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Short-term longitudinal participation trajectories related to domestic life and peer relations for adolescents with and without self-reported neurodevelopmental impairments
Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.ORCID iD: 0000-0003-2827-9325
Jönköping University, School of Health and Welfare, HHJ, Dep. of Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD. Swedish Institute of Disability Research, Jönköping University, Jönköping, Sweden.ORCID iD: 0000-0001-9597-039X
Jönköping University, School of Health and Welfare. Department of Social and Behavioural Studies, University West, Trollhättan, Sweden.ORCID iD: 0000-0002-2998-7289
Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD. Swedish Institute of Disability Research, Jönköping University, Jönköping, Sweden.ORCID iD: 0000-0003-4079-8902
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2021 (English)In: Heliyon, E-ISSN 2405-8440, Vol. 7, no 4, article id e06784Article in journal (Refereed) Published
Abstract [en]

Background

With maturity and development, complexity in demands and roles change. As participation is often restricted in children with disabilities, this process might be delayed in adolescents. Investigating profiles of participation for adolescents with and without neurodevelopmental impairments could provide an understanding of which factors relate to high level of participation. The aim is to investigate trajectories of participation in everyday activities across clusters based on self-rated participation patterns in frequency of participation and perceived importance of activities related to domestic life and peer-related activities for adolescents with and without self-reported neurodevelopmental impairments.

Methods and procedures

A prospective person-based cohort study design.

Outcomes and results

Five typical trajectories were identified. Trajectories between clusters with high perceived involvement in peer relations were associated with sibling support and family communication. Self-reported neurodevelopmental impairments did not predict participation profiles at certain time points, nor movements between clusters when measuring self-reported attendance and importance in domestic life and in peer-related activities.

Conclusion and implications

Perceived sibling support and family communication are important for predicting typical trajectories across clusters in frequency of attendance and the perceived importance of domestic life and peer relations. Type of impairment was less important in predicting typical trajectories.

Place, publisher, year, edition, pages
Elsevier, 2021. Vol. 7, no 4, article id e06784
Keywords [en]
Adolescent participation, Cluster analysis, Neurodevelopmental impairment, Participation trajectories, Person-based design, Self-report
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-41235DOI: 10.1016/j.heliyon.2021.e06784ISI: 000647560000008PubMedID: 33912727Scopus ID: 2-s2.0-85104082259Local ID: GOA;;1241781OAI: oai:DiVA.org:hj-41235DiVA, id: diva2:1241781
Funder
Swedish Research Council Formas, 259-2012-25Swedish Research CouncilForte, Swedish Research Council for Health, Working Life and Welfare
Note

Included in doctoral thesis in manuscript form.

Available from: 2018-08-24 Created: 2018-08-24 Last updated: 2021-06-03Bibliographically approved
In thesis
1. Participation in and outside school: Self-ratings by Swedish adolescents with and without impairments and long-term health conditions
Open this publication in new window or tab >>Participation in and outside school: Self-ratings by Swedish adolescents with and without impairments and long-term health conditions
2018 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

This thesis concerns the short-term state of and changes in self-rated participation in domestic life, peer relations and, to some extent, school. Participants were adolescents with and without self-reported impairments and long-term health conditions. It is a thesis in disability research and a functional perspective on the participation of adolescents in everyday activities is applied. The thesis is one of several sub-studies in the Swedish research program LoRDIA (Longitudinal Research on Development in Adolescence).

Aim: The aim was to study the relationships between individual and environmental factors and participation in a two-time point longitudinal study within the frame of the health classification system ICF-CY. The aim was also to study the impact of environmental and individual factors on self-reported participation in adolescents with and without impairments and long-term health conditions.

Methods: The study designs in the four studies are cross-sectional (studies I and II), and prospective longitudinal (studies III & IV). A combination of person-based (such as cluster analysis in studies II and IV) and variable-based methods (such as ANOVA, multiple regressions, logistic regressions (studies I, II, III and IV)) were used.

Results: When linking items from a questionnaire aiming to measure mental health in adolescents to codes in the International Classification of Functioning, Disability and Health, Children and Youth version, latent coding is preferable to manifest coding. The focus should be on the underlying meaning of the item and the primary aim of the scale from which the item originated should be taken into consideration. Concerning the self-rated experience of participation, it was stable over time when investigated from a two-time point longitudinal perspective. Results revealed that type of impairment cannot be considered the sole predictor of the experience of participation at home, with peers and in school. Factors in the microsystem, e.g. sibling support, and perceived communication within the family, are of greater importance for the level of both participation attendance and the perceived importance of participating in domestic life and peer relations.

Conclusion: Everyday functioning in adolescents with self-reported neurodevelopmental impairments is partially affected by the same factors as for children without self-reported neurodevelopmental impairments. The effect of the neurodevelopmental impairment seems more evident in school and decreases in importance with age. Factors in the environment such as the experience of sibling support and communication patterns in the family must be taken into consideration when investigating influences on participation. When measuring participation both the frequency of attendance dimension as well as the perceived importance of the activity should be included as they seem to be related to partly differing influences.

Place, publisher, year, edition, pages
Jönköping: Jönköping University, School of Health and Welfare, 2018. p. 91
Series
Hälsohögskolans avhandlingsserie, ISSN 1654-3602 ; 093
Keywords
participation, adolescents, everyday functioning, ICF-CY, self-ratings, self-reported neurodevelopmental impairments, person-oriented design
National Category
Public Health, Global Health and Social Medicine
Identifiers
urn:nbn:se:hj:diva-41236 (URN)978-91-85835-92-8 (ISBN)
Public defence
2018-10-26, Forum Humanum, School of Health and Welfare, Jönköping, 13:00 (English)
Opponent
Supervisors
Available from: 2018-08-24 Created: 2018-08-24 Last updated: 2025-02-21Bibliographically approved

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Lygnegård, FridaGranlund, MatsKapetanovic, SabinaAugustine, LillyHuus, Karina

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