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Transition from paediatric to adult care: a qualitative study of the experiences of young adults with type 1 diabetes.
Department of Medicine, Haukeland University Hospital, Bergen, Norway.
Department of Health and Caring Sciences, Western Norway University of Applied Sciences, Bergen, Norway.
Department of Medicine, Haukeland University Hospital, Bergen, Norway.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. ADULT.ORCID iD: 0000-0002-7406-8732
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2019 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Article in journal (Refereed) Epub ahead of print
Abstract [en]

AIM: The aim of the present study was to explore how young adults with type 1 diabetes (T1D) experienced the transition from paediatric to adult health care services.

DESIGN: A qualitative, explorative design was used.

METHODS: Eleven young adults with T1D receiving adult diabetes care at a hospital in western Norway participated in semi-structured interviews. Data were analysed using Interpretive Description, an inductive approach inspired by grounded theory, ethnography and phenomenology, and specifically designed to explore phenomena in clinical practice aiming to generate new knowledge and skills.

RESULTS: Four main themes regarding the adolescents' experiences of the transfer from paediatric to adult care emerged: (i) limited information about the transition; (ii) transition from frequent, thorough and personal follow-up to a less comprehensive and less personal follow-up; (iii) the importance of being seen as a whole person; (iv) limited expectations of how the health care services were organised.

CONCLUSIONS: The study showed that the existing routines for transfer between paediatric and adult care are not optimal. The participants expressed that they were not prepared for the dissimilarities in follow-up and were predominantly less pleased with the adult care follow-up.

RELEVANCE TO CLINICAL PRACTICE: The findings support a need for structured transition programmes, that is programmes that contribute to young adults with T1D receiving a safe and positive transition at an otherwise demanding life phase. Young peoples' individual needs for the transition to and follow-up in adult care may be promoted by an approach based on person-centred care.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019.
Keywords [en]
adolescents, transition to adult care, type 1 diabetes, young adults
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-43405DOI: 10.1111/scs.12668PubMedID: 30866071Scopus ID: 2-s2.0-85062978847Local ID: HHJADULTISOAI: oai:DiVA.org:hj-43405DiVA, id: diva2:1301538
Available from: 2019-04-02 Created: 2019-04-02 Last updated: 2019-04-02

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