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Experiences of Parents of Specialist Peer Mentored Autistic University Students
Cooperative Research Centre for Living with Autism (Autism CRC), Queensland, Australia; School of Allied Health, Curtin University, Perth, Western Australia, Australia.
Cooperative Research Centre for Living with Autism (Autism CRC), Queensland, Australia; School of Allied Health, Curtin University, Perth, Western Australia, Australia.
Department of Pediatrics, Vanderbilt University Medical Center, Nashville, USA; Vanderbilt Kennedy Center, Vanderbilt University Medical Center, Nashville, USA.
Jönköping University, School of Health and Welfare, HHJ. CHILD. Cooperative Research Centre for Living with Autism (Autism CRC), Queensland, Australia; School of Allied Health, Curtin University, Perth, Western Australia, Australia; Pain and Rehabilitation Centre, and Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.ORCID iD: 0000-0002-0756-6862
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2021 (English)In: Developmental Neurorehabilitation, ISSN 1751-8423, E-ISSN 1751-8431, Vol. 24, no 6, p. 368-378Article in journal (Refereed) Published
Abstract [en]

Background: Parents continue to support to autistic university students, and consequently, experience considerable stress.

Aim: To explore the experiences of parents of specialist peer mentored university students and to examine these using the ICF as a theoretical framework.

Method: Thirteen semi-structured interviews were completed and analyzed using thematic analysis. Directive content analysis linked the data to the ICF core set for autism spectrum disorders (ASD).

Results: Five interrelated themes emerged: The mentoring relationship is a facilitator, Developing skills for university, Mentoring changes lives, Mentoring is not a substitute for other supports, and University is an emotional rollercoaster. Specialist peer mentoring was linked to Activity and Participation (44%) and Environmental factors (32%) of the ICF core set for ASD.

Conclusion: These results add to the specialist peer mentoring evidence-base, and indicate perceived benefits for autistic university students and their parents. An unintended consequence was that parents broadened their participation in activities.

Place, publisher, year, edition, pages
Taylor & Francis, 2021. Vol. 24, no 6, p. 368-378
Keywords [en]
Autism spectrum disorder, mentoring, parents, parent–child relationship, supports, university
National Category
Psychiatry
Identifiers
URN: urn:nbn:se:hj:diva-55354DOI: 10.1080/17518423.2021.1886190ISI: 000618313500001PubMedID: 33588672Scopus ID: 2-s2.0-85100940570Local ID: ;intsam;1620597OAI: oai:DiVA.org:hj-55354DiVA, id: diva2:1620597
Available from: 2021-12-16 Created: 2021-12-16 Last updated: 2023-05-08Bibliographically approved

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Falkmer, Torbjörn

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