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Health and functioning in everyday life of children who completed a brain tumor treatment: A longitudinal analysis on professionals’ records
Jönköping University, School of Education and Communication, HLK, CHILD. (Child)
2022 (English)Independent thesis Advanced level (degree of Master (Two Years)), 10 credits / 15 HE creditsStudent thesisAlternative title
Health and functioning in everyday life of children who completed a brain tumor treatment : A longitudinal analysis on professionals’ records (English)
Abstract [en]

Children who have survived a brain tumor often experience late consequences as a result of the tumor itself, and/or treatment. The child’s ability to engage in daily activities may be restricted by these late consequences. Examples of these late consequences are challenges with their activity levels and engagement in daily activities. Therefore, it is important to study these children’s late consequences over time. The aim of the thesis is to use data from medical and school records linked to ICF, to investigate how the participation problems/ restrictions of children that completed cancer directed treatment for a brain tumor tend to occur simultaneously with codes from other ICF components, over time. For the present research the inclusion criteria were children that were followed by the habilitation service, school and health care for at least 4 years after completing their brain tumor treatment. Seven children were included in the study. For each child, records were obtained from habilitation, school and health care and a complete retrospective screening was conducted between February 2022 and April 2022. Problems in relation to everyday life were identified and linked to ICF codes and domains. Descriptive statistics was used to analyze the data, in order to see the re-occurrences of the ICF domains during the time and observe the trajectory and intensity of the problems. The results revealed that the problems linked to body functions were the most frequently mentioned ICF domain by all three services as well as over time. Problems over time related to activity and participation were less focused and little emphasis were focused on problems related to the environment. The pattern over time was very individual. In order to more prominent focus on the child’s everyday functioning, follow-up guidelines should also include the child's functioning in everyday life, and not only areas related to body function. To conclude, when caring for these children, it is important to also focus on the child’s function in everyday life and to individualize the care since the pattern of problems over time seems to be very individual.

Place, publisher, year, edition, pages
2022. , p. 32
Keywords [en]
pediatric brain tumor, ICF, participation, longitudinal analysis, professionals’ records
National Category
Cancer and Oncology Pediatrics Psychology
Identifiers
URN: urn:nbn:se:hj:diva-59235ISRN: JU-HLK-SBU-2-20220140OAI: oai:DiVA.org:hj-59235DiVA, id: diva2:1722205
Subject / course
HLK, Child Studies
Presentation
2022-11-30, Gjuterigatan 5, Jönköping, 21:03 (English)
Supervisors
Examiners
Projects
Using ICF to Describe Problems With Functioning in Everyday Life for Children Who Completed Treatment for Brain Tumor: An Analysis Based on Professionals' Documentation
Note

Available from: 2023-01-25 Created: 2022-12-27 Last updated: 2023-02-22Bibliographically approved

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