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  • 1.
    Aaby Orellana, Tanja
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Kirkegaard, Betina
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Sjuksköterskors upplevelser av att implementera personcentrerad omvårdnad i slutenvården: -         En Empirisk Studie2016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Person-centred care (PCC) is when the person seeking care get’s involved in their care and are seen as more then their illness or ailment. PCC as a concept began in dementia care, but is now the approach that most healthcare institutions strive after. To achieve the improved care that PCC can bring, there is need for a well- planned and clear implementation plan from the management.

    Aim: To describe the nursing staffs experience of implementing person-centred care as a work procedure in inpatient care.

    Method: An inductive qualitative study where eleven interviews was completed. Eight interviews were strategically chosen and a content analysis was carried out.

    Result: There is hope among the participants that implementation will bring a better and safer care, but also concerns about fear of change among the healthcare staff and increased workloads. Participants experience that PCC will place higher demans on the healthcare staff, especially nurses, regarding time, knowledge and communication skills.

    Conclusion: To provide the best care, there has to be dedicated and competent staff who also have the support and understanding from the management. Despite the obstacles that seem to exist, there is a positive spirit among the nurses in relation to the implementation of person-centred care.  There is hope that person-centred care, among other things, will increase participation that could lead to shorter hospital stays and risk of needing to seek care again short after being discharged from the hospital. Ultimately it provides a better care in the whole for the individual person seeking care.

  • 2.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Att ansvara för en annan människas liv2013Conference paper (Other (popular science, discussion, etc.))
  • 3.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Att bedöma patienter utsatta för trauma2013Conference paper (Other academic)
  • 4.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Att träna på en patient som går att starta om2015Conference paper (Other academic)
  • 5.
    Abelsson, Anna
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Bringing your simulation into an attractive scientific program - Without the need for research data2017Conference paper (Refereed)
  • 6.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Den specialistutbildade ambulanssjuksköterskans uppfattning av att bedöma patienter utsatta för svårt trauma2013Conference paper (Other academic)
  • 7.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Developing ethical competence among students in nurse specialist programs2014Conference paper (Other academic)
  • 8.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Dom ser döda ut allihop: Att våga fatta svåra beslut2015In: Samverkan 112, ISSN 1650-7487, Vol. AprilArticle in journal (Other academic)
  • 9.
    Abelsson, Anna
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013).
    Full scale pre-hospital care scenario: Prehsopital workshop2015Conference paper (Refereed)
  • 10.
    Abelsson, Anna
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Kan man se blod i mörkret?2017Conference paper (Other (popular science, discussion, etc.))
  • 11.
    Abelsson, Anna
    Department of Health Sciences, Karlstad University, Sweden.
    Learning through simulation2017In: Disaster and Emergency Medicine Journal, ISSN 2451–4691, Vol. 2, no 3, p. 125-128Article in journal (Refereed)
    Abstract [en]

    With simulation, caregivers are given the opportunity to improve their knowledge and skills. With simulation, both theoretical and practical knowledge is taught. With the experiences that simulation creates, critical thinking and better care are developed. Learning through simulation complements the learning that takes place in everyday work and can have a positive effect of the advances of the care profession. The purpose of simulation may vary and different learning theories are used, both based on learning objectives and the purpose of the simulation. The experience gained from simulation prepares caregivers on how similar complex situations can be handled in the future.

  • 12.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Mapping the use of simulation in prehospital care2013Conference paper (Refereed)
  • 13.
    Abelsson, Anna
    Department of Health Sciences, Karlstad University, Sweden.
    Medical tattoos impact on CPR decisions2017In: Disaster and Emergency Medicine Journal, ISSN 2451-4691, Vol. 2, no 3, p. 140-141Article in journal (Other academic)
  • 14.
    Abelsson, Anna
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013).
    Nästa gång du hör sirener vill jag att du skall tänka på mig2014In: Vård i fokus, ISSN 0781-495X, Vol. 1Article in journal (Other academic)
  • 15.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Prehospital simulation differs from others: Prehospital workshop2015Conference paper (Refereed)
  • 16.
    Abelsson, Anna
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013).
    Prehospital simulering2014Conference paper (Other academic)
  • 17.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Simulering i ambulanssjukvården2013Conference paper (Other academic)
  • 18.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Simulering som lärande inom prehospital akutsjukvård2017Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The overall aim of the research was to deepen the understanding of learning through simulation in prehospital emergency care.

    Method: In this research, qualitative and quantitative methods are used as well as integrative literature studies (I, II). Qualitative data from the interview studies (III, V) were analyzed by phenomenographic methodology. Quantitative data from the intervention study (IV) were analyzed using descriptive and analytical statistics.

    Results: Research on simulation and learning within the prehospital trauma care context is relatively rare (I). Simulation of realistic scenarios where the caregivers are exposed to stress contributes to strengthen caregiver knowledge, skills and experience (II). Caregivers request simulation opportunities regarding critical and emergency situations (III). They describe that learning through regular simulation provides in-depth knowledge and skills in the care of a patient exposed to high-energy trauma (V). Interventions with repeated simulation opportunities related to the care of the patient exposed to high-energy trauma give some improvement in care provided at the site of the accident (IV).

    Conclusion: Through simulation, the caregivers develop knowledge and skills and receive enhanced confidence in the care of an injured and sick patient. The research suggests several areas with potential for improvement with regard to the care of patients exposed to high-energy trauma. A model has been developed for systematic trauma simulation.

     

  • 19.
    Abelsson, Anna
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013).
    Simulering som pedagogisk metod: ett sätt att träna olika patientsituationer2015Conference paper (Refereed)
  • 20.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Så räddar du liv2014Conference paper (Other (popular science, discussion, etc.))
  • 21.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    The simulation used in prehospital care2013Conference paper (Refereed)
  • 22.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    To optimize prehospital CPR- performed by fire fighters2015Conference paper (Refereed)
  • 23.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    What do we need to train the ambulance staff in and how can we train them?2014In: Workshop vid Society in Europe for Simulation Applied to Medicine, Pre-Hospital Special Interest Group Pre-Conference Course., 2014Conference paper (Refereed)
  • 24.
    Abelsson, Anna
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Öppet samtal mellan Sveriges prehospitala doktorander och representanter för nationell prehospital forskning2013Conference paper (Other (popular science, discussion, etc.))
  • 25.
    Abelsson, Anna
    et al.
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Bisholt, Birgitta
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Nurse students learning acute care by simulation: Focus on observation and debriefing2017In: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223, Vol. 24, p. 6-13Article in journal (Refereed)
    Abstract [en]

    Introduction:

    Simulation creates the possibility to experience acute situations during nursing education which cannot easily be achieved in clinical settings.

    Aim:

    To describe how nursing students learn acute care of patients through simulation exercises, based on observation and debriefing.

    Design:

    The study was designed as an observational study inspired by an ethnographic approach.

    Method:

    Data was collected through observations and interviews. Data was analyzed using an interpretive qualitative content analysis.

    Results:

    Nursing students created space for reflection when needed. There was a positive learning situation when suitable patient scenarios were presented. Observations and discussions with peers gave the students opportunities to identify their own need for knowledge, while also identifying existing knowledge. Reflections could confirm or reject their preparedness for clinical practice. The importance of working in a structured manner in acute care situations became apparent. However, negative feedback to peers was avoided, which led to a loss of learning opportunity.

    Conclusion:

    High fidelity simulation training as a method plays an important part in the nursing students' learning. The teacher also plays a key role by asking difficult questions and guiding students towards accurate knowledge. This makes it possible for the students to close knowledge gaps, leading to improved patient safety.

  • 26.
    Abelsson, Anna
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Lindwall, Lillemor
    Department of Health Sciences, Karlstad University, Karlstad, Sweden.
    Ethical dilemmas in prehospital emergency care – from the perspective of specialist ambulance nurse students2018In: International Journal of Ethics Education, ISSN 2363-9997Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to describe specialist ambulance nurse students’ experiences of ethical conflicts and dilemmas in prehospital emergency care. In the autumn of 2015, after participating in a mandatory lecture on ethics, 24 specialist ambulance nurse (SAN) students reported experiences and interpretations concerning conflicts and ethical dilemmas from prehospital emergency care. The text consisted of 24 written critical incidents which were interpreted using hermeneutic text interpretation. The text revealed three themes: Not safeguarding a patient’s body and identity; Not agreeing on the care actions; and Not treating the patient with dignity. The SANs experiences ethical dilemmas and conflict of values when they witness how others violate a patient’s dignity. Discussion and reflection is based on ethical conflicts and dilemmas experienced when students see how caregivers do not safeguard the patient’s body or identity. When caregivers have a conflicting will, it results in patients not being treated in an ethical manner. Also, seeing how caregivers put themselves in a power position over patients is described as an ethical dilemma that students experience when they choose not to intervene.

  • 27.
    Abelsson, Anna
    et al.
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Lindwall, Lillemor
    Karlstads universitet, Institutionen för hälsovetenskaper.
    What is dignity in prehospital emergency care?2017In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 24, no 3, p. 268-278Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Ethics and dignity in prehospital emergency care are important due to vulnerability and suffering. Patients can lose control of their body and encounter unfamiliar faces in an emergency situation.

    OBJECTIVE: To describe what specialist ambulance nurse students experienced as preserved and humiliated dignity in prehospital emergency care.

    RESEARCH DESIGN: The study had a qualitative approach.

    METHOD: Data were collected by Flanagan's critical incident technique. The participants were 26 specialist ambulance nurse students who described two critical incidents of preserved and humiliated dignity, from prehospital emergency care. Data consist of 52 critical incidents and were analyzed with interpretive content analysis.

    ETHICAL CONSIDERATIONS: The study followed the ethical principles in accordance with the Declaration of Helsinki.

    FINDINGS: The result showed how human dignity in prehospital emergency care can be preserved by the ambulance nurse being there for the patient. The ambulance nurses meet the patient in the patient's world and make professional decisions. The ambulance nurse respects the patient's will and protects the patient's body from the gaze of others. Humiliated dignity was described through the ambulance nurse abandoning the patient and by healthcare professionals failing, disrespecting, and ignoring the patient.

    DISCUSSION: It is a unique situation when a nurse meets a patient face to face in a critical life or death moment. The discussion describes courage and the ethical vision to see another human.

    CONCLUSION: Dignity was preserved when the ambulance nurse showed respect and protected the patient in prehospital emergency care. The ambulance nurse students' ethical obligation results in the courage to see when a patient's dignity is in jeopardy of being humiliated. Humiliated dignity occurs when patients are ignored and left unprotected. This ethical dilemma affects the ambulance nurse students badly due to the fact that the morals and attitudes of ambulance nurses are reflected in their actions toward the patient.

  • 28.
    Abelsson, Anna
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Lindwall, Lillemor
    Department of Health Sciences, Karlstad University, Karlstad, Sweden.
    Suserud, Björn-Ove
    Faculty of Caring Science, Work Life and Social Welfare, PreHospen-Centre for Prehospital Research, University of Borås, Borås, Sweden.
    Rystedt, Ingrid
    Department of Health Sciences, Karlstad University, Karlstad, Sweden.
    Ambulance nurses’ competence and perception of competence in prehospital trauma care2018In: Emergency Medicine International, ISSN 2090-2840, E-ISSN 2090-2859, Vol. 2018, article id 5910342Article in journal (Refereed)
    Abstract [en]

    Introduction. We focus on trauma care conducted in the context of a simulated traumatic event. This is in this study defined as a four-meter fall onto a hard surface, resulting in severe injuries to extremities in the form of bilateral open femur fractures, an open tibia fracture, and a closed pelvic fracture, all fractures bleeding extensively. 

    Methods. The simulated trauma care competence of 63 ambulance nurses in prehospital emergency care was quantitatively evaluated along with their perception of their sufficiency. Data was collected by means of simulated trauma care and a questionnaire. 

    Results. Life-saving interventions were not consistently performed. Time to perform interventions could be considered long due to the life-threatening situation. In comparison, the ambulance nurses’ perception of the sufficiency of their theoretical and practical knowledge and skills for trauma care scored high. In contrast, the perception of having sufficient ethical training for trauma care scored low. 

    Discussion. This study suggests there is no guarantee that the ambulance nurses’ perception of theoretical and practical knowledge and skill level corresponds with their performed knowledge and skill. The ambulance nurses rated themselves having sufficient theoretical and practical knowledge and skills while the score of trauma care can be considered quite low.

  • 29.
    Abelsson, Anna
    et al.
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Lindwall, Lillemor
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Suserud, Björn-Ove
    Högskolan i Borås.
    Rystedt, Ingrid
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Effect of repeated simulation on the quality of trauma care2017In: Clinical Simulation in Nursing, ISSN 1876-1399, E-ISSN 1876-1402, Vol. 13, no 12, p. 601-608Article in journal (Refereed)
    Abstract [en]

    Background

    Simulation participants are not dependent on learning during an actual clinical situation. This allows for a learning environment that can be constructed to meet the knowledge and experience needs of the participant. Simulations in a prehospital emergency are an ideal way to address these needs without risking patient safety.

    Method

    Nurses in prehospital emergency care (n = 63) participated in simulation interventions. During the simulation, the performed trauma care was assessed in two groups of participants with different frequency of simulation.

    Results

    Several statistically significant differences and clinical improvements were found within and between the groups. Differences were noted in specific assessments, examinations, care actions, and time from assessment to action.

    Conclusion

    The result suggested that repeated simulation may contribute to a clinical improvement in trauma care, and more frequent simulation may led to even greater improvements.

  • 30.
    Abelsson, Anna
    et al.
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Lundberg, Lars
    CPR performed in the military environment2016In: Society in Europe for Simulation Applied to Medicine Lisbon 16/6 2016., Lisabon, 2016Conference paper (Refereed)
  • 31.
    Abelsson, Anna
    et al.
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Rystedt, Ingrid
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Suserud, Björn-Ove
    Högskolan i Borås.
    Lindwall, Lillemor
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Experiences of simulation in prehospital emergency care settings, the paramedic and ambulance nurses` point of view2014Conference paper (Refereed)
  • 32.
    Abelsson, Anna
    et al.
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Rystedt, Ingrid
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Suserud, Björn-Ove
    Högskolan i Borås.
    Lindwall, Lillemor
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Learning by simulation in prehospital emergency care: an integrative literature review2016In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 30, no 2, p. 234-240Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Acquiring knowledge and experience on high-energy trauma is often difficult due to infrequent exposure. This creates a need for training which is specifically tailored for complex prehospital conditions. Simulation provides an opportunity for ambulance nurses to focus on the actual problems in clinical practice and to develop knowledge regarding trauma care. The aim of this study was to describe what ambulance nurses and paramedics in prehospital emergency care perceive as important for learning when participating in simulation exercises.

    METHODS: An integrative literature review was carried out. Criteria for inclusion were primary qualitative and quantitative studies, where research participants were ambulance nurses or paramedics, working within prehospital care settings, and where the research interventions involved simulation.

    RESULTS: It was perceived important for the ambulance nurses' learning that scenarios were advanced and possible to simulate repeatedly. The repetitions contributed to increase the level of experience, which in turn improved the patients care. Moreover, realism in the simulation and being able to interact and communicate with the patient were perceived as important aspects, as was debriefing, which enabled the enhancement of knowledge and skills. The result is presented in the following categories: To gain experience, To gain practice and To be strengthened by others.

    CONCLUSION: Learning through simulation does not require years of exposure to accident scenes. The simulated learning is enhanced by realistic, stressful scenarios where ambulance nurses interact with the patients. In this study, being able to communicate with the patient was highlighted as a positive contribution to learning. However, this has seldom been mentioned in a previous research on simulation. Debriefing is important for learning as it enables scrutiny of one's actions and thereby the possibility to improve and adjust one's caring. The effect of simulation exercises is important on patient outcome.

  • 33.
    Abelsson, Anna
    et al.
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Rystedt, Ingrid
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Suserud, Björn-Ove
    Högskolan i Borås.
    Lindwall, Lillemor
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Simulation of high-energy trauma makes knowledge readily available from memoryManuscript (preprint) (Other academic)
  • 34.
    Abelsson, Anna
    et al.
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Rystedt, Ingrid
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Suserud, Björ-Ove
    Lindwall, Lillemor
    Karlstads universitet, Institutionen för hälsovetenskaper.
    Mapping the use of simulation in prehospital care: a literature review.2014In: Scandinavian Journal of Trauma, Resuscitation and Emergency Medicine, ISSN 1757-7241, E-ISSN 1757-7241, Vol. 22, no 22, p. 12-Article in journal (Refereed)
    Abstract [en]

    Background:

    High energy trauma is rare and, as a result, training of prehospital care providers often takes place during the real situation, with the patient as the object for the learning process. Such training could instead be carried out in the context of simulation, out of danger for both patients and personnel. The aim of this study was to provide an overview of the development and foci of research on simulation in prehospital care practice.

    Methods:

    An integrative literature review were used. Articles based on quantitative as well as qualitative research methods were included, resulting in a comprehensive overview of existing published research. For published articles to be included in the review, the focus of the article had to be prehospital care providers, in prehospital settings. Furthermore, included articles must target interventions that were carried out in a simulation context.

    Results:

    The volume of published research is distributed between 1984-2012 and across the regions North America, Europe, Oceania, Asia and Middle East. The simulation methods used were manikins, films, images or paper, live actors, animals and virtual reality. The staff categories focused upon were paramedics, emergency medical technicians (EMTs), medical doctors (MDs), nurse and fire fighters. The main topics of published research on simulation with prehospital care providers included: Intubation, Trauma care, Cardiac Pulmonary Resuscitation (CPR), Ventilation and Triage.

    Conclusion:

    Simulation were described as a positive training and education method for prehospital medical staff. It provides opportunities to train assessment, treatment and implementation of procedures and devices under realistic conditions. It is crucial that the staff are familiar with and trained on the identified topics, i.e., intubation, trauma care, CPR, ventilation and triage, which all, to a very large degree, constitute prehospital care. Simulation plays an integral role in this. The current state of prehospital care, which this review reveals, includes inadequate skills of prehospital staff regarding ventilation and CPR, on both children and adults, the lack of skills in paediatric resuscitation and the lack of knowledge in assessing and managing burns victims. These circumstances suggest critical areas for further training and research, at both local and global levels.

  • 35.
    Aboutouk, Rana
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Forsberg, Fredrik
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Erfarenheter av egenvård hos personer med diabetes typ 22017Independent thesis Basic level (degree of Bachelor), 180 HE creditsStudent thesis
    Abstract [sv]

    Sammanfattning

    Bakgrund: Antalet personer med diabetes Mellitus typ 2 växer snabbt i världen. Egenvård krävs för att bromsa progressionen av DMT2 och förhindra eller fördröja komplikationer. Många personer med DMT2 sköter emellertid inte sin egenvård enligt rekommendationer.

    Syftet: Att beskriva erfarenheter av egenvård hos personer med DMT2.

    Metod: Med hjälp av Fribergs femstegsmodell gjordes en litteraturöversikt av elva kvalitativa studier om erfarenheter av egenvård hos personer med DMT2.

    Resultat: Att integrera egenvården i vardagen är en utmaning. Familjen och vårdpersonalen har en nyckelroll och kan utgöra såväl ett hinder som ett stöd för egenvården. Andra personer med diabetes upplevs som ett entydigt positivt stöd. Att acceptera sjukdomen är en förutsättning för att kunna bedriva egenvården. Brist på förståelse och okunskap kring DMT2 utgör ett hinder mot egenvård. Personliga mål och feedback är avgörande för motivationen.

    Slutsatser: Socialt stöd, acceptans av sjukdomen, positiv feedback och individualiserad information upplevs underlätta egenvård.

  • 36.
    Abyan, Luul
    et al.
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Gustavsson, Ellinor
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
    Unga vuxnas upplevelser av att leva med diabetes typ-12016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Summary

    Background: Diabetes type-1 is an autoimmune disease and one of the most common chronic diseases in Sweden. Diabetes type-1 can be developed at any age, but usually appears during childhood and adolescence. Living with the disease implicates being responsible for their self-care.

    Aim: The aim of the study was to describe the young adult’s experiences of living with diabetes type-1, based on Orem’s self-care deficit nursing theory.

    Method: This study is a qualitative study with deductive approach. The study is based on three blogs. Orem’s self-care deficit nursing theory was used in this study.

    Results: The relationship with family and other diabetics are perceived to be a great support and can serve as an aid in self-care. Self-care can be difficult to achieve and sometimes they can experience that planning and structure be in vain. According to the individuals, it is important not to let the disease limit the social life. There is a major ignorance of diabetes type-1 in the society which leads to insecurity and lack of trust. Despite an environment of supportive people, individuals with diabetes type-1 can experience loneliness.

    Conclusion: An insight of young adult’s experiences of living with diabetes type-1 is important for the nurse because of the ability to reduce conflicts between nurse and patient and thereby improve conditions for a successful self-care.

  • 37.
    Agren, Susanna
    et al.
    Department of Medical and Health Sciences, Linköping University, 581 83 Linköping, Sweden and Department of Cardiothoracic Surgery, Linköping University, Linköping, Sweden.
    Ivarsson, Bodil
    Department of Cardiothoracic Surgery, Clinical Sciences, Lund University, 221 85 Lund, Sweden and Department of Cardiothoracic Surgery/THAI, Sk˚ane University Hospital and Medical Services, 221 85 Lund, Sweden.
    Rönning, Helén
    Jönköping University, School of Health Science, HHJ. ADULT. Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
    The Unsteady Mainstay of the Family: Now Adult Children's Retrospective View on Social Support in Relation to Their Parent's Heart Transplantation.2014In: Nursing Research and Practice, ISSN 2090-1429, E-ISSN 2090-1437Article in journal (Refereed)
    Abstract [en]

    The needs for support among children with a seriously ill parent, who is waiting for heart transplantation, are unknown today. The aim was to describe now adult children's experiences of social support in relation to a parent's heart transplant during childhood. Nine females and four males were interviewed. The median age for the children was 18 at the transplantation and their parents had been ill before for 18 months (median) and on waiting list for 161 days (mean). Three categories emerged: health care professionals' approaches, family and friends' approaches, and society approaches. Our results show that there was lack of support for children of heart transplantation patients. Support in the shape of information was in most cases provided by the sick or healthy parent. It is of great clinical importance to develop psychosocial support programs for children with a seriously ill parent waiting for heart transplantation (before, during, and after surgery).

  • 38.
    Ahlstrand, Inger
    et al.
    Jönköping University, School of Health and Welfare, HHJ. ADULT.
    Vaz, Sharmila
    School of Occupational Therapy & Social Work, CHIRI, Curtin University, Perth, WA, Australia.
    Falkmer, Torbjörn
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Rehabilitation Center and Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.
    Thyberg, Ingrid
    Department of Rheumatology and Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden.
    Björk, Mathilda
    Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation.
    Self-efficacy and painacceptance in relation to pain and performance of valued life activities inwomen and men with RAArticle in journal (Other academic)
  • 39.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Assessment of coping and quality of life in adults with neuromuscular diseases.1998In: European Congress on Evaluation of Rehabilitation in a Lifelong Course, 1998Conference paper (Refereed)
  • 40.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Consequences of Muscular Dystrophy: Impairment, Disability, Coping and Quality of Life.1994Doctoral thesis, monograph (Other scientific)
  • 41.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Coping with Long-term Neurological illness and the Implications for Nursing.2005In: Journal of neuroscience nursing, ISSN 0888-0395, Vol. 37, no 6, p. 301-302Article in journal (Refereed)
  • 42.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Coping with Long-term Neurological Illness and the Implications for Nursing Interventions.2005In: 9th Quadrennial World Federation of Neuroscience Nurses, 2005Conference paper (Refereed)
  • 43.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science.
    Coping with Neuromuscular disease and the Implications for Interventions2008In: The First International Symposium on Psychosocial Aspects of Neuromuscular Disorders, Bilbao, June 20-21 2008: University of Deusto, Bilbao , 2008, p. 1-Conference paper (Refereed)
    Abstract [en]

    Coping with Neuromuscular disease and the Implications for Interventions

    The lecture is based on results from three theses and about 25 scientifically articles about the plight of the patient with muscular dystrophy (MD), and the patients’ ways of coping with illness-related problems from a psychosocial perspective. MD is a group of inherited disorders characterised by muscular weakness caused by muscle wasting. Three subgroups are distinguished in our research: one group with different types of proximal MD and the other two groups characterized chiefly by distal weakness. The research was to elucidate how persons with muscular dystrophy experience their everyday life over a ten years period. The research includes four data collections with qualitative and quantitative methods. The data was selected in three different county councils in Sweden.

    The persons with MD described the change from being independent to being an individual in need of assistive devices and/or personal support to manage activities of every day life. Besides muscular weakness the persons have the strain it means to have a hereditary disease. The deterioration in a decennium was mainly with regard to ambulation. The number of persons walking without assistive devices and working has almost been halved. They experienced periods of sorrow due to losses of independence, control, status and social roles and the loss of one’s identity as a healthy person. The sorrow connecting with repeated losses are in the literature designate as chronic or episodic sorrow. Also, in the lecture the patients’ illness trajectory were described by a model of Sullivan (1994) into four dimensions in order to increase the understanding of what it means to live with muscular dystrophy.

    The aim of interventions is to support the patient’s appropriate ways of coping as Problem-focused coping/Searching for a solution, Fighting spirit/Struggling, Re-appraising of life values, Maintaining hope, Social comparison, Laughing and joking  and Caring about self.

  • 44.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Experiences of loss and chronic sorrow in person with neurological disorders.2001In: 8th World Federation of Neuroscience Nurses Congress, 2001Conference paper (Refereed)
  • 45.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Experiences of loss and chronic sorrow in person with neurological disorders.2001In: 8th World Federation of Neuroscience Nurses Congress, 2001Conference paper (Refereed)
  • 46.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Experiences of Loss and Chronic Sorrow in Persons with Neurological disorders.2004In: The First Affiliated Hospital of Kunming Medical College, 2004Conference paper (Refereed)
  • 47.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
    Experiences of loss and chronic sorrow in persons with severe chronic illness2007In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 16, no 3A, p. 76-83Article in journal (Refereed)
    Abstract [en]

    Aims and objectives. The aims of the present study were to describe losses narrated by persons afflicted with severe chronic physical illness and to identify the concomitant occurrence of chronic sorrow. Background. Reactions connected with repeated losses are referred to in the literature as chronic sorrow, which has recently been described in conjunction with chronic illness. Design. A qualitative study with an abductive approach of analysis, including both inductive and deductive interpretations. Method. The study is based on 30 persons of working age with average disease duration of 18 years. The average age was 51 years. All of the persons had personal assistance for at least three months because of considerable need for help in daily life due to physical disability. Each person was interviewed twice. There was also an independent assessment of the deductive results concerning chronic sorrow. Results. The inductive findings show that all persons had experienced repeated physical, emotional and social losses. Most common were 'Loss of bodily function', 'Loss of relationship', 'Loss of autonomous life' and 'Loss of the life imagined'. 'Loss of identity' included the loss of human worth, dignity and a changed self-image. In addition, the deductive findings suggest that chronic sorrow exists in the study population. Sixteen of 30 participating subjects were assessed by both assessors to be in a state of chronic sorrow and there was an especially high agreement with respect to one criterion of chronic sorrow 'Loss experience, ongoing or single event' (28 of 30 subjects). Conclusions. This study shows that persons with severe chronic illness often experience recurring losses. These experiences are consistent with the phenomenon of chronic sorrow. Relevance to clinical practice. Knowledge of the existence of chronic sorrow in persons with chronic illness will enable nurses to support these persons in a more sensitive and appropriate way.

  • 48.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science.
    Integrating improvement learning into health professional educational curricula2008In: International Forum on Quality Improvement in Healthcare, France, April 24 2008: International Forum on QI , 2008, p. 1-Conference paper (Refereed)
    Abstract [en]

    We all need to start where we are and also wanting to go further all the time. This is the essence in quality improvement. The leader and the teachers must own this attitude themselves in order to have the ability to be trustworthy for the students. There is evidence in the literature about the impact of education on the professional attitude and role. This means that it is important to work with better professional development for better outcomes in the faculty.

    One starting point for us in the planning of our different programs are that improvement knowledge will be a streak through the whole education in order to establish a professional attitude of daily inspiration to produce the best practise. We have applied all curricula to Boologna declaration and in this system progression in learning is a key point. We have four levels in the basic education (3-years education which lead to Bachelor degree) where we start to introduce 1) Concepts and models in health improvement. Then let our students make a 2) Personal improvement in their everyday life. Later in the education we teach about 3) Evidence practise and systematic literature reviews. Finally the students are 4) Making health improvements in collaboration with the staff during one clinical education.

    All educational programmes on basic level since 2007 include aim descriptions about quality improvement. The aim of the learning is to have the competence to initiate and participate in work about health care improvements.

    Finally, besides the mentions aspects in improvement education there are some other factors that needs for better system performance.

  • 49.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science.
    Intentional Partnerships—Creating New Partnerships: A national and international model2008In: Quality and Safety in Nursing Education: A Clinical Microsystems Approach, Chicago, USA: The Joint Comission , 2008, p. 6-Conference paper (Refereed)
    Abstract [en]

    Since one of the aims of this meeting is to create a strategy for the participants to connect and share experiences post-conference I will start by giving a very brief account of Jönköping University and the School of Health Sciences, this in order to give you a sense of the school as a possible partner for collaboration. Then I will describe how teachers work to increase knowledge with regard to health care improvement within the nursing program. Thereafter I will talk about a research project and relate this to what we can learn about interprofessional education. The basic values regarding health care improvement described by Paul Batalden and his colleagues are central to our present development. We share the theoretical assumptions concerning the Clinical Microsystem and the view of redesigning health care education in order to produce the best care for the patient and his/her family. So within our organization both teachers and students — like nurses — have two jobs, one of which is to bring about improvement. So we have started the process where the educators need to change their teaching for the sake of better patient outcomes, better system performance, and better professional development. This means communicating not only the existing evidence-based knowledge but also improvement knowledge which involves a substantial shift in our idea of the work of health care — a challenging task that can benefit from the use of a wide variety of tools and methods. A key concern for us in the planning of our different programs is that the improvement of knowledge shall permeate the education and contribute to establishing a professional attitude marked by daily inspiration to produce the best care. The basic education involves four stages. First there is an introduction to concepts and models in health care improvement. This content is in the first semester.  Second the students’ are making a personal improvement in their everyday life. The students apply PDSA-cycle for improvement of an issue, commonly their time-table for studies, time spending for eating breakfast in the morning or eating habits in general. The third stage involves evidence-based nursing and systematic literature reviews and in the fourth stage, the students make health care improvements in collaboration with the staff during a clinical training period. The nurses at the clinic formulate the area of improvement. Then the students work systematically in pairs to collect data and the results are reported to the nurses. The latter stage is a new content in nursing education but we know from occupational therapy that the staff appreciated these works and the results were in most cases used by the staff in their job.

     

    The overall aim of the research project “Bridging the gaps” is to generate evidence about the process and outcome of clinical work within the area of quality improvement. The project contributes to an advanced environment for learning and innovation, research and development in the field of health-care management and improvement. There are 14 doctoral students at the research school, who takes part in the research project. Three of them are nurses and doctoral students at the School of Health Sciences. All PhD students have to take two compulsory courses, one is named “Bridging the gaps — a multidisciplinary research field” and the other is named “Interactive Research Methodology”. The Microsystem as a theoretical model is included in the mention research course “Bridging the gaps” and in each doctoral student’s research proposal. The PhD students shall work together with health-care staff by way of an interactive research method. This means that there is an integration of research and practice. The PhD students and the health-care staff are working together throughout the project. The staff is involved at every stage, from designing the improvement work, formulating the research questions to reporting the results. Research with this methodology generates knowledge of great relevance for clinical practice.

  • 50.
    Ahlström, Gerd
    Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. HHJ. Quality improvements, innovations and leadership in health care and social work.
    Living with Neurological Disorders: Illness Experiences, Coping and Coping Resources.2004In: WENR-conference, 2004Conference paper (Refereed)
1234567 1 - 50 of 1271
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