Out-of-home participation among people living with dementia: A study in four countries Show others and affiliations
2022 (English) In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 21, no 5, p. 1636-1652Article in journal (Refereed) Published
Sustainable development 00. Sustainable Development, 11. Sustainable cities and communities
Abstract [en]
Social participation in out-of-home activities is important for people living with dementia, yet little is known about such participation. The aim of this study was to explore and compare out-of-home participation among people living with dementia in four countries by assessing different types of places of participation visited or no longer visited. A cross-sectional design was used to gather self-reported experiences concerning out-of-home participation among people with mild stage dementia living in Canada (n = 29), Sweden (n = 35), Switzerland (n = 35) and the UK (n = 64). Interviews were conducted using the Participation in ACTivities and places OUTside the Home for older adults (ACT-OUT) instrument. Participants still visited 16 (Median) places out of a possible total of 24, and they had abandoned 5 (Median) places. Neighbourhood was the place most participants still visited, whereas 50% of them had stopped going to a Sports facility, with no significant differences between country samples regarding how many participants had abandoned that place (Fisher’s exact test, p > 0.01). There were significant differences between country samples in the frequency of present participation and abandonment of the Hospital, Dentist’s office, Cemetery, Garden, and Forest (Fisher’s exact test, all p < 0.01). Although the participants still visited a variety of places, they had stopped going to places previously visited, which indicates reductions in participation, posing an inherent risk to well-being. The similarities and differences across samples from the four countries suggest that healthcare services and access to public transport may contribute to the complex interactional process of out-of-home participation for people living with dementia. The findings highlight the need for initiatives targeting specific types of places to support continued participation in society, especially places at a higher risk of abandonment such as places for recreation and physical activity.
Place, publisher, year, edition, pages Sage Publications, 2022. Vol. 21, no 5, p. 1636-1652
Keywords [en]
community, environment, neighbourhood, place, society, aged, cross-sectional study, dementia, gardening, human, land use, social participation, Cross-Sectional Studies, Gardens, Humans
National Category
Occupational Therapy
Identifiers URN: urn:nbn:se:hj:diva-64101 DOI: 10.1177/14713012221084173 ISI: 000783565700001 PubMedID: 35435030 Scopus ID: 2-s2.0-85129245210 OAI: oai:DiVA.org:hj-64101 DiVA, id: diva2:1855660
2024-05-022024-05-022024-05-06 Bibliographically approved