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ALS-En livsförändring i vardagen: -En litteraturöversikt
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
2018 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
ALS-A life change in everyday life : -A litterature review (English)
Abstract [sv]

Syfte: Att beskriva närståendes upplevelser av att leva med en person med ALS. Metod: En litteraturöversikt med kvalitativ metod och en induktiv ansats. Resultat: Sjukdomen ALS är ovanlig och de som drabbas av den är i stort behov av omvårdnad. Närstående till en anhörig som har fått diagnosen ALS, upplever att vårdpersonalen har kunskapsbrist angående sjukdomen och vårdandet. De upplever bristande information om sjukdomens förlopp. Egentiden tas ifrån dem, sådant som förr togs förgivet läggs istället åt sidan, då all fokus ligger på den anhöriges omvårdnad. Slutsats: Närstående väljer ofta att vårda den anhöriga i hemmet, trots det snabba sjukdomsförloppet. Vårdandet av den anhöriga leder till känslomässiga påfrestningar hos de närstående, både psykiska och fysiska.

Abstract [en]

Purpose: To describe next of kin experiences of living with person with ALS. Method: A literature review with qualitative method and an inductive approach. Result: The disease ALS is unusual and those who suffer from it are in great need of nursing. The next of kin those who has been diagnosed with ALS, find that healthcare professionals have a lack of knowledge regarding the disease and care. They experience insufficient information about the course of the disease. The true time is taken away from them, as was previously taking for granted, instead being put aside, as all focus is on the patient's nursing. Conclusion: Next of kin often choose to care for their relatives in spite of the progress of the ilness. The care of the relatives leads to emotional stresses of the related, both mental and physical.

Place, publisher, year, edition, pages
2018. , p. 39
Keywords [en]
Amyotrofisk lateral sclerosis, carer, MND, motor neurone disease, palliative care
Keywords [sv]
Amyotrofisk lateral sclerosis, anhörig, MND, motorneuron sjukdom, palliativ vård
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-39580ISRN: JU-HHJ-OMA-1-20180353OAI: oai:DiVA.org:hj-39580DiVA, id: diva2:1210910
Subject / course
HHJ, Nursing Science
Supervisors
Examiners
Available from: 2018-06-12 Created: 2018-05-29 Last updated: 2018-06-12Bibliographically approved

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CiteExportLink to record
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