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Functioning and disability in autism spectrum disorder: A worldwide survey of experts
Jönköping University, School of Health and Welfare, HHJ, Dep. of Behavioural Science and Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.ORCID iD: 0000-0001-9597-039X
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2016 (English)In: Autism Research, ISSN 1939-3792, E-ISSN 1939-3806, Vol. 9, no 9, 959-969 p.Article in journal (Refereed) Published
Abstract [en]

Objective: This study is the second of four to prepare International Classification of Functioning, Disability and Health (ICF; and Children and Youth version, ICF(-CY)) Core Sets for Autism Spectrum Disorder (ASD).The objective of this study was to survey the opinions and experiences of international experts on functioning and disability in ASD.

Methods: Using a protocol stipulated by the World Health Organization (WHO) and monitored by the ICF Research Branch, an email-based questionnaire was circulated worldwide among ASD experts, and meaningful functional ability and disability concepts were extracted from their responses. These concepts were then linked to the ICF(-CY) by two independent researchers using a standardized linking procedure.

Results: N  = 225 experts from 10 different disciplines and all six WHO-regions completed the survey. Meaningful concepts from the responses were linked to 210 ICF(-CY) categories. Of these, 103 categories were considered most relevant to ASD (i.e., identified by at least 5% of the experts), of which 37 were related to

Activities and Participation, 35 to Body functions, 22 to Environmental factors, and 9 to Body structures. A variety of personal characteristics and ASD-related functioning skills were provided by experts, including honesty, loyalty, attention to detail and creative talents. Reported gender differences in ASD comprised more externalizing behaviors among males and more internalizing behaviors in females.

Conclusion: The ICF(-CY) categories derived from international expert opinions indicate that the impact of ASD on functioning extends far beyond core symptom domains

Place, publisher, year, edition, pages
John Wiley & Sons, 2016. Vol. 9, no 9, 959-969 p.
Keyword [en]
autism; neurodevelopmental disorder; assessment; child psychiatry; heterogeneity; quality of life
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Health Sciences
Identifiers
URN: urn:nbn:se:hj:diva-28965DOI: 10.1002/aur.1592ISI: 000383373100005PubMedID: 26749373Scopus ID: 2-s2.0-84954140108Local ID: HHJCHILDIS, HLKCHILDISOAI: oai:DiVA.org:hj-28965DiVA: diva2:892706
Funder
Swedish Research Council, 523-2009-7054
Available from: 2016-01-11 Created: 2016-01-11 Last updated: 2017-12-01Bibliographically approved

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Granlund, Mats

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