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Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability
Centre for Disability and Development Research (CeDDR), Australian Catholic University, Melbourne, Vic, Australia.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Behavioural Science and Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.ORCID iD: 0000-0001-9597-039X
Centre for Disability and Development Research (CeDDR), Australian Catholic University, Melbourne, Vic, Australia.
Centre for Disability and Development Research (CeDDR), Australian Catholic University, Melbourne, Vic, Australia.
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2017 (English)In: Developmental Medicine & Child Neurology, ISSN 0012-1622, E-ISSN 1469-8749, Vol. 59, no 1, 16-25 p.Article, review/survey (Refereed) Published
Abstract [en]

This review outlines a conceptual approach to inform research and practice aimed at supporting children whose lives are complicated by impairment and/or chronic medical conditions, and their families. ‘Participation’ in meaningful life activities should be an essential intervention goal, to meet the challenges of healthy growth and development, and to provide opportunities to help ensure that young people with impairments reach their full potential across their lifespan. Intervention activities and research can focus on participation as either an independent or dependent variable. The proposed framework and associated hypotheses are applicable to children and young people with a wide variety of conditions, and to their families. In taking a fresh ‘non-categorical’ perspective to health for children and young people, asking new questions, and exploring issues in innovative ways, we expect to learn lessons and to develop creative solutions that will ultimately benefit children with a wide variety of impairments and challenges, and their families, everywhere.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2017. Vol. 59, no 1, 16-25 p.
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hj:diva-31544DOI: 10.1111/dmcn.13237ISI: 000392829900012PubMedID: 27640996Scopus ID: 2-s2.0-84988421033Local ID: HLKCHILDIS, HHJCHILDISOAI: oai:DiVA.org:hj-31544DiVA: diva2:955862
Available from: 2016-08-26 Created: 2016-08-26 Last updated: 2017-03-02Bibliographically approved

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