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The interdependent roles of patients, families and professionals in cystic fibrosis: A system for the coproduction of healthcare and its improvement
The Dartmouth Institute for Health Policy and Clinical Practice at the Geisel School of Medicine at Dartmouth, Lebanon, New Hampshire, USA.
Jönköping University, School of Health and Welfare, The Jönköping Academy for Improvement of Health and Welfare. Jönköping University, School of Health and Welfare, HHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare). The Dartmouth Institute for Health Policy and Clinical Practice at the Geisel School of Medicine at Dartmouth, Lebanon, New Hampshire, USA.
2014 (English)In: BMJ Quality and Safety, ISSN 2044-5415, E-ISSN 2044-5423, Vol. 23, no SUPPL1, p. i90-i94Article in journal (Refereed) Published
Abstract [en]

A quality healthcare system is coproduced by patients, families and healthcare professionals working interdependently to cocreate and codeliver care. Cystic fibrosis (CF) patients and families rely on healthcare professionals to provide the best possible care and timely, accurate information. They know that the care at home and in clinical settings needs to be seamless, using shared information and decisions. A parent's journey of better care begins with her son's diagnosis and moves to her involvement to improve the systems and processes of care for others. She reflects on this work and identifies five elements that contributed to the coproduction of improved care: (1) mental and emotional readiness to engage; (2) curiosity and the search for insight; (3) reframe challenges into opportunities for improvement; (4) listen and learn from everyone, bringing home what is relevant; and (5) personal participation. Joined with the reflections of an improvement scientist, they note that chronic care relies on informed, activated patients and prepared, proactive healthcare professionals working together and that it is more than 'patient-centric'. They propose a model for the coimprovement of systems of care.

Place, publisher, year, edition, pages
BMJ Publishing Group Ltd, 2014. Vol. 23, no SUPPL1, p. i90-i94
Keywords [en]
article, cystic fibrosis, health care delivery, health care personnel, health care system, human, learning, patient care, adolescent, adult, child, doctor patient relation, female, health care quality, human relation, integrated health care system, interdisciplinary communication, male, nurse patient relationship, organization and management, pathophysiology, preschool child, role playing, total quality management, United States, Child, Preschool, Delivery of Health Care, Integrated, Humans, Interpersonal Relations, Nurse-Patient Relations, Physician-Patient Relations, Professional-Family Relations, Quality Assurance, Health Care, Quality Improvement, Role
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:hj:diva-47252DOI: 10.1136/bmjqs-2013-002782ISI: 000333813600013PubMedID: 24608555Scopus ID: 2-s2.0-84896514136Local ID: GOA HHJ 2014OAI: oai:DiVA.org:hj-47252DiVA, id: diva2:1383236
Available from: 2020-01-07 Created: 2020-01-07 Last updated: 2020-01-07Bibliographically approved

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Batalden, Paul B.

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