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Subjective quality of life in persons with low-grade glioma and their next of kin
Centre for Rehabilitation Research, Orebro County Council, Orebro, Sweden.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. Quality improvements, innovations and leadership in health care and social work.
2009 (English)In: International Journal of Rehabilitation Research, ISSN 0342-5282, E-ISSN 1473-5660, Vol. 32, no 1, p. 64-70Article in journal (Refereed) Published
Abstract [en]

Patients with low-grade glioma have a longer survival than patients with highly malignant glioma, and for this reason questions of quality of life (QoL) are of particular importance to such patients as well as to their next of kin. No studies have been found in which both adult patients with low-grade glioma and their next of kin have estimated their own QoL. This study was therefore designed to investigate the subjective QoL of these two groups. Thirty-nine patients with low-grade glioma selected from a well-defined county population and 27 next of kin participated in the study. The questionnaire used in the study was the subjective estimation of QoL. The main results and conclusions are as follows: the variable absence of work/meaningful occupation showed statistically significant lower ratings among patients than among next of kin. The results show significant influence mainly on the patients' and their next of kin's internal psychological condition; related to background variables but the pattern in the results was inconsistent. There is a need for recurrent rehabilitation during this long-term disease, and a need to give vocational rehabilitation to support the patient's desire to have a meaningful occupation. It is also of importance to include the patient's next of kin when offering rehabilitation.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2009. Vol. 32, no 1, p. 64-70
Keywords [en]
Quality of Life, Disability, Family, Low-grade glioma, Next of kin, Kajandi's instrument
National Category
Nursing Nursing
Identifiers
URN: urn:nbn:se:hj:diva-9744DOI: 10.1097/MRR.0b013e32830bfa8cISI: 000264360000008PubMedID: 19648803Scopus ID: 2-s2.0-67650870170OAI: oai:DiVA.org:hj-9744DiVA, id: diva2:228594
Available from: 2009-08-04 Created: 2009-08-04 Last updated: 2020-02-25Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
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Output format
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