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Children in south africa with and without intellectual disabilities’ rating of their frequency of participation in everyday activities
Centre for Augmentative and Alternative Communication, University of Pretoria, Pretoria, 0028, South Africa.
Centre for Augmentative and Alternative Communication, University of Pretoria, Pretoria, 0028, South Africa.
Centre for Augmentative and Alternative Communication, University of Pretoria, Pretoria, 0028, South Africa.
Jönköping University, School of Health and Welfare, HHJ. CHILD. Centre for Research & Development, Uppsala University, Region Gävleborg, Gävle, 801 88, Sweden.
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2020 (English)In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 17, no 18, p. 1-12, article id 6702Article in journal (Refereed) Published
Abstract [en]

In a low-and middle-income country (LMIC) such as South Africa, not much is known about how children with intellectual disabilities (ID) participate in everyday activities, as no studies to date have compared their participation to peers without ID from the same background. Using a newly developed, contextually valid measure of participation, Picture my Participation (PmP), 106 children with (73) and without ID (33), rated their frequency of participation in activities of daily living. Previous international research has established that children with ID tend to participate less frequently than children without ID in everyday activities outside of the school setting. However, much of this research is based on proxy ratings from caregivers rather than children with ID themselves. There is a growing body of evidence that suggests children with disabilities have uniquely different views of their own participation than their caregivers. The existing research evidence is also delimited to studies conducted predominantly in high income contexts (HICSs). Since it is universally acknowledged that participation patterns are affected by the environment, it is important to evaluate the generalizability of the current evidence to LMICs. The current study found that there were many similar patterns of participation between the two groups although significant differences were noted in social, community, leisure and self-care activities. We compare these results to findings from studies conducted in HICs and find that there are similarities but also differences across contexts. This study highlights the importance of gaining a child’s perspective of participation and understanding how intellectual disability can affect participation relative to peers without ID in LMICS.

Place, publisher, year, edition, pages
MDPI, 2020. Vol. 17, no 18, p. 1-12, article id 6702
Keywords [en]
Activities of daily living, Attendance, Children with intellectual disabilities, Low-and middle-income country, Participation, Picture my Participation, Self-report, child, disability, income, participatory approach, South Africa
National Category
Pediatrics
Identifiers
URN: urn:nbn:se:hj:diva-50685DOI: 10.3390/ijerph17186702ISI: 000581190300001PubMedID: 32942532Scopus ID: 2-s2.0-85090835270Local ID: GOA HHJ 2020;HHJCHILDISOAI: oai:DiVA.org:hj-50685DiVA, id: diva2:1470366
Funder
The Swedish Foundation for International Cooperation in Research and Higher Education (STINT), SA2015-6253Available from: 2020-09-24 Created: 2020-09-24 Last updated: 2020-11-12Bibliographically approved

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Huus, Karina

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