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Navigating through technological landscapes: Views of people with dementia or MCI and their significant others
Department of Neurobiology, Care Sciences And Society, Division of Occupational Therapy, Karolinska Institutet, Stockholm, Sweden.ORCID iD: 0000-0003-1727-369X
2009 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The general aim of this thesis was to increase knowledge about people with MCI or dementia and their significant others, particularly as users of everyday technology and assistive technology (AT). The overall aim included increasing knowledge about the interactions between people with MCI or dementia and their significant others, and technology.

In Study I the psychometric properties of the Everyday Technology Use Questionnaire (ETUQ), when used with older adults with and without cognitive deficits, were investigated using the Rasch rating scale model. Study II compared the perceived relevance of and difficulty in using everyday technology, measured with the ETUQ, in people with mild-stage dementia, people with MCI, and older adults without known cognitive impairment, using one-way ANOVA analyses. In Study III, actions and driving forces of the agents involved in the process of introducing AT to people with dementia were explored, using a case study methodology combined with grounded theory. Study IV explored and described how significant others of people with dementia related to technology, and their readiness to use AT together with the person with dementia, using a grounded theory approach with focus groups and individual interviews.

The findings of Study I suggested that the ETUQ demonstrates acceptable validity in terms of internal scale validity and person response validity, when used in this population. The ETUQ showed sensitivity in detecting differences between three subgroups in perceived difficulties in everyday technology use. Study II showed significant differences in perceived difficulty in everyday technology use between all three groups. Here everyday technology was perceived most difficult by people with dementia, followed by people with MCI, and older adults without known cognitive impairment. It also suggested that older adults with MCI or dementia experienced fewer technology artifacts and services as relevant to their daily lives, as compared to older adults without knowncognitive impairment. In Study III, Doing the right thing was the main driving force among actors in this AT intervention process. However, as conflicting views appeared of what the right thing to do was, findings suggest that it is important to be attentive to who has decision power, as this person is likely to influence the process profoundly. Study IV s findings showed that the significant others took a utilitarian perspective on technology, as they refused technology for technology s sake but showed an overall readiness toward using technology if they considered it to benefit them and their relatives with dementia. Technology was found to be important for keeping an active lifestyle and for creating and maintaining self-images among people with dementia and their significant others.

The thesis contributed new knowledge about the perceived relevance of and difficulty in everyday technology use in older adults, particularly in those with MCI or dementia. Findings also indicate that the ETUQ is a tool that generates valid, sensitive measures of perceived difficulty in everyday technology use, and valuable information about its perceived relevance that may support researchers and clinicians. The thesis contributed new knowledge about the complex situation of a person with dementia and his/her significant others when AT is introduced in the home, suggesting the need of a more flexible and process-oriented procedure with ends-in-view instead of clearly set goals. Significant others of people with dementia were found to be generally ready to adopt technology, although they took a utilitarian perspective. Technology was perceived by them as important for keeping an active lifestyle and for creating and maintaining self-images, which suggests that such conceptions should be considered. Finally, the thesis contributes knowledge of design-related principles and conditions that may be decisive in transactions between people with dementia andtechnology. It is suggested that what is communicated through the interface of the technology isparticularly crucial, as this is likely to guide the person through suitable use, whereas instructions are likely to be forgotten.

Place, publisher, year, edition, pages
Stockholm: Karolinska institutet , 2009. , p. 89
National Category
Occupational Therapy Neurology
Identifiers
URN: urn:nbn:se:hj:diva-59610ISBN: 9789174095616 (print)OAI: oai:DiVA.org:hj-59610DiVA, id: diva2:1733571
Available from: 2023-02-02 Created: 2023-02-02 Last updated: 2023-02-02Bibliographically approved
List of papers
1. Everyday technology use questionnaire: Psychometric evaluation of a new assessment of competence in technology use
Open this publication in new window or tab >>Everyday technology use questionnaire: Psychometric evaluation of a new assessment of competence in technology use
2009 (English)In: OTJR (Thorofare, N.J.), ISSN 1539-4492, E-ISSN 1938-2383, Vol. 29, no 2, p. 52-62Article in journal (Refereed) Published
Abstract [en]

People with mild cognitive impairment or dementia in a mild phase who live at home are expected to manage the everyday technology that is common in this context. However, the knowledge of how technology use may interfere with the performance of daily activities is sparse. The purpose of this study was to evaluate whether a new instrument measuring relevance and competence in everyday technology use, the Everyday Technology Use Questionnaire, could generate linear measures of competence in a valid manner when used in a population of 157 older adults with and without cognitive impairment or dementia. The results from this study indicate that the Everyday Technology Use Questionnaire demonstrates acceptable levels of scale validity and person response validity, supporting researchers and clinicians with a tool that generates a valid measure of competence in use of everyday technology for people with mild cognitive impairment or dementia in a mild phase who live at home.

Place, publisher, year, edition, pages
Sage Publications, 2009
Keywords
Dementia, Instrumental activities of daily living, Older adults, adult, aged, article, cognition, competence, controlled study, daily life activity, demography, everyday technology use questionnaire, female, human, internal validity, major clinical study, male, mild cognitive impairment, psychometry, questionnaire, rating scale
National Category
Occupational Therapy
Identifiers
urn:nbn:se:hj:diva-59592 (URN)10.3928/15394492-20090301-05 (DOI)000264840800002 ()2-s2.0-64849102947 (Scopus ID)
Available from: 2023-02-01 Created: 2023-02-01 Last updated: 2023-02-02Bibliographically approved
2. Perceived difficulty in everyday technology use among older adults with or without cognitive deficits
Open this publication in new window or tab >>Perceived difficulty in everyday technology use among older adults with or without cognitive deficits
2009 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 16, no 4, p. 216-226Article in journal (Refereed) Published
Abstract [en]

This study's purpose was comparing perceived relevance of and difficulty in use of everyday technology such as remote controls, cell phones, and microwave ovens, in older adults with/without cognitive deficits. Three groups included 157 participants; 34 had mild-stage dementia, 30 had mild cognitive impairment (MCI), and 93 lacked known cognitive impairments. Data were collected in structured interviews with the Everyday Technology Use Questionnaire (ETUQ). Analyses revealed that participants with no known cognitive deficits (Group 3) considered a higher proportion of technologies relevant to their life situation than participants with mild-stage dementia (Group 1) and those with MCI (Group 2). Furthermore, participants with no known cognitive deficits reported the lowest mean level of perceived difficulty in everyday technology use, followed by those with MCI and those with mild-stage dementia. All three groups differed significantly (p <0.01; p <0.001) in perceived difficulty using technology, indicating that measurement of perceived difficulty in everyday technology use may sensitively detect changes resulting from MCI/dementia. Findings indicate that perceived difficulty in using everyday technology increases in people with MCI and is accentuated in mild-stage dementia. This calls for increased attention to these issues when assessing functional ability in daily activities of older adults with possible MCI/dementia, and for further research. © 2009 Informa UK Ltd.

Place, publisher, year, edition, pages
Taylor & Francis, 2009
Keywords
Activities of daily living, Assessment, Dementia, Home environment, IADL, MCI, adult, aged, article, cognitive defect, controlled study, daily life activity, disease severity, female, functional status, human, life event, major clinical study, male, microwave cooking, mild cognitive impairment, mobile phone, questionnaire, structured interview, technology, case control study, cross-sectional study, human computer interaction, interview, man machine interaction, middle aged, psychology, self concept, Sweden, very elderly, Aged, 80 and over, Case-Control Studies, Computer Literacy, Cross-Sectional Studies, Humans, Interviews as Topic, Man-Machine Systems, Self Efficacy
National Category
Occupational Therapy Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-59591 (URN)10.3109/11038120802684299 (DOI)000278021800003 ()19148847 (PubMedID)2-s2.0-72049128885 (Scopus ID)
Funder
Swedish Research Council
Available from: 2023-02-01 Created: 2023-02-01 Last updated: 2023-02-02Bibliographically approved
3. Persons with dementia become users of assistive technology: A study of the process
Open this publication in new window or tab >>Persons with dementia become users of assistive technology: A study of the process
2012 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 11, no 2, p. 135-154Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to explore actions and driving forces of the actors involved in the process of bringing assistive technology (AT) into the life of a person with dementia. Specific focus is placed on the unfolding transactions and what they led to, and how the AT intervention corresponded to the situation of the person with dementia. Three cases, i.e. three persons with dementia and their significant others (n=13), were followed using case methodology and grounded theory. The findings show how doing the right thing was the main driving force, although sometimes a source of conflict between actors. The actors' views differed in many aspects, influencing the choice of problem and selected AT solution as well as the role of the AT and how it was placed and adjusted. A potential risk scenario was also identified, exemplifying how profoundly the view of the one who had decision power influenced the process.

Place, publisher, year, edition, pages
Sage Publications, 2012
Keywords
home environment, home help service, intervention, occupational therapy, significant others
National Category
Occupational Therapy Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-59590 (URN)10.1177/1471301211421257 (DOI)000209111700001 ()2-s2.0-84858629459 (Scopus ID)
Note

Included in doctoral thesis in manuscript form.

Available from: 2023-02-01 Created: 2023-02-01 Last updated: 2023-02-02Bibliographically approved
4. Readiness for technology use with people with dementia: The perspectives of significant others
Open this publication in new window or tab >>Readiness for technology use with people with dementia: The perspectives of significant others
2012 (English)In: Journal of Applied Gerontology, ISSN 0733-4648, E-ISSN 1552-4523, Vol. 31, no 4, p. 510-530Article in journal (Refereed) Published
Abstract [en]

Technology is believed to have a potential for supporting significant others of people with dementia but little is known of their experiences and views of technology. The aim of this study is to explore how significant others relate to technology and to their relatives with dementia as technology users. The focus is on both their own use of technology as significant others and the use of technology by their relatives with dementia. Individual interviews and focus group discussions were undertaken and analyzed using a grounded theory approach. The significant others showed an overall readiness toward using technology in their present roles. Technology use in daily activities was perceived to be an important means to keeping retained abilities exercised but could also be perceived as a possible threat to health if activities were oversimplified. The significant others asked for flexible technology not perceived as stigmatizing, to be integrated into existing habits.

Place, publisher, year, edition, pages
Sage Publications, 2012
Keywords
aging, assistive technology, environment, everyday technology, home, society, adult, aged, dementia, female, grounded theory, human, interview, lifestyle, major clinical study, male, medical technology, review
National Category
Occupational Therapy Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-59589 (URN)10.1177/0733464810396873 (DOI)000305916100003 ()2-s2.0-84863585646 (Scopus ID)
Note

Included in doctoral thesis in manuscript form.

Available from: 2023-02-01 Created: 2023-02-01 Last updated: 2023-02-02Bibliographically approved

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