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  • 1.
    Jørgensen, Lene Bastrup
    et al.
    Aarhus University, Denmark.
    Mikkelsen, Lone Ramer
    Regional Hospital Silkeborg, Center for Planned Surgery, Denmark.
    Noe, Bodil Bjørnshave
    Regional Hospital Herning, Center for Research and Education, Denmark.
    Vesterby, Martin
    Aarhus University, Denmark.
    Uhd, Maria
    Regional Hospital Silkeborg, Center for Planned Surgery, Denmark.
    Fridlund, Bengt
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. ADULT.
    The psychosocial effect of web-based information in fast-track surgery2017In: Health Informatics Journal, ISSN 1460-4582, E-ISSN 1741-2811, Vol. 23, no 4, p. 304-318Article in journal (Refereed)
    Abstract [en]

    The psychosocial effects of web-based information have yet to be tested for patients joining a fast-track total hip arthroplasty programme. This study compared and evaluated the psychosocial impact of standard total hip arthroplasty programme, with and without supplementation with a web-based information platform (E-total hip arthroplasty programme). Totally, 299 patients were enrolled in an un-controlled, before-and-after study, 117 in the S-total hip arthroplasty programme group and 182 in the E-total hip arthroplasty programme group. Psychosocial outcomes before and during admission and then 3 months post-surgery were evaluated, with analyses conducted between and within groups. All outcomes improved significantly from pre-admission to 3 months post-surgery, with no between-group differences. In all, 112 of the 182 E-total hip arthroplasty programme patients accessed the learning platform. A subgroup analysis showed no significant differences between users and non-users, either at baseline or in terms of outcome. This study found no positive psychosocial effect between groups, but a significant effect within groups.

  • 2.
    Riggare, Sara
    et al.
    Karolinska Institutet, Sweden.
    Höglund, Pär J.
    Jönköping University.
    Hvitfeldt Forsberg, Helena
    Karolinska Institutet, Sweden.
    Eftimovska, Elena
    Karolinska Institutet, Sweden.
    Svenningsson, Per
    Karolinska Institutet, Sweden.
    Hägglund, Maria
    Karolinska Institutet, Sweden.
    Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson’s disease in Sweden2019In: Health Informatics Journal, ISSN 1460-4582, E-ISSN 1741-2811, Vol. 25, no 1, p. 91-105Article in journal (Refereed)
    Abstract [en]

    Effective self-management is key to living well with Parkinson’s disease and one important aspect is disease-specific knowledge. This article explores how people with Parkinson’s disease in Sweden (1) acquire disease-specific knowledge and (2) use Parkinson’s disease–related healthcare. Data were collected through an online survey, which had 346 respondents (16–87 years old, median age: 68 years, 51% male; time since diagnosis: 0–31 years, median time: 7 years). Our results show that disease-specific knowledge is mainly found online, especially for women with Parkinson’s disease and people with Parkinson’s disease of working age, that most people with Parkinson’s disease in Sweden see their neurologist for 1 h or less per year and only one in two people with Parkinson’s disease has regular contact with other Parkinson’s disease–related healthcare professionals. We also find that people with Parkinson’s disease reporting higher levels of specific knowledge also are more likely to be satisfied with the amount of time they get with their neurologist, regardless of the amount of time. 

  • 3.
    Wass, Sofie
    et al.
    Jönköping University, Jönköping International Business School, JIBS, Informatics.
    Vimarlund, Vivian
    Jönköping University, Jönköping International Business School, JIBS, Informatics. Jönköping University, School of Health and Welfare, HHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare). Linköping University, Sweden.
    Same, same but different: Perceptions of patients’ online access to electronic health records among healthcare professionals2018In: Health Informatics Journal, ISSN 1460-4582, E-ISSN 1741-2811Article in journal (Refereed)
    Abstract [en]

    In this study, we explore how healthcare professionals in primary care and outpatient clinics perceive the outcomes of giving patients online access to their electronic health records. The study was carried out as a case study and included a workshop, six interviews and a survey that was answered by 146 healthcare professionals. The results indicate that professionals working in primary care perceive that an increase in information-sharing with patients can increase adherence, clarify important information to the patient and allow the patient to quality-control documented information. Professionals at outpatient clinics seem less convinced about the benefits of patient accessible electronic health records and have concerns about how patients manage the information that they are given access to. However, the patient accessible electronic health record has not led to a change in documentation procedures among the majority of the professionals. While the findings can be connected to the context of outpatient clinics and primary care units, other contextual factors might influence the results and more in-depth studies are therefore needed to clarify the concerns.

  • 4.
    Wass, Sofie
    et al.
    Jönköping University, Jönköping International Business School, JIBS, Informatics.
    Vimarlund, Vivian
    Jönköping University, Jönköping International Business School, JIBS, Informatics. Jönköping University, School of Health and Welfare, HHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare).
    Ros, Axel
    Jönköping University, School of Health and Welfare, HHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare).
    Exploring patients’ perceptions of accessing electronic health records: Innovation in healthcare2019In: Health Informatics Journal, ISSN 1460-4582, E-ISSN 1741-2811, Vol. 25, no 1, p. 203-215Article in journal (Refereed)
    Abstract [en]

    The more widespread implementation of electronic health records has led to new ways of providing access to healthcare information, allowing patients to view their medical notes, test results, medicines and so on. In this article, we explore how patients perceive the possibility to access their electronic health record online and whether this influences patient involvement. The study includes interviews with nine patients and a survey answered by 56 patients. Our results show that patients perceive healthcare information to be more accessible and that electronic health record accessibility improves recall, understanding and patient involvement. However, to achieve the goal of involving patients as active decision-makers in their own treatment, electronic health records need to be fully available and test results, referrals and information on drug interactions need to be offered. As patient access to electronic health records spreads, it is important to gain a deeper understanding of how documentation practices can be changed to serve healthcare professionals and patients.

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