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Beyond the shrinking world: dementia, localisation and neighbourhood
Faculty of Social Sciences, University of Stirling, Stirling, UK.
Faculty of Social Sciences, University of Stirling, Stirling, UK.
Jönköping University, School of Health and Welfare, HHJ, Dept. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. ADULT. Jönköping University, School of Health and Welfare, The Jönköping Academy for Improvement of Health and Welfare.ORCID iD: 0000-0002-8163-5045
About Dementia Project Manager, Age Scotland, Edinburgh, UK.
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2022 (English)In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 42, no 12, p. 2892-2913Article in journal (Refereed) Published
Abstract [en]

‘Dementia-friendly communities’ herald a shift toward the neighbourhood as a locus for the care and support of people with dementia, sparking growing interest in the geographies of dementia care and raising questions over the shifting spatial and social experience of the condition. Existing research claims that many people with dementia experience a ‘shrinking world’ whereby the boundaries to their social and physical worlds gradually constrict over time, leading to a loss of control and independence. This paper reports a five-year, international study that investigated the neighbourhood experience of people with dementia and those who care for and support them. We interrogate the notion of a shrinking world and in so doing highlight an absence of attention paid to the agency and actions of people with dementia themselves. The paper draws together a socio-relational and embodied-material approach to question the adequacy of the shrinking world concept as an explanatory framework and to challenge reliance within policy and practice upon notions of place as fixed or stable. We argue instead for the importance of foregrounding ‘lived place’ and attending to social practices and the networks in which such practices evolve. Our findings have implications for policy and practice, emphasising the need to bolster the agency of people living with dementia as a route to fostering accessible and inclusive neighbourhoods.

Place, publisher, year, edition, pages
Cambridge University Press, 2022. Vol. 42, no 12, p. 2892-2913
Keywords [en]
care, community, dementia, dementia-friendly, neighbourhood, environment
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-52071DOI: 10.1017/S0144686X21000350ISI: 000742557300001Scopus ID: 2-s2.0-85102881453Local ID: HOA;intsam;1539059OAI: oai:DiVA.org:hj-52071DiVA, id: diva2:1539059
Available from: 2021-03-22 Created: 2021-03-22 Last updated: 2023-02-13Bibliographically approved

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Odzakovic, Elzana

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