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Exploring the perspectives of current and future sibling caregivers to a person with a neurodevelopmental disorder – implications for occupational therapy. A scoping review.
Jönköping University.
2023 (English)Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
Abstract [en]

Introduction: Numerous studies have examined caregiver burden and stress, yet few represent the perspective from the sibling caregiver of a person with a neurodevelopmental disorder within the context of occupational therapy practice. Therefore, this scoping review provides a review of current evidence. Aim: The aim of the study is to review current literature to find sibling caregiver perspectives on their roles as caregivers to an individual with a neurodevelopmental disorder and whether their perspectives can influence improvements to the occupational therapy practice. Method: A scoping review methodology was chosen to map out the available literature and summarise the findings. The author conducted this review using guidance from the Joanna Briggs Institute. Results: The review resulted in 11 articles and reviewed the perspectives of 1181 sibling participants. The findings resulted in five main themes: (1) Need for education and training opportunities in relation to caregiving; (2) Policy and guideline changes in relation to sibling caregiver involvement; (3) Sibling caregiver inclusion into the care pathway; (4) Need for improvements in service coordination; and (5) Sibling caregivers' lack of knowledge in guardianship matters. Conclusions: Both positive experiences and negative challenges were reported from sibling experiences when accessing healthcare services. Ideas and strategies were discussed by sibling caregivers in how to improve services. Significance:  This review identified practical strategies which can be used in occupational therapy practice to support and improve services in relation to working with sibling caregivers. 

Place, publisher, year, edition, pages
2023. , p. 37
Keywords [en]
Adults; Brothers; Intellectual Disability; Learning Disability; Occupational Therapy; Sisters
National Category
Occupational Therapy
Identifiers
URN: urn:nbn:se:hj:diva-62471ISRN: JU-HHJ-ATA-2-20230312OAI: oai:DiVA.org:hj-62471DiVA, id: diva2:1797467
Subject / course
HHJ, Occupational Therapy
Supervisors
Examiners
Available from: 2023-09-15 Created: 2023-09-14 Last updated: 2023-09-15Bibliographically approved

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Kayleigh Tudor. Thesis(777 kB)25 downloads
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CiteExportLink to record
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