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Co-creation of a working model to improve sexual health for persons living with rheumatological diseases
Jönköping University, School of Health and Welfare, The Jönköping Academy for Improvement of Health and Welfare. Jönköping University, School of Health and Welfare, HHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare). Department of Behavioural Sciences, Faculty of Health Sciences, Oslo Metropolitan University, Oslo, Norway, and Faculty of Health Studies, VID Specialized University, Sandnes, Norway..ORCID iD: 0000-0002-7669-4702
Swedish Rheumatism Association, Norrköping, Sweden.
Division of Occupational Therapy, Department of Social and Welfare Studies, Faculty of Health Sciences, Linköping University, Linköping, Sweden.
Department of Activity and Health, Department of Rehabilitation Medicine and Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.
2020 (English)In: Open Journal of Rheumatology and Autoimmune Diseases, ISSN 2163-9914, Vol. 10, no 3, p. 109-124Article in journal (Refereed) Published
Abstract [en]

Background: Sexual health needs are insufficiently met for persons living with rheumatological diseases and it is necessary to create better ways to meet these needs. 

Objective: To co-create a working model to improve sexual health for persons living with rheumatological diseases, that can be used by rheumatological teams in regular rheumatology practice. 

DesignThis study applied a co-creation design with three key features: 1) it took a systems perspective with emergent multiple interactive entities; 2) the research process was viewed as a creative endeavour with strong links to design, while human imagination and the individual experience of patient and staff were at the core of the creative design effort; 3) the process of the co-creative efforts was as important as the generated product. 

Results: A model defining the role of the patient, the professionals, and the team in optimizing sexual health for persons living with rheumatological diseases was co-created. The model can be seen as a practice guideline, which includes the support needed from and to each participant in the process of promoting sexual health, while being within the professional scope of the professionals’ knowledge and capacity, and in line with the needs of the persons living with rheumatological diseases. 

Discussion and Conclusions: The co-creative work process identified crucial factors in promoting sexual health, resulting in a useful model for patients, professionals and teams. Co-creation was experienced to be a useful research design to improve rheumatological care, through valuing and using the competence of all research members equally.

Place, publisher, year, edition, pages
Scientific Research Publishing, 2020. Vol. 10, no 3, p. 109-124
Keywords [en]
Co-Creation, Rheumatology, Sexual Health, Sexuality, Care, Sweden
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:hj:diva-49195DOI: 10.4236/ojra.2020.103013Local ID: GOA HHJ 2020OAI: oai:DiVA.org:hj-49195DiVA, id: diva2:1439101
Funder
Medical Research Council of Southeast Sweden (FORSS), FORSS701251Available from: 2020-06-11 Created: 2020-06-11 Last updated: 2020-06-12Bibliographically approved

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Areskoug Josefsson, KristinaBjörk, Mathilda

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