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Being the next of kin of an adult person with muscular dystrophy
Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
2006 (English)In: Clinical Nursing Research, ISSN 1054-7738, E-ISSN 1552-3799, Vol. 15, no 2, p. 86-104Article in journal (Refereed) Published
Abstract [en]

A chronic disorder affects all members of the family in various ways. The aim of this study is to elucidate the next of kin's (N= 36) experiences when an adult family member has muscular dystrophy. The relationships were partner (36%, n= 14), parent (18%, n= 7), child (21%, n= 8), sibling (15%, n= 6), and other relative (3%, n= 1). Latent content analysis is employed and involves an interpretation of the interviewtext. The results showthe meaning of being close to a person with muscular dystrophy through the themes that emerged: exposure of the family; the span between obligation and love; being vigilant, protective, and supportive; and striving for an ordinary life. This study reveals a need for healthcare staff to understand the next of kin's narrated meaning of changes when a family member has a progressive disease.

Place, publisher, year, edition, pages
2006. Vol. 15, no 2, p. 86-104
Keyword [en]
Adaptation; Psychological, Adult, Aged, Aged; 80 and over, Altruism, Attitude to Health, Caregivers/*psychology, Cost of Illness, Disease Progression, Family/*psychology, Female, Goals, Humans, Life Style, Love, Male, Middle Aged, Muscular Dystrophies/*nursing/psychology, Narration, Nursing Methodology Research, Qualitative Research, Questionnaires, Social Support, Sweden
National Category
Nursing Nursing
Identifiers
URN: urn:nbn:se:hj:diva-3654PubMedID: 16638828OAI: oai:DiVA.org:hj-3654DiVA, id: diva2:34474
Available from: 2007-10-10 Created: 2007-10-10 Last updated: 2017-12-12Bibliographically approved

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Ahlström, Gerd

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
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  • modern-language-association-8th-edition
  • vancouver
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Language
  • de-DE
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  • nn-NO
  • nn-NB
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  • Other locale
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Output format
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