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“Being in-Between”: Spouses that cohabit with and provide care for their partners in nursing homes
Jönköping University, School of Health and Welfare, HHJ, Institute of Gerontology. Jönköping University, School of Health and Welfare, HHJ. ARN-J (Aging Research Network - Jönköping).ORCID iD: 0000-0003-0877-4759
2018 (English)In: Journal of Applied Gerontology, ISSN 0733-4648, E-ISSN 1552-4523Article in journal (Refereed) Epub ahead of print
Abstract [en]

It is increasingly possible for couples with differing care needs to move to nursing homes together. To our knowledge, this is the first study about spousal caregiving in this context. This study explores spouse and staff experiences when relatively healthy spouses cohabit with and provide care to their partners in Swedish nursing homes. The overarching theme, ?being in-between,? reflects the spouse?s overlapping role transition and the staff?s unfamiliarity with the spouse?s role. The spouses are both ?insiders? and ?outsiders? and are torn between maintaining and letting go of caregiving. Meanwhile, the staff express concern about the spouse?s need for respite yet being constantly present, and struggle to balance the staff?s and the spouse?s control of the caregiving situation. This article provides insight into the challenges experienced by spouses who accompany their partners to residential care and how to best support them in this unfamiliar role.

Place, publisher, year, edition, pages
Sage Publications, 2018.
Keywords [en]
nursing homes, co-resident, family, caregiving, spouse
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hj:diva-41673DOI: 10.1177/0733464818803007PubMedID: 30270712Scopus ID: 2-s2.0-85059103624OAI: oai:DiVA.org:hj-41673DiVA, id: diva2:1252354
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2015-00131
Note

Supplemental material for this article is available online.

Available from: 2018-10-01 Created: 2018-10-01 Last updated: 2019-01-07

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Torgé, Cristina Joy

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