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A moment just for me – parents’ experiences of an intervention for person-centred information in paediatric oncology
Umeå University, Department of Nursing, Umeå, Sweden.
Karlstad University, Department of Health Sciences, Karlstad, Sweden.
Umeå University, Department of Nursing, Umeå, Sweden.
Umeå University, Department of Nursing, Umeå, Sweden.
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2021 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 51, article id 101923Article in journal (Refereed) Published
Abstract [en]

Purpose: Information can help parents of children with cancer by reducing uncertainty and giving them a sense of control in a chaotic situation. Although providing information to parents is a core activity of paediatric oncology nursing, few studies focus on interventions for informing parents. Thus, the aim of this study is to evaluate parents’ experiences after participating in a person-centred information intervention for parents of children with cancer. Method: This study is part of a process evaluation of a person-centred informational intervention in paediatric oncology for patients’ parents. Qualitative semi-structured interviews with 13 parents who had taken part in the intervention were analysed using qualitative content analysis. Results: An opening for healing emerged as the overarching theme, consisting of three categories. Gaining a deeper understanding of the entire situation describes how parents benefitted from processing current topics and moving forward by learning. Caring reflections in a safe space describes how parents appreciated having a moment just for themselves and feeling better by venting their feelings. Meeting a competent and compassionate nurse describes how parents experienced trust and being listened to. Conclusion: Having individual information meetings integrated as a primary nursing responsibility, mediated by competent and compassionate nurses also responsible for the care of the child, could enhance person-centred care and individualise parental education.

Place, publisher, year, edition, pages
Elsevier, 2021. Vol. 51, article id 101923
Keywords [en]
Intervention, Nursing, Paediatric oncology, Parental experience, Person-centred information, Qualitative content analysis, Semi-structured interview
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-51996DOI: 10.1016/j.ejon.2021.101923ISI: 000634179100001PubMedID: 33618229Scopus ID: 2-s2.0-85101074419Local ID: HOA;;726191OAI: oai:DiVA.org:hj-51996DiVA, id: diva2:1535253
Funder
Swedish Childhood Cancer FoundationAvailable from: 2021-03-08 Created: 2021-03-08 Last updated: 2021-04-22Bibliographically approved

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Björk, Maria

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