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Personal assistance for patients living with a severe neurological disorder.
Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
2006 (English)In: Journal of Neuroscience Nursing, ISSN 0888-0395, Vol. 38, no 3, p. 183-193Article in journal (Refereed) Published
Abstract [en]

Patients with neurological diseases increasingly are being cared for at home. The purpose of this study was to describe stressful everyday experiences in connection with neurological disorders, to learn how people cope with such experiences, and gain knowledge about coping resources. Twenty-seven persons receiving personal assistance were interviewed twice at home. The 54 interviews were subjected to inductive content analysis. The persons encountered many problems in everyday life and usually handled them by means of acceptance, avoidance, practical problem solving, and reappraisal. Dependence on personal assistance gave rise to a sense of helplessness, but it was also the major coping resource. Nurses can improve home care by giving instruction and guidance to persons working as personal assistants.

Place, publisher, year, edition, pages
2006. Vol. 38, no 3, p. 183-193
Keywords [en]
Adaptation; Psychological, Adult, Chronic Disease, Female, Home Care Services, Humans, Male, Middle Aged, Nervous System Diseases/complications/*psychology/*rehabilitation, Professional-Patient Relations, Stress; Psychological/etiology/psychology, Sweden
National Category
Nursing Nursing
Identifiers
URN: urn:nbn:se:hj:diva-3651PubMedID: 16817671OAI: oai:DiVA.org:hj-3651DiVA, id: diva2:34471
Available from: 2007-10-10 Created: 2007-10-10Bibliographically approved

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Ahlström, Gerd

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