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Content validity and usefulness of Picture My Participation for measuring participation in children with and without intellectual disability in South Africa and Sweden
Jönköping University, School of Health and Welfare, HHJ. CHILD. Centre for Research and Development, Uppsala University/Region Gävleborg, Gävle, Sweden.ORCID iD: 0000-0002-3067-2794
Centre for Augmentative and Alternative Communication, University of Pretoria, Pretoria, South Africa.ORCID iD: 0000-0001-6170-4763
Jönköping University, School of Health and Welfare, HHJ, Dep. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD. Jönköping University, School of Health and Welfare, HHJ. SALVE (Social challenges, Actors, Living conditions, reseach VEnue).ORCID iD: 0000-0001-9597-039X
Centre for Disability and Development Research, Australian Catholic University, Melbourne, Australia.ORCID iD: 0000-0001-9055-3554
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2020 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 27, no 5, p. 336-348Article in journal (Refereed) Published
Abstract [en]

Background: Participation comprises attendance and involvement in everyday situations. Picture My Participation (PmP) is an instrument intended to measure participation in children with disabilities, particularly in low and middle income countries.

Aim: To investigate content validity and usefulness of PmP for measuring participation in children with intellectual disability (ID) in South Africa and Sweden.

Methods: A picture supported interview with 149 children, 6?18 years, with and without ID. Twenty everyday activities were provided. The three most important activities were selected by the child. Attendance was rated on all activities. Involvement was rated on the most important.

Results: All activities were selected as important by at least one child with ID in both countries. There were similarities in perceived importance between the children with and without ID from South Africa. The children from South Africa with ID were the only subgroup that used all scale points for rating attendance and involvement.

Conclusion: The 20 selected activities of PmP were especially relevant for children with ID in South Africa. The usefulness of the scales was higher for the children with ID in both countries. PmP is promising for assessing participation across different settings but psychometrical properties and clinical utility need further exploration.

Place, publisher, year, edition, pages
Taylor & Francis, 2020. Vol. 27, no 5, p. 336-348
Keywords [en]
Low and middle income countries, everyday functioning, picture supported interview, cognitive support, self-ratings
National Category
Pediatrics Neurology
Identifiers
URN: urn:nbn:se:hj:diva-45528DOI: 10.1080/11038128.2019.1645878ISI: 000481225900001PubMedID: 31402722Scopus ID: 2-s2.0-85070823120Local ID: ;HHJCHILDIS,HHJSALVEIS,HLKCHILDISOAI: oai:DiVA.org:hj-45528DiVA, id: diva2:1341902
Available from: 2019-08-12 Created: 2019-08-12 Last updated: 2020-11-04Bibliographically approved

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Granlund, MatsHuus, Karina

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Arvidsson, PatrikDada, ShakilaGranlund, MatsImms, ChristineHuus, Karina
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