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Managing mealtimes tasks: told by persons with dementia
Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
2011 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 20, no 17, 2552-2562 p.Article in journal (Refereed) Published
Abstract [en]

AIM: To capture the self-description of managing mealtime tasks by persons with dementia.

BACKGROUND: There are several factors that negatively affect food intake in persons with dementia that may increase the risk of developing malnutrition. Difficulties in managing daily activities increase gradually and mealtime tasks like food shopping, cooking and eating often become troublesome. Still, little is known about how persons with dementia themselves experience this issue.

DESIGN: A qualitative study with an ethnographic approach.

METHOD: Ten women and five men aged 69-86 with dementia were interviewed. Interviews were carried out in the informants' own homes and a thematic analysis was performed.

RESULTS: The informants described that they wanted to be independent and that the memory loss was not affecting them to a great extent. Old habits and routines, as well as newly developed strategies, helped them manage mealtime tasks despite the disease. Informants were satisfied with their current situation, even though it sometimes meant that they had changed their way of managing mealtime tasks, for instance receiving meals-on-wheels.

CONCLUSIONS: Persons with dementia seem to be able to manage mealtime tasks and these activities were based on old habits and routines. Independence was highly valued and managing mealtime tasks seems to be one way to appear independent.

RELEVANCE TO CLINICAL PRACTICE:

It is important for caregivers to understand that persons with dementia might not express difficulties in managing mealtime tasks for fear of losing their independence. It is, therefore, important to create a trustful relationship even before problems arise to be able to support the persons when necessary.

Place, publisher, year, edition, pages
2011. Vol. 20, no 17, 2552-2562 p.
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hj:diva-17034DOI: 10.1111/j.1365-2702.2011.03811.xPubMedID: 21762416OAI: oai:DiVA.org:hj-17034DiVA: diva2:474548
Available from: 2012-01-09 Created: 2012-01-09 Last updated: 2013-05-16Bibliographically approved
In thesis
1. Foodwork and meals in everyday life among persons with dementia and their partners
Open this publication in new window or tab >>Foodwork and meals in everyday life among persons with dementia and their partners
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The aim of this thesis was to explore and describe foodwork and meals for older persons with dementia and their partners in ordinary homes.

Descriptive and explorative designs were used in the four papers this thesis is based on. Longitudinal data, including older home-living unlike-sex twins, were analysed using descriptive and analytical statistics. An ethnographic approach was used to describe everyday life for persons with dementia. Interviews with partners and staff were analysed using thematic analysis and qualitative content analysis, respectively.

The results revealed that, among home-living older persons, there is an association between a person’s cognitive ability and nutritional status; i.e. low cognitive ability leads to increased risk of malnutrition. For home-living persons with dementia and their partners, foodwork and meals sometimes changed, meaning that shopping, preparing food and eating as well as social interaction become complicated, which seemed to lead to transitions in roles, routines and relations. There was foodwork that the persons with dementia could perform, and participants expressed a desire that abilities and independence be preserved. However, support was sometimes needed, and it was emphasized that this was based on the person’s needs, wishes and problems.

In conclusion, there is an association between decreased cognitive ability and increased risk of malnutrition. Furthermore, foodwork and meals affected both persons with dementia and their partners. Therefore, early intervention whereby both partners in a couple get individually adjusted support is of importance. Consequently, a person-centred care approach can be useful in arranging the support.

Place, publisher, year, edition, pages
Jönköping: School of Health Sciences, 2013. 80 p.
Series
Hälsohögskolans avhandlingsserie, ISSN 1654-3602 ; 45
Keyword
aged, dementia, food, home nursing, independent living, malnutrition, meals
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-21179 (URN)978-91-85835-44-7 (ISBN)
Public defence
2013-06-14, Forum Humanum, Hälsohögskolan, Jönköping, 13:00
Opponent
Supervisors
Available from: 2013-05-16 Created: 2013-05-16 Last updated: 2015-10-23Bibliographically approved

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