A moment just for me – parents’ experiences of an intervention for person-centred information in paediatric oncology Show others and affiliations
2021 (English) In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 51, article id 101923Article in journal (Refereed) Published
Abstract [en]
Purpose: Information can help parents of children with cancer by reducing uncertainty and giving them a sense of control in a chaotic situation. Although providing information to parents is a core activity of paediatric oncology nursing, few studies focus on interventions for informing parents. Thus, the aim of this study is to evaluate parents’ experiences after participating in a person-centred information intervention for parents of children with cancer. Method: This study is part of a process evaluation of a person-centred informational intervention in paediatric oncology for patients’ parents. Qualitative semi-structured interviews with 13 parents who had taken part in the intervention were analysed using qualitative content analysis. Results: An opening for healing emerged as the overarching theme, consisting of three categories. Gaining a deeper understanding of the entire situation describes how parents benefitted from processing current topics and moving forward by learning. Caring reflections in a safe space describes how parents appreciated having a moment just for themselves and feeling better by venting their feelings. Meeting a competent and compassionate nurse describes how parents experienced trust and being listened to. Conclusion: Having individual information meetings integrated as a primary nursing responsibility, mediated by competent and compassionate nurses also responsible for the care of the child, could enhance person-centred care and individualise parental education.
Place, publisher, year, edition, pages Elsevier, 2021. Vol. 51, article id 101923
Keywords [en]
Intervention, Nursing, Paediatric oncology, Parental experience, Person-centred information, Qualitative content analysis, Semi-structured interview
National Category
Nursing
Identifiers URN: urn:nbn:se:hj:diva-51996 DOI: 10.1016/j.ejon.2021.101923 ISI: 000634179100001 PubMedID: 33618229 Scopus ID: 2-s2.0-85101074419 Local ID: HOA;;726191 OAI: oai:DiVA.org:hj-51996 DiVA, id: diva2:1535253
Funder Swedish Childhood Cancer Foundation 2021-03-082021-03-082021-04-22 Bibliographically approved