A scoping review of the caregiver burden of pediatric food allergyShow others and affiliations
2021 (English)In: Annals of Allergy, Asthma & Immunology, ISSN 1081-1206, E-ISSN 1534-4436, Vol. 127, no 5, p. 536-Article in journal (Refereed) Published
Abstract [en]
Objective
While a number of papers have described the psychosocial impact of raising a child with a food allergy, recent attempts at synthesizing this literature have been narrow in focus and/or methodologically limited. Consequently, the current study aimed to synthesize both the quantitative and qualitative literature in order to achieve a better understanding of the psychosocial and financial burdens faced by families raising children with food allergy.
Data Sources
Searches were performed on PubMed, Scopus, PsycInfo and CINAHL for articles related to the psychosocial and financial burden experienced by individuals caring for a child with food allergy.
Study Selections
English language, original research articles were included in the current review.
Results
A total of 53 articles were deemed eligible for review. Results from the quantitative literature revealed that parents of children with food allergy (i.e., food allergy and food protein-induced enterocolitis, proctocolitis, and enteropathy) consistently reported lower QoL relative to their comparison groups. Within-group analyses suggest that this burden is increased for parents managing multiple food allergies, severe food allergy, and comorbid allergic conditions. Thematic synthesis of the qualitative literature suggests that the psychosocial burden shouldered by parents of children with food allergy stems, in part, from the unpredictable threat of exposure as well as the practical and social burdens of managing a food allergy. In addition to psychosocial burdens, a small but growing body of literature suggests that families with food allergy also incur greater financial costs.
Conclusion
Findings suggest that pediatric food allergy imposes considerable burdens on parents both quantitatively and qualitatively.
Place, publisher, year, edition, pages
Elsevier, 2021. Vol. 127, no 5, p. 536-
Keywords [en]
food allergy, caregiver burden, cost of illness, mixed-methods
National Category
Social Work
Identifiers
URN: urn:nbn:se:hj:diva-52440DOI: 10.1016/j.anai.2021.04.034ISI: 000710892800007PubMedID: 33971359Scopus ID: 2-s2.0-85108210076OAI: oai:DiVA.org:hj-52440DiVA, id: diva2:1553858
2021-05-112021-05-112021-11-18Bibliographically approved