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Adolescents' perceptions of the transition process from parental management to self-management of type 1 diabetes.
Department of Pediatrics, Ålesund Hospital, Ålesund, Norway.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. ADULT. Department of Clinical Neurophysiology, Linköping University Hospital, Linköping, Sweden.ORCID iD: 0000-0003-1884-5696
Department of Health and Caring Sciences, Western Norway University of Applied Sciences, Bergen, Norway.
2019 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 33, no 1, p. 128-135Article in journal (Refereed) Published
Abstract [en]

AIM: The aim of this study was to describe how adolescents perceive the transition from being dependent on their parents to managing their own type 1 diabetes.

DESIGN: An explorative design with a phenomenographic approach was used.

METHODS: Semistructured interviews took place during 2016-2017 with 18 strategically sampled adolescents (7 boys and 11 girls, aged 16-18 years) with type 1 diabetes from five Norwegian paediatric diabetes centres.

FINDINGS: Three descriptive categories, each comprising three perceptions, emerged: (1) Taking responsibility for own diabetes is a process comprised 'It is natural to take over responsibility for own diabetes', 'Expectations from parents and healthcare personnel', and 'The adolescents want more independence'. (2) Taking responsibility for own diabetes was dependent on coping comprised 'Feeling proud to handle their own diabetes', 'The transition is like a roller coaster', and 'Taking responsibility means that it is your fault if you make mistakes'. (3) It is demanding to take responsibility for own diabetes comprised 'Taking responsibility for own diabetes requires knowledge and skills', 'It is time-consuming to take responsibility for own diabetes', and 'Having responsibility for own diabetes is like being examined every day'.

CONCLUSIONS: Adolescents want to take over the responsibility for their diabetes treatment from their parents, but they need knowledge, experience and skills to succeed. Parents, friends and health professionals are important supporters during the transition.

RELEVANCE TO CLINICAL PRACTICE: Health professionals need to know their patients to identify the adolescents' need for support. Self-care is considered essential in the management of diabetes. Education sessions are an important part of the transition to control own diabetes. Such education should also include parents and friends.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019. Vol. 33, no 1, p. 128-135
Keywords [en]
adolescents, interviews, phenomenographic approach, qualitative method, transition, type 1 diabetes
National Category
Endocrinology and Diabetes
Identifiers
URN: urn:nbn:se:hj:diva-41572DOI: 10.1111/scs.12611ISI: 000462154100013PubMedID: 30152532Scopus ID: 2-s2.0-85053204767Local ID: HHJADULTISOAI: oai:DiVA.org:hj-41572DiVA, id: diva2:1250940
Available from: 2018-09-25 Created: 2018-09-25 Last updated: 2019-04-11Bibliographically approved

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