värld: hur personer med stora varaktiga funktionshinder uppfattar sin livssituation relaterat till de etiska principerna i LSS2002Report (Other academic)
  • 29.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Casco, Marie
    Vara synlig men ändå osynlig: personliga assistenters vardag2000Report (Other academic)
  • 30.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Davidsson, Solveig
    Tre kärnfulla berättelser: Anhörigas uppfattningar om vad assistans innebär för den funktionshindrade och hur de etiska värdegrunderna i LSS tillämpas.2000Report (Other academic)
  • 31.
    Ahlström, Gerd, Gerd
    Jönköping University, School of Health Science. Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    The Development of Nursing in Modern Society2009Conference paper (Other academic)
  • 32.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Gunnarsson, Lars-Gunnar
    Disability and quality of life in individuals with muscular dystrophy.1996In: Scandinavian Journal of Rehabilitation Medicine, ISSN 0036-5505, Vol. 28, no 3, 147-157 p.Article in journal (Refereed)
    Abstract [en]

    In the county of Orebro, Sweden, 32 individuals with myotonic disorders and 25 with other types of muscular dystrophy were examined. Disability was assessed with functional tests and standardized observations of muscle function (mainly based on those proposed by Dr. Brooke), a new self-administered questionnaire regarding the Activities of Daily Living (ADL) and the ADL staircase (based on Katz ADL index). The results of the different tests of disability were highly correlated. The Sickness Impact Profile and the Kaasa test were used for assessing the quality of life, and no significant differences were found between the groups of muscular dystrophy. In an explanatory factor analysis three main factors of disability were found. The factors "walk and move" and "finger function" were fair to good associated with the quality of life. This study offers an approach for research on the consequences of muscular dystrophy using established as well as new methods.

  • 33.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Gunnarsson, Lars-Gunnar
    Intervenering för bättre livskvalitet.1997In: Rapport från forskningskonferensen Människa, handikapp, livsvillkor: Örebro den 9 och 10 april 1997, Örebro: Psykiatri och habilitering, Örebro läns landsting , 1997Conference paper (Refereed)
  • 34.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Gunnarsson, Lars-Gunnar
    Rehabilitering för bättre livskvalitet hos vuxna med muskeldystrofi1997Report (Other academic)
  • 35.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Gunnarsson, Lars-Gunnar
    Kihlgren, Annika
    Arvill, Anders
    Sjödén, Per-Olow
    Respiratory function, electrocardiography and quality of life in individuals with muscular dystrophy.1994In: Chest, ISSN 0012-3692, E-ISSN 1931-3543, Vol. 106, no 1, 173-179 p.Article in journal (Refereed)
    Abstract [en]

    All individuals in a Swedish county afflicted with any type of hereditary muscular dystrophy (MD) were identified and 57 (85 percent) of eligible individuals in the age range 16 to 64 were included in the study. Respiratory disturbances were estimated by means of spirometry and analysis of arterial blood gases, and 58 percent yielded abnormal results on at least one of these examinations. Elevated PCO2 was found more commonly than reduced forced vital capacity (FVC) and there was a moderate association between these parameters. Respiratory symptoms, most commonly breathlessness, were encountered in 79 percent. Pathologic ECG recordings were found in 21 individuals (37 percent). Conduction disturbances and affection of the myocard were most frequent in myotonic dystrophy. Quality of life was assessed by means of the Sickness Impact Profile instrument and the Kaasa test. The results showed that quality of life was significantly related to FVC and to the symptom of abnormal fatigue. Respiratory and cardiac parameters showed a greater number of significant correlations with measures of functional ability than with subjective well-being.

  • 36.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Gunnarsson, Lars-Gunnar
    Kihlgren, Annika
    Arvill, Anders
    Sjödén, Per-Olow
    Respiratory function, electrocardiography and quality of life in individuals with muscular dystrophy.1994In: EAMDA, 1994Conference paper (Refereed)
  • 37.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Gunnarsson, Lars-Gunnar
    Leissner, Per
    Sjödén, Per-Olow
    Epidemiology of neuromuscular diseases, including the postpolio sequelae, in a Swedish county.1993In: Neuroepidemiology, ISSN 0251-5350, E-ISSN 1423-0208, Vol. 12, no 5, 262-269 p.Article in journal (Refereed)
    Abstract [en]

    The epidemiology of neuromuscular diseases was studied in the county of Orebro, Sweden (study population 270,000). Several different sources of data were utilized, compared and validated. On the prevalence of day (January 1, 1988) 474 patients were identified. The rate per 100,000 population was 92 for the postpolio sequelae (PPS) and 84 for the other neuromuscular diseases (motor neuron disease 9, hereditary neuropathies 9, myoneural disorders 16, myotonic disorders 19, muscular dystrophies 20 and myositis 11). Of the patients with the PPS, 80% reported late-onset symptoms. On the basis of an expanded survey including all medical records in one health care district, the prevalence of the PPS was estimated to be 186/100,000 population.

  • 38.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Hansson, Birgitta
    A model for supporting the patient's coping with chronic illness.2000In: Vård i Norden, ISSN 0107-4083, Vol. 20, no 3, 34-38 p.Article in journal (Refereed)
  • 39.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Karlsson, Ulf
    Disability and quality of life in individuals with postpolio syndrome.2000In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 22, no 9, 416-422 p.Article in journal (Refereed)
    Abstract [en]

    PURPOSE: The purpose of the study is to investigate disability and quality of life in individuals with the characteristic symptoms of postpolio syndrome. METHOD: Disability is assessed by means of the self-report activities of daily living instrument, and quality of life by means of Kaasa's questionnaire and the quality of life profile. RESULTS: The 39 subjects have on average lived with polio sequelae for 52 years. Their main difficulties are with moving, lifting and carrying. This means restricted mobility, sedentary activities and a need to prioritize. Half of them feel that polio has lessened their possibilities in life, and a quarter have still not accepted the limitations polio has involved. Nevertheless the majority report a high level of psychosocial well-being, and almost a quarter say that living with polio has meant personal development and strength. We found a significant correlation between on the one hand disability with regard to ambulation, arm strength and finger strength on the self-report ADL, and on the other hand the number of negative problems on the quality of life profile (0.33-0.45). CONCLUSION: The latter instrument needs further testing before its validity can be determined with certainty.

  • 40.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Klinkert, Pia
    Den svåra balansgången: personliga assistenters möjligheter att tillämpa de etiska värdegrunderna i LSS2001Report (Other academic)
  • 41.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Lindvall, Björn
    Wenneberg, Stig
    Gunnarsson, Lars-Gunnar
    A comprehensive rehabilitation programme tailored to the needs of adults with muscular dystrophy.2006In: Clinical Rehabilitation, ISSN 0269-2155, Vol. 20, no 2, 132-141 p.Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: To assess if activities of daily living (ADL), coping and quality of life could be improved in adults with muscular dystrophy through a comprehensive rehabilitation programme. DESIGN: Quasi-experimental, controlled clinical study comparing patients with similar age and disease aspects. SETTING: Two different counties in Sweden, being either study or control setting. SUBJECTS: The study group comprised 37 adults (21 women, 16 men; mean age 50 years), while the control group comprised 39 people (25 women, 14 men; mean age 46 years). INTERVENTIONS: Four rehabilitation sessions tailored to different medical, physical and psychosocial needs of the patients, comprising a total of 10 days over a period of 18 months. MAIN MEASURES: ADL, the Mental Adjustment to Cancer Scale measuring coping strategies, the Sickness Impact Profile measuring health-related quality of life, the Hospital Anxiety and Depression Scale, and the Psychosocial Well-being Questionnaire. RESULTS: No significant differences were found between groups with regard to the outcome measures. There was increased dependence on others in ADL after 18 months in both groups, but it was more pronounced in the control group. Furthermore, a clear trend was observed in the data with regard to coping patterns, the control group using more coping strategies such as 'Helplessness/hopelessness' (P= 0.057), 'Anxious preoccupation' (P = 0.085) and 'Fatalistic' (P= 0.073) when being compared to the study group. CONCLUSIONS: No apparent effects on ADL were found from the rehabilitation programme, although there was a tendency of reduction of maladaptive coping patterns in the study group. This initial study may provide the rationale and basis for a randomized controlled trial.

  • 42.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Sjöden, Per-Olow
    Coping with illness-related problems and quality of life in adult individuals with muscular dystrophy.1996In: Journal of Psychosomatic Research, ISSN 0022-3999, E-ISSN 1879-1360, Vol. 41, no 4, 365-376 p.Article in journal (Refereed)
    Abstract [en]

    Illness-related problems and coping were examined in 60 individuals with muscular dystrophy (MD) identified in a population survey of the county of Orebro, Sweden. In addition, the extent to which coping is related to quality of life (QoL) was investigated as was the impact of impairment and disability on the relation between coping and QoL. Emotion/appraisal-focused coping was utilized by respondents more than twice as often as problem-focused coping. High QoL was significantly correlated to "Stoic acceptance" and "Tried alternative treatment." Low QoL was associated with "Helpless/hopeless," "Anxious preoccupation," "Minimization," "Social comparison," "Establishment of control over everyday life," "Performs the task with the aid of an appliance" and "Accepts help or leaves it to others." When measures of impairment and disability were included in the analysis, the impact of these measures explained the association between coping and physical QoL by 16% to 43%.

  • 43.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Sjödén, Per-Olow
    Assessment of coping with muscular dystrophy: a methodological evaluation.1994In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 20, no 2, 314-323 p.Article in journal (Refereed)
    Abstract [en]

    There is no published research on coping with muscular dystrophy among adults. In the present study, two questionnaires, the Reaction to the Diagnosis of Cancer Questionnaire (RDCQ) and the Mental Adjustment to Cancer scale (MAC), were modified in order to measure coping with muscular dystrophy (MD). A total of 60 people (16-64 years) with diagnosed MD answered the questionnaires in two interviews including semi-structured questions. The replies to these questions were analysed by two independent judges on the basis of the RDCQ and MAC categories for coping. The purpose was twofold: to investigate if cancer-coping categories could be used for the classification of interview answers concerning coping with MD, and to gain knowledge about specific coping with MD. Analysis indicated that 82% of replies to semi-structured questions concerned with emotion/appraisal-focused coping with MD can be described by means of RDCQ and MAC categories. Eight new categories were developed to classify the remaining 18%: Anticipation, Creation of new life values, Minimization, Establishment of control over everyday life, Secretiveness, Fear, Social comparison and Coping with heredity. In addition, 997 replies were classified to represent problem-focused coping. The judges reached good agreement with respect to the proportions of replies in the respective coping categories. However, kappa (kappa) values were within the range of fair to good agreement.

  • 44.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Sjödén, Per-Olow
    Coping with Muscular Dystrophy: manual for analysis and categorizing of coping from interview data.1993Other (Other scientific)
  • 45.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Sundmark, Gunvor
    Wetterstrand, Johanna
    Upplevelser av att arbeta som personlig assistent.2001Report (Other academic)
  • 46.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Tang, Ping Fen
    Wadensten, Barbro
    Johansson, Camilla
    Wenneberg, Stig
    Workplace Distress and Ethical Dilemmas in Neuroscience Nursing: A qualitative study of Chinese nurses’ experience.2007In: 8th Quadrennial Congress of The European Association of Neuroscience Nurses (EANN), 2007Conference paper (Refereed)
  • 47.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Wenneberg, Stig
    Coping with illness-related problems in persons with progressive muscular diseases: the Swedish version of the Ways of Coping Questionnaire.2002In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 16, no 4, 368-375 p.Article in journal (Refereed)
    Abstract [en]

    One of the most widely used self-assessment inventories of coping is the Ways of Coping Questionnaire. The aims of the study were to describe coping with illness-related problems in persons with muscular diseases and to investigate the influence of demographic variables. Also, the reliability of the Swedish version of the Ways of Coping Questionnaire was to be evaluated. Forty-four persons with muscular dystrophy and 32 persons with postpolio syndrome, along with a comparison group of 214 students, completed the questionnaire. The findings of this study show that there are some different coping patterns in students as compared with persons with chronic disease. The coping strategy Distancing was used more and the strategy Accepting Responsibility used less frequently in the chronic disease groups and may be an expression of the inevitable physical limitations caused by the progressiveness of muscular dystrophy and postpolio syndrome. Furthermore, persons with muscular dystrophy also used less problem-focused coping in the form of Confrontive Coping and Planful Problem Solving when compared with the postpolio and student groups. In addition, women in the three groups employed the strategy of Seeking Social Support more often than did men. Regarding the psychometric properties of the Swedish version of the Ways of Coping Questionnaire, internal consistency was acceptable for the total score, but lower and not acceptable for several of the subscales. In the student group, but not in the chronic disease groups, there were low correlations between subscales, which indicate discriminative ability. More research is necessary to further investigate the reliability and validity of the Swedish version of the Ways of Coping Questionnaire before this instrument can be used routinely to assess coping patterns in patients with chronic disease.

  • 48.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Wenneberg, Stig
    Komplementära hälsometoder för patienter med kronisk sjukdom.2001In: Kongressrapport, Nationella forskarskolan i vård och omsorg, 2001Conference paper (Refereed)
  • 49.
    Ahlström, Gerd
    et al.
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Wideheim, Ann-Kristin
    Leva med hjärntumör i ett familjeperspektiv.2001In: Kongressrapport, Nationella forskarskolan i vård och omsorg, 2001Conference paper (Refereed)
  • 50.
    Aidemark, Jan
    et al.
    Linnéuniversitetet.
    Askenäs, Linda
    Linnéuniversitetet.
    Mårtensson, Jan
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. ADULT.
    Strömberg, Anna
    Linköpings universitet.
    Challenges for heart failure patients’ self-care systems – analysis of patients’ needs2014In: Procedia Technology - Elsevier, ISSN 2212-0173, E-ISSN 2212-0173, Vol. 16, 1256-1264 p.Article in journal (Refereed)
    Abstract [en]

    Self-care is important for heart failure patients. However, what are the views of patients on their situation when it comes to realizing self-care? The aim of the paper is to investigate the self-care needs of HF patients, by understanding the issues they embrace in their self-care processes. In this paper we make a review of 17 interviews and make a classification of what the needs are for possible information technology support systems. Based on the analysis of these interviews, we identify the diversity of needs in support of activities related to different background conditions and the dynamics of change of learning and changes in the heart failure condition. The contribution of the paper is a framework for understanding the diversity of needs and the specific situations of this group of patients.

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