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Being the next of kin of a person with a low-grade glioma
Örebro universitet.
Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
2008 (English)In: Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer, ISSN 1057-9249, Vol. 17, no 6, p. 584-591Article in journal (Refereed) Published
Abstract [en]

There is a paucity of knowledge for health-care professionals who come into contact with next of kin of persons diagnosed with low-grade gliomas. Therefore, the aim of this study was to explore the experience of being the next of kin of an adult person diagnosed with a low-grade glioma.Twenty-eight next of kin of persons with a low-grade glioma were interviewed. The data were subjected to qualitative content analysis. A quantitative data analysis was added to explore how the themes from the qualitative analysis occurred among different next of kin.Four main themes emerged: Extremely stressful emotions, Being invisible and neglected, Changed relations and roles, and Enabling strength in everyday life. The first of these occurred mainly in the early period of illness. This theme was especially predominant in the case of the patient's parents. The theme of Changed relations and roles occurred more often among next of kin some years after the person's diagnosis. The most statements occurred in all four themes were by female next of kin.Many next of kin requested emotional support for themselves and indicated that it is important that health-care staff should not forget them.

Place, publisher, year, edition, pages
2008. Vol. 17, no 6, p. 584-591
Keywords [en]
next of kin, low-grade glioma, qualitative content analysis, relatives, spouses
National Category
Nursing Nursing
Identifiers
URN: urn:nbn:se:hj:diva-7210DOI: 10.1002/pon.1276PubMedID: 17957731OAI: oai:DiVA.org:hj-7210DiVA, id: diva2:128207
Available from: 2008-12-15 Created: 2008-12-15 Last updated: 2009-03-16Bibliographically approved

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Ahlström, Gerd

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
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