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“It is like living in a diminishing world”: older persons’ experiences of living with long-term health problems–prior to the STRENGTH intervention
Jönköping University, School of Health and Welfare, HHJ. ARN-J (Aging Research Network - Jönköping). School of Health Sciences, University of Skövde, Skövde, Sweden.
School of Health Sciences, University of Skövde, Skövde, Sweden.
Jönköping University, School of Health and Welfare, HHJ, Institute of Gerontology. Jönköping University, School of Health and Welfare, HHJ. ARN-J (Aging Research Network - Jönköping). School of Health Sciences, University of Skövde, Skövde, Sweden.
School of Health Sciences, University of Skövde, Skövde, Sweden.
2020 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 15, no 1, article id 1747251Article in journal (Refereed) Published
Abstract [en]

Introduction: Ageing is often associated with multiple long-term health problems influencing older persons’ well-being in daily living. It is not unusual that the point of interest in research is often on the management of the actual health problem instead of being holistic and person-centred. Purpose: To describe the phenomenon of living with long-term health problems that influence daily living, from the older persons’ perspective. Methods: Qualitative individual interviews were conducted with 34 older persons living with long-term health problems. The data were analysed using a Reflected Lifeworld Research (RLR) approach, grounded in phenomenology. Results: Life with long-term health problems entails living in a diminishing world. It entails living in uncertainty, not being able to trust one’s own ability. The freedom to make decisions of your own is deprived by relatives and health-care providers. Living with long-term health problems entails being dependent on support in daily life and a strive to maintain meaningfulness in daily living. Conclusions: The results address a need for extended individual and holistic guidance and support in living with long-term health problems to increase the older person’s sense of well-being and meaning in life.

Place, publisher, year, edition, pages
Taylor & Francis, 2020. Vol. 15, no 1, article id 1747251
Keywords [en]
Ageing, health problem, illness, multimorbidity, patient perspective, phenomenology, qualitative research, reflective lifeworld research, strength, well-being
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hj:diva-48750DOI: 10.1080/17482631.2020.1747251ISI: 000526446300001PubMedID: 32275201Scopus ID: 2-s2.0-85083506007Local ID: GOA HHJ 2020OAI: oai:DiVA.org:hj-48750DiVA, id: diva2:1434540
Available from: 2020-06-03 Created: 2020-06-03 Last updated: 2022-03-16Bibliographically approved
In thesis
1. Striving for meaning in a diminishing world: Older persons’ experiences of reflective STRENGTH-giving dialogues including a digital tool
Open this publication in new window or tab >>Striving for meaning in a diminishing world: Older persons’ experiences of reflective STRENGTH-giving dialogues including a digital tool
2022 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The Reflective STRENGTH-Giving Dialogue (STRENGTH) method was developed, grounded in a lifeworld perspective, with a focus on identifying and meeting older persons’ needs for the promotion of health and well-being. In this thesis, STRENGTH, including the digital tool SelfSTRENGTH, was tested in the context of community-dwelling older persons living with long-term health problems.

The overall aim was to describe how life with long-term health problems is experienced and influenced by the Reflective STRENGTH-Giving Dialogue intervention, including the SelfSTRENGTH app, by community-dwelling older persons.

The research was conducted based on a reflective lifeworld approach, through qualitative and quantitative method studies. Three of the studies had a qualitative, descriptive, and inductive design based on individual interviews and reflection notes with the older persons in the intervention group (Papers I–III). Analysis was conducted using phenomenology (Papers I–II), and phenomenography (Paper III). One study had a quasi-experimental pretest-posttest no-treatment control group design (Paper IV), and was analyzed using nonparametric paired statistics. Altogether, 60 older persons in the fourth age participated in the studies.

The finding showed, according to self-reports, that STRENGTH immediately and significantly reduced the impact of health problems on daily life, and increased well-being after each single dialogue. The content and outcome of the dialogues are affected by intersubjectivity, which is influenced by the healthcare professional (HCP) and the older person’s ability, as well as the relationship between them. STRENGTH dialogues that have an existential dimension are described as a starting point to provide a “push” toward joy and meaning. When the understanding of an older person’s holistic situation, including the past, present, and future, is tactfully and sensitively challenged with reflection and an emphasis on possibilities, the dialogues support joy and meaning in life. Dialogues of this nature have been lacking, as older persons may choose not to have that conversation with their family or HCPs, and HCPs may not attend to the older person’s existential needs and concerns. It is important when living in the feeling of a diminishing world for older persons to be involved in decisions that concern their lives and care, and to engage in life projects that improve well-being. This is made possible through the dialogues and use of the SelfSTRENGTH app. However, use of the app is hindered by resistance to digital technology and the occurrence of health problems.

To foster healthy ageing, HCPs need increased knowledge and favorable conditions for caring conversations and provision of digital support that older persons with long-term health problems need for participation in a digital society.

Place, publisher, year, edition, pages
Jönköping: Jönköping University, School of Health and Welfare, 2022. p. 111
Series
Hälsohögskolans avhandlingsserie, ISSN 1654-3602 ; 110
Keywords
Caring conversation, complex intervention, patient perspective, phenomenology, phenomenography, quasi-experimental design, reflected lifeworld research
National Category
Gerontology, specialising in Medical and Health Sciences Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:hj:diva-56043 (URN)978-91-88669-09-4 (ISBN)
Public defence
2022-04-29, Insikten, Portalen, Kanikegränd 3B, Skövde, 13:00 (English)
Opponent
Supervisors
Available from: 2022-03-16 Created: 2022-03-16 Last updated: 2023-01-16Bibliographically approved

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Åberg, CeciliaHallgren, Jenny

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