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Empowerment in outpatient care for patients with chronic kidney disease - from the family member's perspective.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, The Jönköping Academy for Improvement of Health and Welfare.
Jönköping University, School of Health and Welfare, HHJ. Quality improvements, innovations and leadership in health care and social work. Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. (Kvalitetsförbättringar och ledarskap)
2011 (English)In: BMC Nursing, ISSN 1472-6955, E-ISSN 1472-6955, Vol. 10, no 21, 2-8 p.Article in journal (Refereed) Published
Abstract [en]

Background: Family members of persons with pre-dialysis chronic kidney disease may experience feelings of vulnerability and insecurity as the disease follows its course. Against this background, the aim of the present study was to explore empowerment in outpatient care as experienced by these family members.

Methods: An inductive approach for qualitative data analysis was chosen. The study sample comprised 12 family members of pre-dialysis patients at an outpatient kidney clinic. Two interviews with each family member were subjected to content analysis to gain an understanding of empowerment from the family members' perspective.

Results: Having strength to assume the responsibility was the main theme that emerged from the following five sub-themes: Being an involved participant, Having confirming encounters, Trusting in health-care staff, Comprehending through knowledge, and Feeling left out. Four of these five sub-themes were positive. The fifth subtheme illuminated negative experience, indicating the absence of empowerment.

Conclusions: Family members' experience of empowerment is dependent on their ability to assume the responsibility for a relative with chronic kidney disease when needed. The findings emphasise the need for a family perspective and the significance of a supportive environment for family members of persons in outpatient care.

Place, publisher, year, edition, pages
2011. Vol. 10, no 21, 2-8 p.
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-17013DOI: 10.1186/1472-6955-10-21OAI: oai:DiVA.org:hj-17013DiVA: diva2:473174
Projects
Briding the Gap I
Available from: 2012-01-05 Created: 2012-01-05 Last updated: 2016-01-04Bibliographically approved
In thesis
1. A quality improvement project on empowerment in chronic kidney care: an interactive research approach
Open this publication in new window or tab >>A quality improvement project on empowerment in chronic kidney care: an interactive research approach
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

One way of improving health care has been conceptualized as personcentred care. In person-centred care the concept of empowerment is crucial. This thesis aims was to explore the meaning of empowerment from the perspective of persons with chronic kidney disease (CKD) and their family members and to evaluate the outcomes of an improvement intervention (QI) for the persons with CKD. Furthermore, to explore the implementation of an QI for empowerment in the context of chronic kidney care from a professional perspective. The research was based on an interactive approach in which the findings relating to the experiences of empowerment by persons with CKD and their family members in chronic kidney care were used in developing the QI. The methods of data collection were both qualitative and quantitative. In all, 20 persons with CKD (Study I) and 12 family members (Study II) participated in the interviews. In the quasi-experimental evaluation of the QI, 25 individuals took part in the intervention group and 21 persons in the comparison group (Study III). Twelve healthcare professionals participated in the case study of the QI (Study IV). Empowerment in chronic kidney care for the persons with CKD was described in terms of creation of trust and learning through encounters. The family members of the persons with CKD described empowerment as having the strength to assume responsibility. The outcomes of the QI after 2 years showed significantly higher scores for individualized care in the intervention group than in the comparison group. The facilitators in the QI were the healthcare professionals' moving spirit and encouragement from involved persons. As a barrier, the healthcare professionals referred to the limitation of the organization. In conclusion, the individual’s perspective of empowerment is important, both for quality of care and as a facilitator for QI in chronic kidney care.

Place, publisher, year, edition, pages
Jönköping: School of Health Sciences, 2013. 93 p.
Series
Hälsohögskolans avhandlingsserie, ISSN 1654-3602 ; 44
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-21063 (URN)978-91-85835-43-0 (ISBN)
Public defence
2013-05-31, Forum Humanum Hälsohögskolan, Jönköping, 13:00
Opponent
Supervisors
Available from: 2013-04-30 Created: 2013-04-30 Last updated: 2016-01-04Bibliographically approved

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Nygårdh, AnnetteMalm, Dan Anders John
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HHJ, Dep. of Nursing ScienceThe Jönköping Academy for Improvement of Health and WelfareHHJ. Quality improvements, innovations and leadership in health care and social work
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