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Professionals' views of children's everyday life situations and the relation to participation
Jönköping University, School of Education and Communication, HLK, CHILD.
Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.ORCID iD: 0000-0001-9597-039X
Uppsala universitet. (CHILD)
2012 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 34, no 7, 581-592 p.Article in journal (Refereed) Published
Abstract [en]

Purpose: The aim was to determine professionals’ views of everyday life situations (ELS) of importance for children and to explore how ELS correlate with the construct ‘Participation’. This study was part of a larger work to develop a structured tool with code sets to identify child participation and support children with disabilities to describe what matters most for them in intervention planning.

Method: The study had a concurrent mixed methods design. Information from one open-ended question and questionnaires were linked to the ICF-CY component Activities and Participation. Two concurrent data sets were compared.

Results: Proposed ELS were distributed across ICF-CY categories from low to high level of complexity and context specificity. The correlation with participation became stronger for the later chapters of the component (d7-d9). Differences between respondents due to working field, country, and children’s ages were explored. Acts and tasks seemed most important for the youngest children whereas ELS shifted towards societal involvement for adolescents.

Conclusion: Eleven categories related to ICF-CY chapters d3-d9 emerged as ELS. Two age groups (infants/preschoolers and adolescents) are required to develop code sets for the new tool. The results need triangulation with other concurrent studies to provide corroborating evidence and add a family perspective.

Place, publisher, year, edition, pages
2012. Vol. 34, no 7, 581-592 p.
Keyword [en]
adolescent, child, classification, disability, ICF-CY, participation
National Category
Social Sciences Interdisciplinary
Identifiers
URN: urn:nbn:se:hj:diva-16193DOI: 10.3109/09638288.2011.613519ISI: 000300259400006PubMedID: 21981363OAI: oai:DiVA.org:hj-16193DiVA: diva2:443663
Available from: 2011-11-14 Created: 2011-09-26 Last updated: 2016-09-19Bibliographically approved
In thesis
1. Applying the ICF-CY to identify everyday life situations of children and youth with disabilities
Open this publication in new window or tab >>Applying the ICF-CY to identify everyday life situations of children and youth with disabilities
2011 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Four studies were included in this doctoral dissertation aiming to investigatehow habilitation professionals perceive the ICF-CY in clinical work and to identify everyday life situations specific for children and youth aged 0-17 years. The ICF-CY was the conceptual framework and since the research was conducted on as well as with the ICF-CY, the use of the classification runs like a thread through all the work. The design was primarily qualitative and included descriptive and comparative content analyses. Study I was longitudinal, aiming to explore how an implementation of the ICF-CY in Swedish habilitation services was perceived. Studies II-IV were interrelated, aiming to explore children’s most common everyday life situations. Content in measures of participation, professionals’ perspectives, and external data on parents’ perspectives were linked to the ICF-CY and compared. Mixed methods design bridged the Studies III-IV.

Results in Study I indicated that knowledge on the ICF-CY enhanced professionals’ awareness of families’ views of child functioning and pointed to the need for ICF-CY based assessment and intervention methods focusing on child participation in life situations. A first important issue in this respect was to identify everyday life situations. Two sets of ten everyday life situations related to the ICF-CY component Activities and Participation, chapters d3-d9, were compiled and adopted for younger and older children respectively, establishing a difference in context specificity depending on maturity and growing autonomy. Furthermore, key constructs in the ICFCY model were discussed, additional ICF-CY linking rules were presented and suggestions for revisions of the ICF linking rules and the ICF-CY were listed. As the sample of everyday life situations reflects the perspectives of adults, further research has to add the perspective of children and youth. The identified everyday life situations will be the basis for the development of code sets included in a screening tool intended for self- or proxy- report of participation from early childhood through adolescence.

Place, publisher, year, edition, pages
Jönköping: School of Education and Communication, 2011. 124 p.
Series
Doktorsavhandlingar från Högskolan för lärande och kommunikation, ISSN 1652-7933 ; 14
Series
Studies from the Swedish Institute for Disability Research, ISSN 1650-1128 ; 39
Keyword
Adolescent, child, clasification, code set. disability, everyday life situation, hbilitation, ICF-CY, implementation, interdisciplinary, participation
National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:hj:diva-16195 (URN)978-91-628-8342-3 (ISBN)
Public defence
2011-10-21, Högskolan för lärande och kommunikation, Hb116, Högskolan Jönköping, Jönköping, 13:15 (English)
Opponent
Supervisors
Available from: 2011-09-28 Created: 2011-09-26 Last updated: 2015-12-21Bibliographically approved

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