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Developing a Framework for the Support of Informal Caregivers: Experiences from Sweden, Ireland, and the United States
Jönköping University, School of Health and Welfare, HHJ, Institute of Gerontology. Social Work and Social Policy, Dementia Care NUI Galway, Trinity College Dublin, Dublin, Ireland.ORCID iD: 0000-0002-4196-6464
Jönköping University, School of Health and Welfare, HHJ, Institute of Gerontology.ORCID iD: 0000-0001-9021-1802
Jönköping University, School of Health and Welfare, HHJ, Institute of Gerontology. Department of Human Development and Family Studies, Penn State University, University Park, PA, USA.ORCID iD: 0000-0002-0351-2090
2023 (English)In: Research on Aging, ISSN 0164-0275, E-ISSN 1552-7573, Vol. 45, no 3-4, p. 385-395Article in journal (Refereed) Published
Sustainable development
Sustainable Development
Abstract [en]

Policies and services to support informal caregivers vary considerably across countries. This paper examines the role of caregivers and how perspectives on that role may influence the availability of benefits and services in three countries that differ considerably in their care systems - Sweden, Ireland and the United States. We developed a nine-dimensional framework for examining differences, including policies and how the role of caregiver is conceptualized. We found differences in the three countries in how services are organized, which reflected assumptions about the caregiver role. There were also similarities in the three countries. Caregivers held an ambiguous position within each social system and there was little concern for equity in the delivery of support services. Increased clarity about the role of caregivers may facilitate development of policies that more effectively meet their varied needs.

Place, publisher, year, edition, pages
Sage Publications, 2023. Vol. 45, no 3-4, p. 385-395
Keywords [en]
caregiving, cross-national research, dementia, gender roles, welfare state
National Category
Gerontology, specialising in Medical and Health Sciences Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:hj:diva-58047DOI: 10.1177/01640275221113356ISI: 000821645600001PubMedID: 35794800Scopus ID: 2-s2.0-85133837626Local ID: ;intsam;822880OAI: oai:DiVA.org:hj-58047DiVA, id: diva2:1684456
Available from: 2022-07-26 Created: 2022-07-26 Last updated: 2023-05-02Bibliographically approved

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Cahill, SuzanneBielsten, ThereseZarit, Steven H.

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