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Out-of-home participation among people living with dementia: A study in four countries
Division of Occupational Therapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Huddinge, Sweden.
Division of Occupational Therapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Huddinge, Sweden.
Division of Occupational Therapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Huddinge, Sweden.
Division of Occupational Therapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Uppsala University, Department of Women’s and Children’s Health, Clinical Psychology in Healthcare, Huddinge, Sweden.ORCID iD: 0000-0001-5804-0433
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2022 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 21, no 5, p. 1636-1652Article in journal (Refereed) Published
Sustainable development
00. Sustainable Development, 11. Sustainable cities and communities
Abstract [en]

Social participation in out-of-home activities is important for people living with dementia, yet little is known about such participation. The aim of this study was to explore and compare out-of-home participation among people living with dementia in four countries by assessing different types of places of participation visited or no longer visited. A cross-sectional design was used to gather self-reported experiences concerning out-of-home participation among people with mild stage dementia living in Canada (n = 29), Sweden (n = 35), Switzerland (n = 35) and the UK (n = 64). Interviews were conducted using the Participation in ACTivities and places OUTside the Home for older adults (ACT-OUT) instrument. Participants still visited 16 (Median) places out of a possible total of 24, and they had abandoned 5 (Median) places. Neighbourhood was the place most participants still visited, whereas 50% of them had stopped going to a Sports facility, with no significant differences between country samples regarding how many participants had abandoned that place (Fisher’s exact test, p > 0.01). There were significant differences between country samples in the frequency of present participation and abandonment of the Hospital, Dentist’s office, Cemetery, Garden, and Forest (Fisher’s exact test, all p < 0.01). Although the participants still visited a variety of places, they had stopped going to places previously visited, which indicates reductions in participation, posing an inherent risk to well-being. The similarities and differences across samples from the four countries suggest that healthcare services and access to public transport may contribute to the complex interactional process of out-of-home participation for people living with dementia. The findings highlight the need for initiatives targeting specific types of places to support continued participation in society, especially places at a higher risk of abandonment such as places for recreation and physical activity.

Place, publisher, year, edition, pages
Sage Publications, 2022. Vol. 21, no 5, p. 1636-1652
Keywords [en]
community, environment, neighbourhood, place, society, aged, cross-sectional study, dementia, gardening, human, land use, social participation, Cross-Sectional Studies, Gardens, Humans
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Occupational Therapy
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URN: urn:nbn:se:hj:diva-64101DOI: 10.1177/14713012221084173ISI: 000783565700001PubMedID: 35435030Scopus ID: 2-s2.0-85129245210OAI: oai:DiVA.org:hj-64101DiVA, id: diva2:1855660
Available from: 2024-05-02 Created: 2024-05-02 Last updated: 2024-05-06Bibliographically approved

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Gaber, Sophie N.

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