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Illness-related problems and coping among persons with low-grade glioma.
Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
2005 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 14, no 9, p. 728-737Article in journal (Refereed) Published
Abstract [en]

The literature reveals no qualitative study concerning the consequences of low-grade glioma in adults. The aim of the present study was to describe perceived illness-related problems in persons with low-grade glioma and the coping used in everyday living. The study was cross-sectional within a well-defined population. A semi-structured qualitative interview was conducted with each of 39 persons, and the data were subjected to inductive content analysis. There was a wide range of perceived problems, mainly concerning bodily functions, memory, cognition, emotion, communication and perception. Several coping strategies emerged, the most frequent being searching for a solution, which was often related to memory and communication problems. One characteristic of communication was the creation of new words. Other common strategies were refraining from and avoiding and laughing and joking. Caring about self involved prioritizing of personal needs. A striving to feel a sense of solidarity within seeking social affinity was coping with a novel content. The study provides vivid narratives about previously unreported phenomena, conveying a deeper understanding. The variety and endurance of problems revealed verifies the need of support from several professionals, including in the form of out-patient post-medical care.

Place, publisher, year, edition, pages
2005. Vol. 14, no 9, p. 728-737
Keywords [en]
Adaptation; Psychological, Adult, Aged, Brain Neoplasms/pathology/*psychology, Cross-Sectional Studies, Defense Mechanisms, Disability Evaluation, Female, Follow-Up Studies, Glioma/pathology/*psychology, Humans, Interview; Psychological, Male, Middle Aged, Neoplasm Staging, Personality Assessment/statistics & numerical data, Problem Solving, Prognosis, Self Care, Sick Role
National Category
Nursing Nursing
Identifiers
URN: urn:nbn:se:hj:diva-3676PubMedID: 15669016OAI: oai:DiVA.org:hj-3676DiVA, id: diva2:34496
Available from: 2007-10-10 Created: 2007-10-10 Last updated: 2017-12-12Bibliographically approved

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Ahlström, Gerd

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