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Sweden’s LSS and social integration: An exploration of the relationship between personal assistant type, activities, and participation for children with PIMD
Jönköping University, School of Health and Welfare.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Behavioural Science and Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.ORCID iD: 0000-0001-9597-039X
Mälardalen University, Västerås.
Jönköping University, School of Health and Welfare, HHJ. CHILD.
2016 (English)In: Journal of Policy and Practice in Intellectual Disabilities, ISSN 1741-1122, E-ISSN 1741-1130, Vol. 13, no 1, 50-60 p.Article in journal (Refereed) Published
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Abstract [en]

The Swedish personal assistance system, facilitated through Swedish legislation (known as the LSS), allows children with profound intellectual and multiple disabilities (PIMD) to receive subsidized personal assistance. This assistance may be either a hired professional from outside the family or a parent paid as a personal assistant. The type of personal assistant can impact activity selection. As noted by bio-ecological systems theory, participation in “systems” beyond the household is important for a child’s cognitive and social development, including the development of children with disabilities. The authors explored whether children’s personal assistant type (i.e., external or parental) is related to their presence in socially integrative activities (SIAs) versus non-socially integrative activities (NSIAs). The relationship between children’s activity engagement and their personal assistant type was examined via a descriptive, comparative study based on a questionnaire. Sixty families answered, providing quantitative data about personal assistance type across 56 common family activities. Children’s external assistants showed a greater presence in SIAs than children’s parental assistants, who showed a greater presence in NSIAs. The level of activity engagement between personal assistant type, however, had a less direct relationship. In accordance with bio-ecological systems theory, activity selection can influence the child’s cognitive and social development. Ultimately, this study suggests that external assistants partake in more SIAs than parental assistants, likely as a function of providing respite for families. This respite stems from the LSS’s implicit role for external personal assistants to also serve as relief for parents. In turn, by facilitating exposure to broader systems, these external assistants can play a critical role in children’s social and cognitive development.

Place, publisher, year, edition, pages
2016. Vol. 13, no 1, 50-60 p.
Keyword [en]
children, intellectual disabilities, participation, personal assistance, profound intellectual and multiple disabilities (PMID), social integration
National Category
Social Work
Identifiers
URN: urn:nbn:se:hj:diva-29684DOI: 10.1111/jppi.12146ISI: 000373226900006Scopus ID: 2-s2.0-84961589432OAI: oai:DiVA.org:hj-29684DiVA: diva2:915187
Available from: 2016-03-29 Created: 2016-03-29 Last updated: 2016-09-22Bibliographically approved

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Granlund, MatsAxelsson, Anna Karin
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