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Patient-nurse communication about prognosis and end-of-life care
Department of Social and Welfare Studies (ISV), Faculty of Health Sciences, Linköping University, Sweden.
Department of Social and Welfare Studies (ISV), Faculty of Health Sciences, Linköping University, Sweden.
Department of Social and Welfare Studies (ISV), Faculty of Health Sciences, Linköping University, Sweden.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. ADULT.
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2015 (English)In: Journal of Palliative Medicine, ISSN 1096-6218, E-ISSN 1557-7740, Vol. 18, no 10, 865-871 p.Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Although several studies advise that discussions about prognosis and end-of-life care should be held throughout the whole heart failure (HF) trajectory, data is lacking on the prevalence and practice of such discussions in HF care.

OBJECTIVE: The study objective was to explore how often and why HF nurses in outpatient clinics discuss prognosis and end-of-life care in the context of patient education.

METHODS: This was a descriptive and comparative study. Participants were HF nurses from Swedish and Dutch HF outpatient clinics. Measurements were taken via a survey for both quantitative and qualitative data. Additional data was collected via open-ended questions and analyzed with content analysis.

RESULTS: Two hundred seventy-nine nurses registered 1809 patient conversations using a checklist. Prognosis and end-of-life care were among the least frequently discussed topics, whereas symptoms of HF was discussed most often. Prognosis was discussed with 687 patients (38%), and end-of-life care was discussed with 179 patients (10%). Prognosis and end-of-life care were discussed more frequently in The Netherlands than in Sweden (41% versus 34%, p<0.001, 13% versus 4%, p<0.001). The nurses did not always recognize prognosis and end-of-life care discussions as a part of their professional role.

CONCLUSIONS: Currently, patient-nurse communication about prognosis and end-of-life care does not seem to be routine in patient education in HF clinics, and these discussions could be included more often. The reasons for nurses to discuss these topics were related to clinical routines, the patient's situation, and professional responsibilities. To improve future care, communication with patients needs to be further developed.

Place, publisher, year, edition, pages
2015. Vol. 18, no 10, 865-871 p.
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hj:diva-27509DOI: 10.1089/jpm.2015.0037ISI: 000362268900013PubMedID: 26068058Scopus ID: 2-s2.0-84943554116OAI: oai:DiVA.org:hj-27509DiVA: diva2:827800
Funder
Swedish Heart Lung Foundation
Available from: 2015-06-29 Created: 2015-06-29 Last updated: 2016-01-11Bibliographically approved

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CiteExportLink to record
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