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Does removal of aids/devices and help make a difference in the Childhood Health Assessment Questionnaire disability index?
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2010 (English)In: Annals of the Rheumatic Diseases, ISSN 0003-4967, E-ISSN 1468-2060, Vol. 69, no 1, 82-87 p.Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: To assess whether the removal of aids/devices and/or help from another person in the Childhood Health Assessment Questionnaire (C-HAQ) leads to a significant change in the disability index (DI) score and responsiveness in juvenile idiopathic arthritis (JIA).

METHODS: Changes in the C-HAQ DI score in a cross-sectional sample of 2663 children with JIA and in 530 active patients with JIA in a trial of methotrexate (MTX) were compared.

RESULTS: Patients in the MTX trial had higher disease activity and disability than the cross-sectional sample. The frequency of aids/devices (range 1.2-10.2%) was similar between the two samples, while help (range 5.3-38.1%) was more frequently used in the MTX group. Correlation between disease severity variables and the two different C-HAQ DI scoring methods did not change substantially. There was a decrease in the C-HAQ DI score for both the cross-sectional (mean score from 0.64 with the original method to 0.54 without aids/devices and help, p<0.0001) and the MTX sample (mean score from 1.23 to 1.07, p<0.0001). A linear regression analysis of the original C-HAQ DI score versus the score without aids/devices and help demonstrated the substantial overlap of the different scoring methods. Responsiveness in the responders to MTX treatment did not change with the different C-HAQ DI scoring methods (range 0.86-0.82).

CONCLUSION: The removal of aids/devices and help from the C-HAQ does not alter the interpretation of disability at a group level. The simplified C-HAQ is a more feasible and valid alternative for the evaluation of disability in patients with JIA.

Place, publisher, year, edition, pages
2010. Vol. 69, no 1, 82-87 p.
Keyword [en]
Activities of Daily Living, Antirheumatic Agents/therapeutic use, Arthritis, Juvenile Rheumatoid/drug, therapy/physiopathology/*rehabilitation, Child, Child, Preschool, Cross-Sectional Studies, *Disability Evaluation, Female, Humans, Male, Methotrexate/therapeutic use, Reproducibility of Results, *Self-Help Devices, Severity of Illness Index, Treatment Outcome
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Health Sciences
Identifiers
URN: urn:nbn:se:hj:diva-17186DOI: 10.1136/ard.2008.097592PubMedID: 19221399ISBN: 1468-2060 (Electronic) 0003-4967 (Linking) OAI: oai:DiVA.org:hj-17186DiVA: diva2:478423
Available from: 2012-01-16 Created: 2012-01-16 Last updated: 2012-11-30Bibliographically approved

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