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Dental health care for children with Down syndrome: Parents' description of their children's needs in dental health care settings.
Jönköping University, School of Health and Welfare, HHJ, Dept. of Natural Science and Biomedicine. Jönköping University, School of Health and Welfare, HHJ. Centre for Oral Health. Jönköping University, School of Health and Welfare, HHJ. CHILD.ORCID iD: 0000-0002-5236-5533
Jönköping University, School of Health and Welfare, HHJ. CHILD. National Oral Disability Centre for Rare Disorders, The Institute for Postgraduate Dental Education, Jönköping, Sweden.ORCID iD: 0000-0003-3123-753X
School of Nursing, The University of North Carolina at Chapel Hill, North Carolina, USA.
Center for Dentistry and Oral hygiene, University Medical Centre, University of Groningen, Groningen, The Netherlands; Dept. of Special Care in Dentistry, Oral Health Sciences, University of Gent, Gent, Belgium.
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2022 (English)In: European Journal of Oral Sciences, ISSN 0909-8836, E-ISSN 1600-0722, Vol. 130, no 3, article id e12859Article in journal (Refereed) Published
Abstract [en]

A visit to the dental clinic may be challenging for a child with Down syndrome due to medical and oral health problems as well as communication problems. The aim of the present study was to explore how parents of children with Down syndrome describe their child's needs in the dental health care setting. In a survey concerning parental experiences with dental health care in Sweden, free comments were analysed with content analysis and resulted in five categories: "Need for continuity of care in dental health care"; "Need for dental health care professionals to have knowledge and expertise in caring for children with Down syndrome and other disabilities"; "Need for dental health care professionals to use a caring approach with children with Down syndrome"; "Need for the child with Down syndrome to be prepared to participate in their dental health care visit" and "Need for the child with Down syndrome to be given the same rights as typically developing children". To support children with Down syndrome in an optimal way, dental health care needs to be tailored to meet the child's unique needs. In addition, dental health care professionals need knowledge of and expertise in the care of children with Down syndrome.

Place, publisher, year, edition, pages
John Wiley & Sons, 2022. Vol. 130, no 3, article id e12859
Keywords [en]
Down syndrome, children, children's rights, dental health care
National Category
Dentistry Nursing
Identifiers
URN: urn:nbn:se:hj:diva-55953DOI: 10.1111/eos.12859ISI: 000761263100001PubMedID: 35218581Scopus ID: 2-s2.0-85125182216Local ID: HOA;intsam;797753OAI: oai:DiVA.org:hj-55953DiVA, id: diva2:1640939
Funder
Futurum - Academy for Health and Care, Jönköping County Council, SwedenAvailable from: 2022-02-28 Created: 2022-02-28 Last updated: 2022-09-19Bibliographically approved

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Stensson, MalinNorderyd, JohannaBjörk, Maria

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European Journal of Oral Sciences
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