Making the BEST decision: The BESTa project development, implementation and evaluation of a digital Decision Aid in Swedish cancer screening programmes-a description of a research projectShow others and affiliations
2023 (English)In: PLOS ONE, E-ISSN 1932-6203, Vol. 18, no 12 December, article id e0294332
Article in journal (Refereed) Published
Sustainable development
3. Good health and well-being, 5. Gender equality
Abstract [en]
Sweden has a long tradition of organized national population-based screening programmes. Participation rates differ between programmes and regions, being relatively high in some groups, but lower in others. To ensure an equity perspective on screening, it is desirable that individuals make an informed decision based on knowledge rather than ignorance, misconceptions, or fear. Decision Aids (DAs) are set to deliver information about different healthcare options and help individuals to visualize the values associated with each available option. DAs are not intended to guide individuals to choose one option over another. The advantage of an individual Decision Aid (iDA) is that individuals gain knowledge about cancer and screening by accessing one webpage with the possibility to communicate with health professionals and thereafter make their decision regarding participation. The objective is therefore to develop, implement and evaluate a digital iDA for individuals invited to cancer screening in Sweden. Methods This study encompasses a process-, implementation-, and outcome evaluation. Multiple methods will be applied including focus group discussions, individual interviews and the usage of the think aloud technique and self-reported questionnaire data. The project is based on The International Patient Decision Aid Standards (IPDAS) framework and the proposed model development process for DAs. Individuals aged 23 74, including women (the cervical-, breast-and CRC screening module) and men (the CRC screening module), will be included in the developmental process. Efforts will be made to recruit participants with selfreported physical and mental limitations, individuals without a permanent residence and ethnic minorities. Discussion To the best of our knowledge, the present study is the first attempt aimed at developing an iDA for use in the Swedish context. The iDA is intended to facilitate shared decision making about participation in screening. Furthermore, the iDA is expected to increase knowledge and raise awareness about cancer and cancer screening.
Place, publisher, year, edition, pages
Public Library of Science (PLoS), 2023. Vol. 18, no 12 December, article id e0294332
Keywords [en]
Decision Making, Decision Support Techniques, Early Detection of Cancer, Female, Humans, Male, Neoplasms, Patient Participation, Sweden, adult, aged, Article, awareness, cancer mortality, cancer screening, health care, health practitioner, human, individual decision aid, lifestyle, outcome assessment, physical activity, questionnaire, self report, social media, Swedish citizen, decision support system, early cancer diagnosis, epidemiology, neoplasm, procedures
National Category
Cancer and Oncology
Identifiers
URN: urn:nbn:se:hj:diva-63266DOI: 10.1371/journal.pone.0294332ISI: 001125177300004PubMedID: 38085710Scopus ID: 2-s2.0-85179639624Local ID: GOA;intsam;926102OAI: oai:DiVA.org:hj-63266DiVA, id: diva2:1825691
2024-01-102024-01-102024-01-19Bibliographically approved