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Scientific Developments and Regulation of Human Genetic Information
Jönköping University, Jönköping International Business School, JIBS, Accounting and Law.ORCID iD: 0000-0001-8611-0072
2014 (English)Conference paper (Refereed)
Abstract [en]

Genetic tests, personalized medicine and the use of information from genetic investigations to predict future health risks are a relatively new phenomena. However, these new practices have given rise to an increasing number of regulations, guidelines, policies and laws. These include medical ethics, standards for conducting medical research, and laws relating to privacy, discrimination and the possible uses of genetic information. While most of these existing regulatory instruments were not developed specifically to deal with genetic information, in many cases they are broad and adaptable enough to cover also such information. As a consequence, the private property regimes is generally applied also to genetic materials.Considering this multifaceted scenario, the paper attempts to discuss alternative models for governing essential, scarce resources like genetic resources. Looking beyond the enclosure of traditional public goods (such as land or water), the paper emphasizes the debate around the progressive commodification of genetic resources and associated genetic information operated by means of intellectual property rights or other forms of management of knowledge. The discourse around commons is here used to evaluate alternative tools and strategies to the issue of private appropriation of human genetic resources and natural compounds.

Place, publisher, year, edition, pages
2014.
National Category
Law
Identifiers
URN: urn:nbn:se:hj:diva-23317OAI: oai:DiVA.org:hj-23317DiVA: diva2:692283
Conference
6th International Conference on Information Law & Ethics - May 30-31, 2014, Thessaloniki (Greece)
Available from: 2014-01-30 Created: 2014-01-30 Last updated: 2015-04-22

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