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Perpetuating harms from isolation among older adults with cognitive impairment: observed discrepancies in homecare service documentation, assessment and approval practices
Department of Community Medicine and Rehabilitation, Occupational Therapy, Umeå University, Umeå, Sweden.
Institute of Gerontology, Wayne State University, Detroit, MI, USA; Department of Neurobiology, Care Sciences and Society, Division of Occupational Therapy, Karolinska Institutet, Huddinge, Sweden.
Jönköping University, School of Health and Welfare, HHJ, Dept. of Rehabilitation. Department of Neurobiology, Care Sciences and Society, Division of Occupational Therapy, Karolinska Institutet, Huddinge, Sweden.ORCID iD: 0000-0003-1727-369X
Department of Neurobiology, Care Sciences and Society, Division of Occupational Therapy, Karolinska Institutet, Huddinge, Sweden.
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2018 (English)In: BMC Health Services Research, E-ISSN 1472-6963, Vol. 18, article id 800Article in journal (Refereed) Published
Abstract [en]

Background: Older persons with cognitive impairment (CI) risk social isolation. Strong evidence shows that perceived loneliness, or inadequate social networks, triggers and increases health problems. How homecare systems address social participation remains unknown; anecdotal data suggests there are significant gaps. This study's objective was to identify and describe how the assessors of homecare needs document social participation among persons with CI and how their documentation corresponds with the services actually provided to meet social needs. The research questions were: How and what kinds of social participation needs are documented on need assessment forms? What types of homecare services (with a social focus) are documented and approved? How are specified needs in social participation profiles addressed by a homecare service?

Methods: Descriptive data from need assessment forms and their attached care plans for all applicants aged 65+ were collected during a 2 month period from a large homecare agency serving a municipality in Sweden. Persons with documented CI (n = 43) in the group were identified. Qualitative data analysis was conducted to examine the research questions.

Results: Social participation factors were not documented consistently. The relationship between recognition of limitations to social participation and approval of service eligibility was not consistent. Social participation was designated by references to social status, sometimes by social network size, and occasionally by limitations to social participation. The range of approved homecare services (with social focus) covered services such as day care center visits or companionship. Three profiles of social participation were identified: clients with, (a) no participation limitations; (b) potential limitations; and (c) marked limitations.

Conclusion: Given the known health harms from social isolation and the high risk of isolation among older persons with CI, this novel study's documentation of inadequate and inconsistent information in homecare social need assessments and services is sobering. The findings suggest a pressing need for initiatives to formulate best practices and standards to ensure alignment of care service systems to the health needs of the growing group of aging individuals with CI.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2018. Vol. 18, article id 800
Keywords [en]
Homecare services, Social participation, Cognitive impairment, Dementia diseases, MCI, Compliance, Eligibility
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:hj:diva-59565DOI: 10.1186/s12913-018-3616-6ISI: 000450986500004PubMedID: 30342514Scopus ID: 2-s2.0-85055071531OAI: oai:DiVA.org:hj-59565DiVA, id: diva2:1733096
Funder
Forte, Swedish Research Council for Health, Working Life and WelfareAvailable from: 2023-02-01 Created: 2023-02-01 Last updated: 2023-02-01Bibliographically approved

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Nilsson, IngeborgRosenberg, Lena

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