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Optimizing of a question prompt list to improve communication about the heart failure trajectory in patients, families, and health care professionals
Department of Health, Medicine and Caring Sciences, Division of Nursing Sciences and Reproductive Health, Linköping University, Linköping, Sweden.
Department of Health, Medicine and Caring Sciences, Linköping University, Linköping, Sweden.
Palliative Education & Research Centre, Vrinnevi hospital, Norrköping, Sweden.
Department of Health, Medicine and Caring Sciences, Division of Prevention, Rehabilitation and Community Medicine, Linköping University, Linköping, Sweden.
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2020 (English)In: BMC Palliative Care, E-ISSN 1472-684X, Vol. 19, no 1, article id 161Article in journal (Refereed) Published
Abstract [en]

Background: The aim of this study was to optimize a Question Prompt List which is designed to improve communication about the heart failure trajectory among patients, family members, and health care professionals. Methods: Data were collected in a two-round Delphi survey and a cross-sectional survey, including patients with heart failure, their family members, and health care professionals working in heart failure care in Sweden and the Netherlands. Acceptability for and demand of the Question Prompt List were assessed. Results: A total of 96 patients, 63 family members and 26 health care professionals participated in the study. Regarding acceptability, most of the original questions were found to be relevant by the participants for inclusion in the Question Prompt List but some cultural differences exist, which resulted in two versions of the list: a Swedish version including 33 questions and a Dutch version including 38 questions. Concerning demand, participants reported that they were interested in discussing the questions in the revised Question Prompt List with a physician or a nurse. Few patients and family members reported that they were worried by the questions in the Question Prompt List and hence did not want to discuss the questions. Conclusions: This Question Prompt List has successfully been adapted into a Swedish version and a Dutch version and includes questions about the HF trajectory which patients, their families, and health care professionals perceived to be relevant for discussion in clinical practice. Overall, patients and family members were not worried about the content in the Question Prompt List and if used in accordance with patients’ and family members’ preferences, the Question Prompt List can help to improve communication about the heart failure trajectory.

Place, publisher, year, edition, pages
BioMed Central, 2020. Vol. 19, no 1, article id 161
Keywords [en]
Communication, End-of-life care, Heart failure, Illness trajectory, Question prompt list
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hj:diva-50869DOI: 10.1186/s12904-020-00665-3ISI: 000582236900003PubMedID: 33059632Scopus ID: 2-s2.0-85092714694Local ID: GOA HHJ 2020OAI: oai:DiVA.org:hj-50869DiVA, id: diva2:1479166
Funder
Medical Research Council of Southeast Sweden (FORSS), 753711Available from: 2020-10-26 Created: 2020-10-26 Last updated: 2024-01-17Bibliographically approved

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