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Applying the ICF-CY to identify children's everyday life situations: A step towards participation-focused code sets
Jönköping University, School of Education and Communication, HLK, CHILD.
2013 (English)In: International Journal of Social Welfare, ISSN 1369-6866, E-ISSN 1468-2397, Vol. 22, no 2, 195-206 p.Article in journal (Refereed) Published
Abstract [en]

With the long-term goal to create a screening tool with code sets for children’s everyday life situations (ELS), the purpose of the present study was to identify ELS for children and youth aged 0-17 years. The views of professionals and parents in Sweden, South Africa, and US were integrated based on linkages to ICF-CY. The chapters Self-care and Major life areas seemed most obvious include ELS. At 2nd ICF-CY level, eleven categories emerged as ELS with Hygiene (d510-d530) and Recreation and leisure (d920) as the most obvious. Two sets of ELS were identified for infants/preschoolers and school aged children/adolescents. Professionals and parents agreed on ELS for the older age-group. Findings suggested that ELS differ in context specificity depending on maturity and growing autonomy. The study have implications for the future tool intending to support children with disabilities in describing what matters most for them in intervention planning.

Place, publisher, year, edition, pages
2013. Vol. 22, no 2, 195-206 p.
Keyword [en]
adolescent, child, disability, classification, ICF-CY, code set
National Category
Social Sciences Interdisciplinary
Identifiers
URN: urn:nbn:se:hj:diva-16194DOI: 10.1111/j.1468-2397.2012.00876.xISI: 000315692800009OAI: oai:DiVA.org:hj-16194DiVA: diva2:443665
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2011-09-26 Created: 2011-09-26 Last updated: 2016-09-20Bibliographically approved
In thesis
1. Applying the ICF-CY to identify everyday life situations of children and youth with disabilities
Open this publication in new window or tab >>Applying the ICF-CY to identify everyday life situations of children and youth with disabilities
2011 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Four studies were included in this doctoral dissertation aiming to investigatehow habilitation professionals perceive the ICF-CY in clinical work and to identify everyday life situations specific for children and youth aged 0-17 years. The ICF-CY was the conceptual framework and since the research was conducted on as well as with the ICF-CY, the use of the classification runs like a thread through all the work. The design was primarily qualitative and included descriptive and comparative content analyses. Study I was longitudinal, aiming to explore how an implementation of the ICF-CY in Swedish habilitation services was perceived. Studies II-IV were interrelated, aiming to explore children’s most common everyday life situations. Content in measures of participation, professionals’ perspectives, and external data on parents’ perspectives were linked to the ICF-CY and compared. Mixed methods design bridged the Studies III-IV.

Results in Study I indicated that knowledge on the ICF-CY enhanced professionals’ awareness of families’ views of child functioning and pointed to the need for ICF-CY based assessment and intervention methods focusing on child participation in life situations. A first important issue in this respect was to identify everyday life situations. Two sets of ten everyday life situations related to the ICF-CY component Activities and Participation, chapters d3-d9, were compiled and adopted for younger and older children respectively, establishing a difference in context specificity depending on maturity and growing autonomy. Furthermore, key constructs in the ICFCY model were discussed, additional ICF-CY linking rules were presented and suggestions for revisions of the ICF linking rules and the ICF-CY were listed. As the sample of everyday life situations reflects the perspectives of adults, further research has to add the perspective of children and youth. The identified everyday life situations will be the basis for the development of code sets included in a screening tool intended for self- or proxy- report of participation from early childhood through adolescence.

Place, publisher, year, edition, pages
Jönköping: School of Education and Communication, 2011. 124 p.
Series
Doktorsavhandlingar från Högskolan för lärande och kommunikation, ISSN 1652-7933 ; 14
Series
Studies from the Swedish Institute for Disability Research, ISSN 1650-1128 ; 39
Keyword
Adolescent, child, clasification, code set. disability, everyday life situation, hbilitation, ICF-CY, implementation, interdisciplinary, participation
National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:hj:diva-16195 (URN)978-91-628-8342-3 (ISBN)
Public defence
2011-10-21, Högskolan för lärande och kommunikation, Hb116, Högskolan Jönköping, Jönköping, 13:15 (English)
Opponent
Supervisors
Available from: 2011-09-28 Created: 2011-09-26 Last updated: 2015-12-21Bibliographically approved

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