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Ethical values in personal assistance: narratives of people with disabilities
Uppsala University.
Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
2009 (English)In: Nursing Ethics, ISSN 0969-7330, Vol. 16, no 6, 759-774 p.Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to investigate the experiences of persons with severe functional disabilities who receive personal assistance in their homes, the focus being on their daily life in relation to the ethical principles represented in the Swedish Disability Act: autonomy, integrity, influence and participation. Qualitative interviews were performed with 26 persons and thereafter subjected to qualitative latent content analysis. The experiences of personal assistance were very much in accordance with the said principles, the most important factor being that one is met with understanding. The participants described situations in which their integrity was violated in that they were not treated as competent adults. This indicates the importance of future efforts in nursing to support personal assistants with ethical knowledge and supervision so that they can empower people with disabilities and thereby enable them to maintain their self-esteem and dignity.

Place, publisher, year, edition, pages
2009. Vol. 16, no 6, 759-774 p.
Keyword [en]
chronic disease, ethics, personal assistance services, participation, autonomy, integrity
Identifiers
URN: urn:nbn:se:hj:diva-11000DOI: 10.1177/0969733009341913PubMedID: 19889916OAI: oai:DiVA.org:hj-11000DiVA: diva2:280440
Available from: 2009-12-09 Created: 2009-12-09 Last updated: 2010-01-22Bibliographically approved

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