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Hemsjukvård för barn ‒ föräldrars upplevelser med fokus på delaktighet
Jönköping University, School of Health and Welfare, HHJ, Quality Improvement and Leadership in Health and Welfare.
2014 (Swedish)Independent thesis Advanced level (degree of Master (Two Years)), 180 HE creditsStudent thesis
Abstract [sv]

Bakgrund

Tidigare studier av hemsjukvård för barn har visat att den föredras av föräldrar och är patientsäker samt kostnadseffektiv. Studier har gjorts om föräldrars delaktighet i barns vård på sjukhus men få i kontexten hemsjukvård. I Sverige har inte alla barn idag tillgång till hemsjukvård. Förbättringsarbetet att utöka tillgången till hemsjukvård för barn ägde rum vid en barn- och ungdomsklinik på ett länssjukhus i södra Sverige.

 

Syfte

Syftet med förbättringsarbetet var att utöka möjligheterna till hemsjukvård för barn och att identifiera fler lämpliga patienter.

Syftet med studien var att undersöka hur föräldrar upplever hemsjukvård för barn med fokus på delaktighet i barnets vård och beslut som rör den.

 

Metod

Åtta intervjuer genomfördes med sammanlagt 10 föräldrar till barn som erhållit hemsjukvård under perioden mars 2013-februari 2014. Intervjuerna var semistrukturerade, och analyserades efter transkribering enligt kvalitativ innehållsanalys med en induktiv ansats.

 

Resultat

Under perioden 1 november 2013 till 30 april identifierades sjutton barn som lämpliga för hemsjukvård. Elva av dem erhöll hemsjukvård, vilket var en ökning från föregående halvår då fyra barn erhöll hemsjukvård.

Resultatet av studien sammanfattas i tre teman och nio underteman. Föräldrars upplevelse av hemsjukvård var att kommunikationen med vårdpersonalen är god, de har en känsla av medverkan i vård och beslut, och familjens bästa prioriteras.

 

Slutsatser

Hemsjukvård upplevdes ovärderlig i egenskap av att främja ett så normalt liv som möjligt för familjen. Resultaten från studien stödjer ett personcentrerat arbetssätt präglat av jämbördig och prestigelös dialog. Mer forskning behövs dock kring hur barn upplever hemsjukvård och delaktighet i beslut om sin vård och vårdform.

Abstract [en]

Home care services for children

‒ parents experiences focusing on participation in care

 

Background

Previous studies about hospital- and community-based home care for children shows that it is safe, cost efficient and preferable by parents. Studies have been done about parent´s participation in care at hospitals but not in the home care setting. In Sweden not all children have access to home care services. The quality improvement intervention, to increase access to home care services took place at a children´s clinic at a county hospital in southern Sweden.

 

Aim

The purpose of the improvement effort was to enhance home care for children by the means of identifying children at the hospital who were suitable for offering the service.

The purpose of the study was to investigate how parents experiences home care service for children in terms of participation in the child´s care and decision-making regarding it.

 

Methods

Eight interviews were carried out with ten parents of children that had received home care during the period from March 2013 to February 2014. The interviews focused on experiences primarily regarding parents participation in the child´s care and decision-making, and were semi-structured. The content was transcribed verbatim and analyzed by using qualitative content analysis with an inductive approach.

 

Results

During November 2013 to April 2014 seventeen children were identified as suitable for home care and eleven of them actually received home care service. This was an increase from the previous 6 month, when four children received the service.

The three themes and nine subthemes that emerged, describing parent´s experiences, showed that they felt they had good communication with doctors and staff, they experienced involvement in care and decision-making, and that the best of the whole family was prioritized.

 

Conclusions

Parents felt that home care was invaluable in terms of being able to live a normal life, for the family as a hole. The result supports a person-centered care approach and emphasizes the equal dialogue as a tool. Further studies are needed to enlighten children´s own experiences about home care, participation in their own treatment and decision-making regarding care form.

Place, publisher, year, edition, pages
2014. , 41 p.
Keyword [en]
home care service, child, participation, parents, person-centered
Keyword [sv]
hemsjukvård, barn, delaktighet, föräldrar, personcentrerad
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-27406OAI: oai:DiVA.org:hj-27406DiVA: diva2:825762
Subject / course
HHJ, Quality improvement and leadership in health and welfare services
Presentation
2014-06-03, Hälsohögskolan, Jönköping, 00:00 (Swedish)
Supervisors
Examiners
Available from: 2015-10-21 Created: 2015-06-23 Last updated: 2015-10-21Bibliographically approved

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